Good evening. I don't know how low the temp was this morning; but when I
checked it at 8-ish it was 15 degrees!! I love the fire in the wood-
burning stove; wearing all my winter clothes; cuddling up under a blanket;
etc. So I am enjoying the cold. I can't wait for the snow to really fly!
Decorating our house in snowmen was an easy decision; I have been given so
many snowmen 'things' by people who know me well!
Ok, here is the haps on David's oncology appointment. My Facebook friends
already have a little 'heads up' on what is happening. Basically, David
did NOT gain any weight over the last two weeks. We talked about what to
do. Connie asked how opposed to an NG tube David was. He said he was
opposed to it. But as we were sitting there trying to figure out what to
do; just talking about getting him to eat made him nauseous. He sat there
with his head on my shoulder. She suggested Megace; an appetite stimulant.
We are going to give that a try. She said she wants to see him in 4 weeks
and see how he is doing. Then she said she would just give him a quick
check-up since we were there. Well, just walking from the chair to the
table (all of maybe 4 feet) raised his heart rate 20 bpm. When he told her
he has no energy; and I told her that he got so tired just coming
downstairs and picking up his laundry basket of clean clothes; she said
she wants to see him in two weeks, not four. She said she is concerned.
She said he is malnourished, and that is partly why he has no appetite. I
offer him food, he just won't eat. So we are going to try the Megace, and
if it doesn't work, then he gets the feeding tube. We are also talking
about some therapy for him. There could be some underlying reason why he
has this food aversion. The fact that Connie is concerned is what has us
very concerned. Therapy has been suggested to me in the past, and I was
really hoping to avoid it. David is a VERY quiet child, and I am not sure
he would open up to someone else. He was talking to a child psychologist,
named Christy, in the hospital; and it took a LONG time for him to even
make eye contact with her! So we are pretty much at a loss to know what to
do. We would covet your prayers for our precious son. He needs his protein
intake to be upped, substantially. He is eating, and I was surprised that
he hadn't gained at all. I feel like he is in the same position he was in
a year and a half ago when he got the feeding tube~~his body is unable to
gain the weight. Couple that with his not wanting to eat, and getting
nauseous just thinking about it; and you have a recipe for a malnourished
child!! *sigh* We soooooo hate seeing our child go through this. We do NOT
want to put him through the feeding tube again. But we will do whatever it
takes to get him healthy!! Thank you so much for your prayers, we need
them sooooo badly!
On a different note, David was cleared for PT again! Connie said we aren't
going to worry about range of motion; that is good. Dr. O is happy with 90
degree bend, David's is better than that. I don't know what his bend is,
but that is NOT what we are going to work on. We are going to focus on
muscle strengthening. His leg does still (again) buckle on him a lot, so
he does need to work on getting the muscles stronger. Of course, he needs
to eat more protein to help that area, too. He said he is looking forward
to working on those muscles, so that is good. He wants then to get
stronger, and he knows what he has to do to get there. So I will be giving
them a call tomorrow.
Thank you for visiting and checking up on David. Thank you to whoever you
are who deposited money into David's account; we sure need it! I pray and
ask God to give you an extra special blessing for the blessing you have
given us. Thank you. Thank you for your prayers; please keep them
coming!!! Have a good night. Sleep tight, and stay warm. God bless you
all. We love you.
Kristi and the Koury Klan
Three out of every five children diagnosed with cancer suffer from long-
term or late onset side effects.
Monday, November 30, 2009
Sunday, November 29, 2009
Sunday, November 29, 2009
Good evening.
It is cooooold, and beautiful here. It was all of 12 degrees this
morning!!! But I LOVE it!
We finally got the outside of the house decorated. We haven't decorated
the house for over 2 years. So this is the year! We have decided on a
'snow' and 'snowman' theme. I guess that would come as no surprise to
anyone who knows me!!! We have a few snowmen inside as well as outside.
Yay! We are done decorating. Bryon and I are pretty tired. Yesterday we
cleaned out the flowerbed that is in front of the house. Bryon did most of
the work. Now it is just down to the bare dirt! Come Spring I will have my
daffodils and sweet peas again!! It is nice to see all the weeds and the
cheat grass gone!! I will take a picture of the house and put it on here
in the next day or so. Whew. Glad that is done.
David has his appointment tomorrow to check his weight. He has been eating
ok, just not great. Please pray that he has at least maintained his
weight. We are really praying for a weight gain!! I will let you know
tomorrow how he is doing. His walking is going great! He limps, but I
think that maybe he always will. He is 'even' at least; for the most part.
But his leg is still weak. We find out tomorrow when he can start PT
again. Hopefully it will be soon. It has been kinda nice not having to
take him 3 times a week; but at the same time I have missed it. Please
continue to keep him in your prayers. Thank you so much.
Please continue to keep our finances in your prayers, as well as our
'special request.' Thank you. Thank you for checking in on David and the
Koury Klan. Have a good night. God bless you all. We love you.
Kristi and the Koury Klan
When we honestly ask ourselves which person in our lives means the most to
us, we often find that it is those who . . . have chosen . . . to share
our pain and touch our wounds with a gentle and tender hand.
Henri Nouwen
It is cooooold, and beautiful here. It was all of 12 degrees this
morning!!! But I LOVE it!
We finally got the outside of the house decorated. We haven't decorated
the house for over 2 years. So this is the year! We have decided on a
'snow' and 'snowman' theme. I guess that would come as no surprise to
anyone who knows me!!! We have a few snowmen inside as well as outside.
Yay! We are done decorating. Bryon and I are pretty tired. Yesterday we
cleaned out the flowerbed that is in front of the house. Bryon did most of
the work. Now it is just down to the bare dirt! Come Spring I will have my
daffodils and sweet peas again!! It is nice to see all the weeds and the
cheat grass gone!! I will take a picture of the house and put it on here
in the next day or so. Whew. Glad that is done.
David has his appointment tomorrow to check his weight. He has been eating
ok, just not great. Please pray that he has at least maintained his
weight. We are really praying for a weight gain!! I will let you know
tomorrow how he is doing. His walking is going great! He limps, but I
think that maybe he always will. He is 'even' at least; for the most part.
But his leg is still weak. We find out tomorrow when he can start PT
again. Hopefully it will be soon. It has been kinda nice not having to
take him 3 times a week; but at the same time I have missed it. Please
continue to keep him in your prayers. Thank you so much.
Please continue to keep our finances in your prayers, as well as our
'special request.' Thank you. Thank you for checking in on David and the
Koury Klan. Have a good night. God bless you all. We love you.
Kristi and the Koury Klan
When we honestly ask ourselves which person in our lives means the most to
us, we often find that it is those who . . . have chosen . . . to share
our pain and touch our wounds with a gentle and tender hand.
Henri Nouwen
Friday, November 27, 2009
Friday, November 27, 2009
Good evening. IT'S SNOWING!!
I hope you all had a wonderful Thanksgiving. Ours was quiet. It was just
the 7 of us enjoying our time together. We are so very thankful for the
blessings from God. #1 is that David is still alive, and able to celebrate
with us. Two years ago we were in the hospital with David having chemo on
Thanksgiving. We are so happy to be together this year with the other
children. We really missed going to my brother's house; it would have been
so much fun. But we did have a thankful Thanksgiving.
Rachel and I made 8 different kinds of cookies; Rachel made more fudge;
and David made biscotti. He did a GREAT job! He did 99% of it all by
himself. He wants to make some more! He really enjoys making it. And
Rachel and I had fun baking all those cookies. I sent a bunch home with
Jeremy and Lucy; and we still have plenty! One thing I don't need around
the house is a bunch of cookies!! Oh well. And Rachel is already talking
about the cookies we are going to be making for Christmas!! It will be
fun. I usually give away my baking as Christmas gifts to my friends, I
can't afford anything else. Plus, I am going to have David make some
biscotti for his Physical Therapy office. This month is going to go by
really fast!
Today Bryon put up the Christmas lights on the house, and I am putting
away the Fall decorations and getting out the Christmas ones. Our tree is
up, the kids just need to decorate it. There won't be presents under it,
but that is ok. We are going to celebrate the true meaning of Christmas
this year; and celebrate David being alive; and celebrate being together,
the 7 of us! We won't be in the hospital, and we won't be looking at David
having surgery in a few days! It will be a good Christmas.
Please continue to pray for our Osteo family members who are celebrating
their first holiday season without their children. Off-hand the ones I can
think of are Mattie, Sammie, Shane, Cullen, Amanda, and Emma. I know there
are many others, but I am tired and those are the names that come to mind
right now. Thank you for your prayers.
Thank you for visiting and checking in on David and the Koury Klan. Have a
good evening. Sleep tight. God bless you all. We love you.
Kristi and the Koury Klan
Cancer remains the number one disease killer of children; more than
genetic anomalies, cystic fibrosis, and AIDS combined.
I hope you all had a wonderful Thanksgiving. Ours was quiet. It was just
the 7 of us enjoying our time together. We are so very thankful for the
blessings from God. #1 is that David is still alive, and able to celebrate
with us. Two years ago we were in the hospital with David having chemo on
Thanksgiving. We are so happy to be together this year with the other
children. We really missed going to my brother's house; it would have been
so much fun. But we did have a thankful Thanksgiving.
Rachel and I made 8 different kinds of cookies; Rachel made more fudge;
and David made biscotti. He did a GREAT job! He did 99% of it all by
himself. He wants to make some more! He really enjoys making it. And
Rachel and I had fun baking all those cookies. I sent a bunch home with
Jeremy and Lucy; and we still have plenty! One thing I don't need around
the house is a bunch of cookies!! Oh well. And Rachel is already talking
about the cookies we are going to be making for Christmas!! It will be
fun. I usually give away my baking as Christmas gifts to my friends, I
can't afford anything else. Plus, I am going to have David make some
biscotti for his Physical Therapy office. This month is going to go by
really fast!
Today Bryon put up the Christmas lights on the house, and I am putting
away the Fall decorations and getting out the Christmas ones. Our tree is
up, the kids just need to decorate it. There won't be presents under it,
but that is ok. We are going to celebrate the true meaning of Christmas
this year; and celebrate David being alive; and celebrate being together,
the 7 of us! We won't be in the hospital, and we won't be looking at David
having surgery in a few days! It will be a good Christmas.
Please continue to pray for our Osteo family members who are celebrating
their first holiday season without their children. Off-hand the ones I can
think of are Mattie, Sammie, Shane, Cullen, Amanda, and Emma. I know there
are many others, but I am tired and those are the names that come to mind
right now. Thank you for your prayers.
Thank you for visiting and checking in on David and the Koury Klan. Have a
good evening. Sleep tight. God bless you all. We love you.
Kristi and the Koury Klan
Cancer remains the number one disease killer of children; more than
genetic anomalies, cystic fibrosis, and AIDS combined.
Tuesday, November 24, 2009
Tuesday, November 24, 2009
Happy Thanksgiving, everyone.
Ok, since I was asked several times for Quilters Soup, here it is. I got
the recipe from my mother several years ago. Here goes:
6 strips crisp bacon
1 pound browned ground beef
1 cup chopped celery
1 cup chopped onion
1 large can tomatoes (I use recipe ready)
1 can bullion soup (I use two cups water and beef base)
1 can cream of potato soup
1 pkg. frozen mixed vegetables
1 8oz. can tomato sauce
1/2 tsp. pepper
Combine all ingredients and cook 45 minutes or until heated through.
Can be put in a slow cooker and cook all day.
There, you all have it. It is very yummy. We had it with some crescent
rolls; and there was only a little bit leftover!! I am so ready for soups
for dinners. I love soup in the winter as much as I love salads in the
summer! Soup just makes me feel warm; inside and out!
Today I made 3 loaves of cranberry bread and some Church Window Candy.
Then Rachel and I made 2 different kinds of cookies. We made Nutmeg Sugar
Crisps, and Tender Sugar Cookies. Tomorrow David is going to make
biscotti~~~something he hasn't made in over 2 years! He started making
biscotti with me about 7 or 8 years ago. Now he does most of the 'work'
and really enjoys making it! And I enjoy spending the time with him in the
kitchen making the biscotti. So we will have some fun bonding time.
I want to say a big 'THANK YOU' to First Baptist Church,
Minden/Gardnerville. Thank you for providing our Thanksgiving dinner.
Also, THANK YOU to a long-time friend, Val, for the gift of the turkey.
You guys have NO idea how much all of this is appreciated. Thank you just
doesn't say it all, but I don't have the words. Thank you.
Well, that is about all that is going on in the Koury Cancer Ward. Thank
you for visiting and checking in on David and the Koury Klan. Have a good
evening. Sleep good. God bless you all. We love you.
Kristi and the Koury Klan
Today, up to 75% of the children with cancer can be cured, yet, some forms
of childhood cancers, like osteosarcoma, have proven so resistant to
treatment that, in spite of research, a cure is illusive.
Ok, since I was asked several times for Quilters Soup, here it is. I got
the recipe from my mother several years ago. Here goes:
6 strips crisp bacon
1 pound browned ground beef
1 cup chopped celery
1 cup chopped onion
1 large can tomatoes (I use recipe ready)
1 can bullion soup (I use two cups water and beef base)
1 can cream of potato soup
1 pkg. frozen mixed vegetables
1 8oz. can tomato sauce
1/2 tsp. pepper
Combine all ingredients and cook 45 minutes or until heated through.
Can be put in a slow cooker and cook all day.
There, you all have it. It is very yummy. We had it with some crescent
rolls; and there was only a little bit leftover!! I am so ready for soups
for dinners. I love soup in the winter as much as I love salads in the
summer! Soup just makes me feel warm; inside and out!
Today I made 3 loaves of cranberry bread and some Church Window Candy.
Then Rachel and I made 2 different kinds of cookies. We made Nutmeg Sugar
Crisps, and Tender Sugar Cookies. Tomorrow David is going to make
biscotti~~~something he hasn't made in over 2 years! He started making
biscotti with me about 7 or 8 years ago. Now he does most of the 'work'
and really enjoys making it! And I enjoy spending the time with him in the
kitchen making the biscotti. So we will have some fun bonding time.
I want to say a big 'THANK YOU' to First Baptist Church,
Minden/Gardnerville. Thank you for providing our Thanksgiving dinner.
Also, THANK YOU to a long-time friend, Val, for the gift of the turkey.
You guys have NO idea how much all of this is appreciated. Thank you just
doesn't say it all, but I don't have the words. Thank you.
Well, that is about all that is going on in the Koury Cancer Ward. Thank
you for visiting and checking in on David and the Koury Klan. Have a good
evening. Sleep good. God bless you all. We love you.
Kristi and the Koury Klan
Today, up to 75% of the children with cancer can be cured, yet, some forms
of childhood cancers, like osteosarcoma, have proven so resistant to
treatment that, in spite of research, a cure is illusive.
Monday, November 23, 2009
Monday, November 23, 2009
Good evening.
Well, things are what they are. Saturday was such a busy day that Rachel
and I didn't do much baking. Actually, she made fudge, and that was about
it. By the time we got doing some errand running, and making fudge, it was
time for church. Then on Sunday Jeremy and Lucy came over. Rachel and I
did make one batch of snowball cookies last night. Then tonight we made a
batch of cherry snowball cookies, and some Mexican hot chocolate snowball
cookies. Do you see a theme here? We LOVE snowball cookies. Plus, they are
really easy! Tomorrow we will make a different kind. I will make some
cranberry bread and some other stuff while she is at work tomorrow.
The weather has been so beautiful these past few days. Today I make some
'Quilters Soup' for dinner. It has been perfect soup weather. And that is
a soup that everyone loves. David even ate almost a full bowl of it. Yum.
Today was busy. I had to do all the Thanksgiving food shopping. David just
plugged away with school while I went shopping. He knows I am only as far
away as my cell phone; but I still don't like leaving him alone. Like I
said before~~~normally leaving him alone is not a big deal. But under the
present circumstances.......I just don't like to. But he doesn't want to
go shopping with me; plus he has to do school; so I leave him. I really
don't mind shopping alone, that is no big deal. I just try to do it as
fast as I can so I can get home to him. But I am now prepared for
Thursday. Whew.
Please continue to pray for David and his schooling. He is doing his best.
Thank you for your prayers. Please continue to pray for our 'special
request.' Thank you for visiting and checking in on David and the Koury
Klan. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Right now, this second, somewhere in America, there are 7 children
fighting for their lives who won't live through the day.
Well, things are what they are. Saturday was such a busy day that Rachel
and I didn't do much baking. Actually, she made fudge, and that was about
it. By the time we got doing some errand running, and making fudge, it was
time for church. Then on Sunday Jeremy and Lucy came over. Rachel and I
did make one batch of snowball cookies last night. Then tonight we made a
batch of cherry snowball cookies, and some Mexican hot chocolate snowball
cookies. Do you see a theme here? We LOVE snowball cookies. Plus, they are
really easy! Tomorrow we will make a different kind. I will make some
cranberry bread and some other stuff while she is at work tomorrow.
The weather has been so beautiful these past few days. Today I make some
'Quilters Soup' for dinner. It has been perfect soup weather. And that is
a soup that everyone loves. David even ate almost a full bowl of it. Yum.
Today was busy. I had to do all the Thanksgiving food shopping. David just
plugged away with school while I went shopping. He knows I am only as far
away as my cell phone; but I still don't like leaving him alone. Like I
said before~~~normally leaving him alone is not a big deal. But under the
present circumstances.......I just don't like to. But he doesn't want to
go shopping with me; plus he has to do school; so I leave him. I really
don't mind shopping alone, that is no big deal. I just try to do it as
fast as I can so I can get home to him. But I am now prepared for
Thursday. Whew.
Please continue to pray for David and his schooling. He is doing his best.
Thank you for your prayers. Please continue to pray for our 'special
request.' Thank you for visiting and checking in on David and the Koury
Klan. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Right now, this second, somewhere in America, there are 7 children
fighting for their lives who won't live through the day.
Friday, November 20, 2009
Friday, November 20, 2009
Good evening.
Yesterday was a very long day. We left our house around 8:15am. We stopped
at Subway in Fairfield for lunch (thank you for the gift card, Noreen). We
arrived in San Francisco around 1:00pm, or so, I think. We checked in at
Dr. O's office around 1:20 for David's appointment; which was scheduled
for 1:40. Then we went and got his leg xrayed. Then we waited. We got
called into the room around 3:00. Then we waited some more. Then they came
around 4:00 and took out David's staples. Then we waited for Dr. O. He
finally came in and still laughs at the video of David doing his 'trick'
with his broken implant. So I emailed him the video, plus the pictures
that I have added here. He wants to see David back in 3 months; so we will
try to get his scans scheduled for the same time, well, the next day; so
we only have to make one trip to the Bay Area. Then we left there and went
over to the hospital to see Sara. I told you about Sara several months
ago. She was diagnosed with Osteosarcoma in June, and she is from Fallon,
NV. That is about an hour east of us. Anyway, I have been wanting to meet
her, we just never seem to be in SF at the same time. Well, we got to meet
her, her dad, and her sister. David couldn't go in the room because he is
only 15; and no one under 16 is allowed to visit because of Swine Flu. So
he had to wait by the elevators for us. It was just so fantastic to
finally see her. Please keep her in your prayers. She hopes to go home on
Monday. She has a thoracotomy scheduled for 12/14; please remember to pray
for her. Thanks. Then we left SF about 5:30, I think. We drove through
dinner, didn't even stop to eat, and we got home a little after 10:30pm!
It was a very long day. But it was a really good day. David got his
staples out, and we met Sara. I am just glad the day is over. Whew. Busy
day. So today has been a 'catch-up' day.
Today has been a gorgeous day! It was SUPER windy and COLD today!! Then,
it snowed! Yay! It didn't stick, unfortunately, but it was still a
beautiful day. It is now just wet and cold, but I love it. We have a nice
fire in the wood-burning stove (had a fire all day), I made the best chili
in the world for dinner, and we are all just toasty and comfy in the
house. So, that is the news of today.
Tomorrow Rachel and I are going to do some baking. Since we are going to
be home for Thanksgiving, I need to do some baking. David wants fudge, so
we will make him fudge! It is nice and fattening! Then we will make some
cranberry bread and some kind of cookies~~I hope Rachel has some ideas! I
think I have the ingredients on hand for some basic sugar
cookies.......we'll see.
Well, that is about it for now. Thank you for visiting and checking in on
David and the Koury Klan. Have a good night. God bless you all. We love
you.
Kristi and the Koury Klan
While the cancer death rate has dropped more dramatically for children
than for any other age group, 2,300 children and teenagers will die each
year from cancer.
Yesterday was a very long day. We left our house around 8:15am. We stopped
at Subway in Fairfield for lunch (thank you for the gift card, Noreen). We
arrived in San Francisco around 1:00pm, or so, I think. We checked in at
Dr. O's office around 1:20 for David's appointment; which was scheduled
for 1:40. Then we went and got his leg xrayed. Then we waited. We got
called into the room around 3:00. Then we waited some more. Then they came
around 4:00 and took out David's staples. Then we waited for Dr. O. He
finally came in and still laughs at the video of David doing his 'trick'
with his broken implant. So I emailed him the video, plus the pictures
that I have added here. He wants to see David back in 3 months; so we will
try to get his scans scheduled for the same time, well, the next day; so
we only have to make one trip to the Bay Area. Then we left there and went
over to the hospital to see Sara. I told you about Sara several months
ago. She was diagnosed with Osteosarcoma in June, and she is from Fallon,
NV. That is about an hour east of us. Anyway, I have been wanting to meet
her, we just never seem to be in SF at the same time. Well, we got to meet
her, her dad, and her sister. David couldn't go in the room because he is
only 15; and no one under 16 is allowed to visit because of Swine Flu. So
he had to wait by the elevators for us. It was just so fantastic to
finally see her. Please keep her in your prayers. She hopes to go home on
Monday. She has a thoracotomy scheduled for 12/14; please remember to pray
for her. Thanks. Then we left SF about 5:30, I think. We drove through
dinner, didn't even stop to eat, and we got home a little after 10:30pm!
It was a very long day. But it was a really good day. David got his
staples out, and we met Sara. I am just glad the day is over. Whew. Busy
day. So today has been a 'catch-up' day.
Today has been a gorgeous day! It was SUPER windy and COLD today!! Then,
it snowed! Yay! It didn't stick, unfortunately, but it was still a
beautiful day. It is now just wet and cold, but I love it. We have a nice
fire in the wood-burning stove (had a fire all day), I made the best chili
in the world for dinner, and we are all just toasty and comfy in the
house. So, that is the news of today.
Tomorrow Rachel and I are going to do some baking. Since we are going to
be home for Thanksgiving, I need to do some baking. David wants fudge, so
we will make him fudge! It is nice and fattening! Then we will make some
cranberry bread and some kind of cookies~~I hope Rachel has some ideas! I
think I have the ingredients on hand for some basic sugar
cookies.......we'll see.
Well, that is about it for now. Thank you for visiting and checking in on
David and the Koury Klan. Have a good night. God bless you all. We love
you.
Kristi and the Koury Klan
While the cancer death rate has dropped more dramatically for children
than for any other age group, 2,300 children and teenagers will die each
year from cancer.
Wednesday, November 18, 2009
Wednesday, November 18, 2009
Good evening.
I got the following from our website support group. They are a fantastic
bunch of people who are on the same journey we are on, their children have
the same cancer, and they have been there for us throughout this journey.
Some are farther along than us, some are not as far as us, but we are all
there for each other. Some of the children are still fighting, some have
lost their battle, and some are doing well. They are our family, and we
love them all!! Anyway, this so exactly describes our life, so I thought I
would share it with you. Here goes:
Parents of children with a terminal illness are often referred to or
viewed as having strength “like a rock.” Albeit flattering, it isn’t quite
true. It is more like the strength of an egg. An egg, you ask? Yes! If
you’ll think about it, you’ll see my point. An egg has a polished, smooth
outer appearance, with no cracks or weak spots visible. It seems almost
inconceivable that the inside might not be so smooth or solid. Most
children, at some point are shown the famous egg trick. An egg set at just
the right angle can withstand enormous amounts of pressure and cannot be
cracked or broken. Yet the same egg, tapped gently at an ever slightly
different angle, will break. The contents, once so neatly concealed, will
come spilling out. The no longer perfect shell will be crushed. It looks
so fragile that it seems inconceivable that it ever held any strength. A
rock, on the other hand, is solid all the way through. To break it is
almost impossible. If you succeed, you will find that there is nothing
inside but more rock. It takes a lot more than pure hardness to hold the
hand of hope. Parents of [medically fragile] children are not solid all
the way through. We hurt, we fear, we cry, we hope. It takes a very
careful balancing act to keep the shell from being shattered. “Balancing
an egg” while running a household, going for doctors’ visits and hospital
stays, keeping the family together, and holding on to the constantly
unraveling ties of your sanity can be very tricky indeed! Occasionally,
the angle will be off and the shell will break, shattering hope and all
the neatly secured appearances of a truly fragile existence. Unlike Humpty
Dumpty, though, parents of medically fragile kids will pick themselves up
and put themselves back together again.
Anonymous
David is doing about the same as yesterday; eating wise. He ate a piece of
sourdough toast for breakfast, some chips and dip, and about 1/3 cup of
leftover Sour Cream Chili Bake (minus the sour cream) for lunch. He eats
dinner at Bible Study tonight, so we will see how that goes. Nita had a
thought. She said Chris still can't eat breakfast~~~the association of
chemo in the morning and not being able to eat. Maybe that is part of
David's problem. I know that having cancer and all the ramifications of
the treatment go very deep; especially in a child. *sigh* We will get
through this, somehow or other. Thank you for your prayers, and
suggestions. I appreciate all the advice and suggestions I can get.
Well, tomorrow we go to San Francisco, again! David is happy. He doesn't
want to go to S.F., but he is ready to have those staples out!!!! He can't
wear long pants; and it is COLD!! He is freezing! So after tomorrow he can
wear long pants. Woo-Hoo!! We have to leave at 8am! It will be a long day.
At least the Bay Bridge is fixed! But it will still be a long day. I don't
know if I will update tomorrow; it depends on what time we get home. I
will let you know how it goes, eventually.
Thank you for visiting and checking in on David and the Koury Klan. Have
a good night. God bless you all. We love you.
Kristi and the Koury Klan
I got the following from our website support group. They are a fantastic
bunch of people who are on the same journey we are on, their children have
the same cancer, and they have been there for us throughout this journey.
Some are farther along than us, some are not as far as us, but we are all
there for each other. Some of the children are still fighting, some have
lost their battle, and some are doing well. They are our family, and we
love them all!! Anyway, this so exactly describes our life, so I thought I
would share it with you. Here goes:
Parents of children with a terminal illness are often referred to or
viewed as having strength “like a rock.” Albeit flattering, it isn’t quite
true. It is more like the strength of an egg. An egg, you ask? Yes! If
you’ll think about it, you’ll see my point. An egg has a polished, smooth
outer appearance, with no cracks or weak spots visible. It seems almost
inconceivable that the inside might not be so smooth or solid. Most
children, at some point are shown the famous egg trick. An egg set at just
the right angle can withstand enormous amounts of pressure and cannot be
cracked or broken. Yet the same egg, tapped gently at an ever slightly
different angle, will break. The contents, once so neatly concealed, will
come spilling out. The no longer perfect shell will be crushed. It looks
so fragile that it seems inconceivable that it ever held any strength. A
rock, on the other hand, is solid all the way through. To break it is
almost impossible. If you succeed, you will find that there is nothing
inside but more rock. It takes a lot more than pure hardness to hold the
hand of hope. Parents of [medically fragile] children are not solid all
the way through. We hurt, we fear, we cry, we hope. It takes a very
careful balancing act to keep the shell from being shattered. “Balancing
an egg” while running a household, going for doctors’ visits and hospital
stays, keeping the family together, and holding on to the constantly
unraveling ties of your sanity can be very tricky indeed! Occasionally,
the angle will be off and the shell will break, shattering hope and all
the neatly secured appearances of a truly fragile existence. Unlike Humpty
Dumpty, though, parents of medically fragile kids will pick themselves up
and put themselves back together again.
Anonymous
David is doing about the same as yesterday; eating wise. He ate a piece of
sourdough toast for breakfast, some chips and dip, and about 1/3 cup of
leftover Sour Cream Chili Bake (minus the sour cream) for lunch. He eats
dinner at Bible Study tonight, so we will see how that goes. Nita had a
thought. She said Chris still can't eat breakfast~~~the association of
chemo in the morning and not being able to eat. Maybe that is part of
David's problem. I know that having cancer and all the ramifications of
the treatment go very deep; especially in a child. *sigh* We will get
through this, somehow or other. Thank you for your prayers, and
suggestions. I appreciate all the advice and suggestions I can get.
Well, tomorrow we go to San Francisco, again! David is happy. He doesn't
want to go to S.F., but he is ready to have those staples out!!!! He can't
wear long pants; and it is COLD!! He is freezing! So after tomorrow he can
wear long pants. Woo-Hoo!! We have to leave at 8am! It will be a long day.
At least the Bay Bridge is fixed! But it will still be a long day. I don't
know if I will update tomorrow; it depends on what time we get home. I
will let you know how it goes, eventually.
Thank you for visiting and checking in on David and the Koury Klan. Have
a good night. God bless you all. We love you.
Kristi and the Koury Klan
Tuesday, November 17, 2009
Tuesday, November 17, 2009
Good evening.
David had an ok day. I am not really sure the 'letting him take the lead'
in his eating is going to be such a good idea. For breakfast he ate a
piece of sourdough toast. Then mid morning he had some chips and dip. Then
he had nothing to eat until dinner. I made Sour Cream Chili Bake for him;
it is one of his favorite things I make. He ate a good helping of it, but
still. I guess we will see how it goes from now on. It is frustrating for
me. I am trying not to nag him, but I just want to scream when he won't
eat!! I have sorta figured something out, though. For the past 2 years
David's life has been out of his control. Things happened to him that he
had no control over. People did things (with our permission) to him that
were out of his control. Now his eating is 100% in his control. That is
the one area where nobody else can make him do something. I hope that
makes sense. I can't blame him for how he is acting; once I try to figure
him out! I just need to step back and let him take responsibility for this
situation. If he loses more weight; and ends up with a feeding tube again;
then that will be HIS choice, and he will have to take responsibility for
it. It is just hard. I want to put him in a bubble and let nothing more
bad happen to him. The feeding tube is not pleasant! I want to shield him
from that~~~but I can't!!! Please, please pray for me as I have to sit and
watch him not eat. Pray that I can do the right thing, and that he will
start eating!! Thank you for your prayers.
Please continue to pray for our 'special request' and for our finances. I
got the statement from David's last surgery~~~the hospital bill was
$58,000! David is rapidly running out of his lifetime cap of $2 million.
We are now in the new fiscal year, so we have to come up with lots of $$$
for David's care. You know, all the deductibles; which have gone up, by
the way. And gone up significantly!!! But what choice do we have? When it
comes to our child's life; there is NO choice!! So we would just really
covet your prayers. Thank you.
David is excited/nervous for Thursday. He gets his staples out on
Thursday. He can't wait for that, they are bugging him so much. He is
nervous because some are pretty healed and embedded in his leg. Please
pray for him as he anticipates Thursday. Thanks.
Mike~~please forgive us for not being able to make it down for
Thanksgiving! We really want to come down. We are so sorry. We love you
guys.
Thank you for checking in on David and the Koury Klan. Have a good night.
Thank you so very much for your prayers. We appreciate you all more than
you know. God bless you all. We love you.
Kristi and the Koury Klan
Pediatric cancer is a punishing disease for children and their families.
And the often harsh treatments for cancer can impede youngsters'
development at a crucial time.
David had an ok day. I am not really sure the 'letting him take the lead'
in his eating is going to be such a good idea. For breakfast he ate a
piece of sourdough toast. Then mid morning he had some chips and dip. Then
he had nothing to eat until dinner. I made Sour Cream Chili Bake for him;
it is one of his favorite things I make. He ate a good helping of it, but
still. I guess we will see how it goes from now on. It is frustrating for
me. I am trying not to nag him, but I just want to scream when he won't
eat!! I have sorta figured something out, though. For the past 2 years
David's life has been out of his control. Things happened to him that he
had no control over. People did things (with our permission) to him that
were out of his control. Now his eating is 100% in his control. That is
the one area where nobody else can make him do something. I hope that
makes sense. I can't blame him for how he is acting; once I try to figure
him out! I just need to step back and let him take responsibility for this
situation. If he loses more weight; and ends up with a feeding tube again;
then that will be HIS choice, and he will have to take responsibility for
it. It is just hard. I want to put him in a bubble and let nothing more
bad happen to him. The feeding tube is not pleasant! I want to shield him
from that~~~but I can't!!! Please, please pray for me as I have to sit and
watch him not eat. Pray that I can do the right thing, and that he will
start eating!! Thank you for your prayers.
Please continue to pray for our 'special request' and for our finances. I
got the statement from David's last surgery~~~the hospital bill was
$58,000! David is rapidly running out of his lifetime cap of $2 million.
We are now in the new fiscal year, so we have to come up with lots of $$$
for David's care. You know, all the deductibles; which have gone up, by
the way. And gone up significantly!!! But what choice do we have? When it
comes to our child's life; there is NO choice!! So we would just really
covet your prayers. Thank you.
David is excited/nervous for Thursday. He gets his staples out on
Thursday. He can't wait for that, they are bugging him so much. He is
nervous because some are pretty healed and embedded in his leg. Please
pray for him as he anticipates Thursday. Thanks.
Mike~~please forgive us for not being able to make it down for
Thanksgiving! We really want to come down. We are so sorry. We love you
guys.
Thank you for checking in on David and the Koury Klan. Have a good night.
Thank you so very much for your prayers. We appreciate you all more than
you know. God bless you all. We love you.
Kristi and the Koury Klan
Pediatric cancer is a punishing disease for children and their families.
And the often harsh treatments for cancer can impede youngsters'
development at a crucial time.
Monday, November 16, 2009
Monday, November 16, 2009
Good evening.
Ok, here is the news about David's oncology appointment. First, he has
lost a significant amount of weight. He now only weighs 119 pounds. Connie
looked at his chart and said that is a 13-14 pound loss. That is HUGE for
him. So, we are to just let him eat what he feels like eating; not overly
encourage him to eat anything else. She said that basically what we are
doing when we try to encourage him to eat is we are overwhelming him. Then
when all this food is verbally thrown at him, the thought of eating makes
him sick. So we are to take our cues from him and suggest things, but let
him take the 'lead' in his eating. She wants to see him in two weeks for a
weigh-in. She said she won't be upset if he doesn't gain, just as long as
he doesn't lose. He is back in the 'failure to thrive' category he was in
1 1/2 years ago. That is NOT good. We knew he was losing weight, we just
didn't know it was that bad. Please pray that he can stop losing the
weight, and that I can back-off. As his mom, I want to see him eat; and it
is hard for me to see him like this. She asked if he was like this before
he was diagnosed with cancer, and he said no. He knows he had a normal
appetite 'bc' (before cancer), and he was a lot more active; that is why
he was skinny then. But being skinny just because he won't eat is a whole
different situation from being skinny because you are eating and active.
Let me tell you~~~cancer sucks!!! It has 'damaged' my son in sooooo many
ways! I would really covet your prayers for all of us. Thank you.
Otherwise his appointment went well. Connie is going to get the info on
the phosphorous levels; so we are still in limbo about that. The other bad
part about the appointment is we were told NOT to take David anywhere for
Thanksgiving. We were invited to go to my brother's house (and we REALLY
want to go), but we were told not to. Connie said that 10 hours in the car
is too much for David this soon after surgery. If surgery had been a
couple months ago, that would have been different. We were told the 4
hours from S.F. was too much; but we had no choice about that one!! We
live 4 hours away, and we had to get home! Also, she said that there are
tons of germs out there that his body just can't fight. As evidenced by
his recent illness. She said those germs are nothing to you and me, but
could be deadly to David. I don't really understand that. He isn't having
chemo anymore, so I would think he would be ok. But apparently not. So we
are quite bummed about not being able to go to my brother's house. We have
been trying to get there for 2 years~~~yep, right when David was diagnosed
was when we were going to go. Ever since then we have been trying, but it
seems like there is one thing after another that keeps getting in the way!
*sigh* So sorry, Mike. It will happen, eventually. Please don't give up on
us! These things are just out of our hands. David's health is our #1
priority. I know my brother understands, it is just frustrating.
When David was laying on the table, Connie was very surprised to see that
David can almost get his leg straight! He is such a trooper. She said
after his appointment in 2 weeks we will start PT again. David is sooo
excited about that, NOT! He has enjoyed the break from PT. But his muscles
have atrophied sooo badly that he needs PT. But again, his appointment
went well, overall. He is still being the fantastic child that he is, and
still being the trooper that he always has been. We are so proud of him. I
am so glad he is my son.
Please continue to pray for his school situation. He is trying so hard.
Please pray that he is able to get the work done. Thank you for your
prayers.
Thank you for visiting and checking in on David and the Koury Klan. Thank
you for the prayers; boy do we need them! Have a good evening. God bless
you all. We love you.
Kristi and the Koury Klan
Detecting childhood cancers at an early stage, when the disease would
react more favorably to treatment, is extremely difficult.
Ok, here is the news about David's oncology appointment. First, he has
lost a significant amount of weight. He now only weighs 119 pounds. Connie
looked at his chart and said that is a 13-14 pound loss. That is HUGE for
him. So, we are to just let him eat what he feels like eating; not overly
encourage him to eat anything else. She said that basically what we are
doing when we try to encourage him to eat is we are overwhelming him. Then
when all this food is verbally thrown at him, the thought of eating makes
him sick. So we are to take our cues from him and suggest things, but let
him take the 'lead' in his eating. She wants to see him in two weeks for a
weigh-in. She said she won't be upset if he doesn't gain, just as long as
he doesn't lose. He is back in the 'failure to thrive' category he was in
1 1/2 years ago. That is NOT good. We knew he was losing weight, we just
didn't know it was that bad. Please pray that he can stop losing the
weight, and that I can back-off. As his mom, I want to see him eat; and it
is hard for me to see him like this. She asked if he was like this before
he was diagnosed with cancer, and he said no. He knows he had a normal
appetite 'bc' (before cancer), and he was a lot more active; that is why
he was skinny then. But being skinny just because he won't eat is a whole
different situation from being skinny because you are eating and active.
Let me tell you~~~cancer sucks!!! It has 'damaged' my son in sooooo many
ways! I would really covet your prayers for all of us. Thank you.
Otherwise his appointment went well. Connie is going to get the info on
the phosphorous levels; so we are still in limbo about that. The other bad
part about the appointment is we were told NOT to take David anywhere for
Thanksgiving. We were invited to go to my brother's house (and we REALLY
want to go), but we were told not to. Connie said that 10 hours in the car
is too much for David this soon after surgery. If surgery had been a
couple months ago, that would have been different. We were told the 4
hours from S.F. was too much; but we had no choice about that one!! We
live 4 hours away, and we had to get home! Also, she said that there are
tons of germs out there that his body just can't fight. As evidenced by
his recent illness. She said those germs are nothing to you and me, but
could be deadly to David. I don't really understand that. He isn't having
chemo anymore, so I would think he would be ok. But apparently not. So we
are quite bummed about not being able to go to my brother's house. We have
been trying to get there for 2 years~~~yep, right when David was diagnosed
was when we were going to go. Ever since then we have been trying, but it
seems like there is one thing after another that keeps getting in the way!
*sigh* So sorry, Mike. It will happen, eventually. Please don't give up on
us! These things are just out of our hands. David's health is our #1
priority. I know my brother understands, it is just frustrating.
When David was laying on the table, Connie was very surprised to see that
David can almost get his leg straight! He is such a trooper. She said
after his appointment in 2 weeks we will start PT again. David is sooo
excited about that, NOT! He has enjoyed the break from PT. But his muscles
have atrophied sooo badly that he needs PT. But again, his appointment
went well, overall. He is still being the fantastic child that he is, and
still being the trooper that he always has been. We are so proud of him. I
am so glad he is my son.
Please continue to pray for his school situation. He is trying so hard.
Please pray that he is able to get the work done. Thank you for your
prayers.
Thank you for visiting and checking in on David and the Koury Klan. Thank
you for the prayers; boy do we need them! Have a good evening. God bless
you all. We love you.
Kristi and the Koury Klan
Detecting childhood cancers at an early stage, when the disease would
react more favorably to treatment, is extremely difficult.
Sunday, November 15, 2009
Sunday, November 15, 2009
Good evening.
Today was an ok day. David is feeling much better. He is hooked on Ginger
Ale! Crazy kid! That is his drink of choice now. That is just fine with
me. It keeps his tummy settled. He has eaten much better today. His tummy
is still sore; inside and outside. I know that will take time to heal.
Back in 2/08 when he had the endoscopy that discovered the ulcer they said
that the trauma to his stomach does take time to heal, especially with an
ulcer!! Poor kid. But it will be fine. He did eat better, and I am happy
with that. The one thing that I am having NO problem getting him to eat is
chip and dip! We have this great dip from a mail order place (called
Singing Pig Food Co.) that David loves. I make it with lowfat sour cream
and mayo. The flavor he likes is Cheddar & Chives. So if he will eat it, I
will gladly make it for him. I only have 2 more pkgs. of that flavor
left........so I hope he doesn't eat it too fast, ha-ha. I bought it quite
some time ago, and put it in the pantry and sorta forgot about it. I am
glad I remembered it so I could make it for him. At least I found
something he will eat! Thank you for your prayers; he is feeling better. I
am continuing to soak my house in Lysol, and I bought David a new
toothbrush! So hopefully I can keep him well.
Please pray for my daughter-in-love, Lucy. She is not feeling well. It
isn't what David had, she is having sinus problems. She seems to have a
lot of sinus issues~~not sure what that is about. Jeremy came over today,
Lucy stayed home. She didn't need to spread her germs or be at risk of
getting David's germs. I sent Jeremy home with a can of Lysol to spray all
over his house!! Thank you for praying for her.
I talked to David's school about the 504 plan. She was very helpful and
sent us some forms to fill out. I wrote her back and told her that David
is having issues with the time constraints. He has always been
homeschooled, but since the cancer diagnosis school is just done on his
own time. As you know, that means that sometimes he finishes school in
late July; but he still finishes. Then I gave her the addresses to David's
websites, and this is what she wrote back to me, "Kristi,
Thanks for sharing his websites with me. I was wondering if you have
thought about sharing them with his teachers, too.
It is an understatement to say that David and your family has been through
a lot over the past couple of years. I'd like to get the 504 plan in
place for him as soon as possible.
Heather" So now I am thinking about giving David's websites to his
teachers so they can put a face to his name, and understand why he needs
the 504. But I thought that was a sweet note from Heather. I am not asking
for 'special treatment' for David; but with all the surgeries, trips to
Oakland Children's Hospital, trips to San Francisco, trips to Renown, PT,
etc. he just needs more time to complete the work. He tries so hard, poor
guy. Thank you for your prayers about that.
David has an oncology appointment tomorrow. We will find out some
information about his blood work, hopefully. We want to see if we can
discontinue the Phosphorous. We will also see if it would be advisable to
travel anywhere for Thanksgiving. We have been potentially advised against
it by the surgeon (it would be too hard on David to sit for a long time
just fresh from surgery), but we will see. Plus, with him being so
recently sick. . . . I just don't know. I know to a healthy child, once
they are over their sickness it is 'back to normal,' but that is just not
so with a child who has/had cancer. Like I have said many times, this is a
new normal that we are going to have to get used to! And some things just
seem to not make sense to us. But that is because we aren't used to this
life!! *sigh* As usual, we will just have to play it by ear!
Thank you for visiting and checking in on David and the Koury Klan. Thank
you for your love, prayers, and support. We really appreciate you. Have a
good night. God bless you. We love you.
Kristi and the Koury Klan
Cancer treatment can cause serious side effects that may last a lifetime.
Today was an ok day. David is feeling much better. He is hooked on Ginger
Ale! Crazy kid! That is his drink of choice now. That is just fine with
me. It keeps his tummy settled. He has eaten much better today. His tummy
is still sore; inside and outside. I know that will take time to heal.
Back in 2/08 when he had the endoscopy that discovered the ulcer they said
that the trauma to his stomach does take time to heal, especially with an
ulcer!! Poor kid. But it will be fine. He did eat better, and I am happy
with that. The one thing that I am having NO problem getting him to eat is
chip and dip! We have this great dip from a mail order place (called
Singing Pig Food Co.) that David loves. I make it with lowfat sour cream
and mayo. The flavor he likes is Cheddar & Chives. So if he will eat it, I
will gladly make it for him. I only have 2 more pkgs. of that flavor
left........so I hope he doesn't eat it too fast, ha-ha. I bought it quite
some time ago, and put it in the pantry and sorta forgot about it. I am
glad I remembered it so I could make it for him. At least I found
something he will eat! Thank you for your prayers; he is feeling better. I
am continuing to soak my house in Lysol, and I bought David a new
toothbrush! So hopefully I can keep him well.
Please pray for my daughter-in-love, Lucy. She is not feeling well. It
isn't what David had, she is having sinus problems. She seems to have a
lot of sinus issues~~not sure what that is about. Jeremy came over today,
Lucy stayed home. She didn't need to spread her germs or be at risk of
getting David's germs. I sent Jeremy home with a can of Lysol to spray all
over his house!! Thank you for praying for her.
I talked to David's school about the 504 plan. She was very helpful and
sent us some forms to fill out. I wrote her back and told her that David
is having issues with the time constraints. He has always been
homeschooled, but since the cancer diagnosis school is just done on his
own time. As you know, that means that sometimes he finishes school in
late July; but he still finishes. Then I gave her the addresses to David's
websites, and this is what she wrote back to me, "Kristi,
Thanks for sharing his websites with me. I was wondering if you have
thought about sharing them with his teachers, too.
It is an understatement to say that David and your family has been through
a lot over the past couple of years. I'd like to get the 504 plan in
place for him as soon as possible.
Heather" So now I am thinking about giving David's websites to his
teachers so they can put a face to his name, and understand why he needs
the 504. But I thought that was a sweet note from Heather. I am not asking
for 'special treatment' for David; but with all the surgeries, trips to
Oakland Children's Hospital, trips to San Francisco, trips to Renown, PT,
etc. he just needs more time to complete the work. He tries so hard, poor
guy. Thank you for your prayers about that.
David has an oncology appointment tomorrow. We will find out some
information about his blood work, hopefully. We want to see if we can
discontinue the Phosphorous. We will also see if it would be advisable to
travel anywhere for Thanksgiving. We have been potentially advised against
it by the surgeon (it would be too hard on David to sit for a long time
just fresh from surgery), but we will see. Plus, with him being so
recently sick. . . . I just don't know. I know to a healthy child, once
they are over their sickness it is 'back to normal,' but that is just not
so with a child who has/had cancer. Like I have said many times, this is a
new normal that we are going to have to get used to! And some things just
seem to not make sense to us. But that is because we aren't used to this
life!! *sigh* As usual, we will just have to play it by ear!
Thank you for visiting and checking in on David and the Koury Klan. Thank
you for your love, prayers, and support. We really appreciate you. Have a
good night. God bless you. We love you.
Kristi and the Koury Klan
Cancer treatment can cause serious side effects that may last a lifetime.
Saturday, November 14, 2009
Saturday, November 14, 2009
Good evening.
Sorry I haven't updated sooner. It has been pretty busy.
David is feeling better. I gave him ginger ale, saltines, and 7up
yesterday. I also gave him some chewable anti-nausea medicine~~~he
promptly threw that up! He just nibbled on the saltines (he HATES
saltines), and sipped the ginger ale and 7up. He kept it all down, yay! He
also kept his Prevacid down, yay! He said today he feels better, but his
stomach hurts. The muscles hurt from all the retching, and his tummy is
still sore a bit on the inside. I am sure the inside is pretty raw from
all the vomiting and the dry heaves he was having. But at least now he is
feeling better. I know it was just a stomach virus that had to run it's
course; and I am so thankful that it is gone!! Thank you so much for your
prayers. David actually said he was hungry at dinner time, and ate fairly
well! I am thinking the lack of appetite was partly due to the fact that
he was getting sick; we just didn't know it! All the suggestions I was
given (via guestbook, facebook, and email) were greatly appreciated; thank
you. David will not be going to church tomorrow; I really don't think it
is a good idea. He really isn't 100% yet, so he will stay home. Especially
because it is soooo cold (I am NOT complaining, mind you), and he has an
oncology appointment on Monday. Whew. So that is the haps.
Thank you so much for all the prayers for David. Now the prayers are that
nobody else gets sick! I sprayed my whole house with Lysol, so hopefully
that stupid bug is dead!! Thanks for checking in on David and the Koury
Klan. God bless you all. We love you.
Kristi and the Koury Klan
Treatments often involve lengthy hospital stays &/or outpatient treatments
which can extend over a period of months to multiple years. Children may
often need to be isolated from other people/activities (even certain
foods, at times) due to their heightened risk of infection. Families
experience multiple severe stressors from the financial, emotional,
physical, psychological, social & spiritual strains from it all. Parents
may lose or have to give up jobs; insurance issues may add to the stress;
siblings experience their own multitude of issues from it all.
Sorry I haven't updated sooner. It has been pretty busy.
David is feeling better. I gave him ginger ale, saltines, and 7up
yesterday. I also gave him some chewable anti-nausea medicine~~~he
promptly threw that up! He just nibbled on the saltines (he HATES
saltines), and sipped the ginger ale and 7up. He kept it all down, yay! He
also kept his Prevacid down, yay! He said today he feels better, but his
stomach hurts. The muscles hurt from all the retching, and his tummy is
still sore a bit on the inside. I am sure the inside is pretty raw from
all the vomiting and the dry heaves he was having. But at least now he is
feeling better. I know it was just a stomach virus that had to run it's
course; and I am so thankful that it is gone!! Thank you so much for your
prayers. David actually said he was hungry at dinner time, and ate fairly
well! I am thinking the lack of appetite was partly due to the fact that
he was getting sick; we just didn't know it! All the suggestions I was
given (via guestbook, facebook, and email) were greatly appreciated; thank
you. David will not be going to church tomorrow; I really don't think it
is a good idea. He really isn't 100% yet, so he will stay home. Especially
because it is soooo cold (I am NOT complaining, mind you), and he has an
oncology appointment on Monday. Whew. So that is the haps.
Thank you so much for all the prayers for David. Now the prayers are that
nobody else gets sick! I sprayed my whole house with Lysol, so hopefully
that stupid bug is dead!! Thanks for checking in on David and the Koury
Klan. God bless you all. We love you.
Kristi and the Koury Klan
Treatments often involve lengthy hospital stays &/or outpatient treatments
which can extend over a period of months to multiple years. Children may
often need to be isolated from other people/activities (even certain
foods, at times) due to their heightened risk of infection. Families
experience multiple severe stressors from the financial, emotional,
physical, psychological, social & spiritual strains from it all. Parents
may lose or have to give up jobs; insurance issues may add to the stress;
siblings experience their own multitude of issues from it all.
Friday, November 13, 2009
Friday, November 13, 2009
Quick urgent update.
David is not feeling well. He (we) were up all night with him vomiting. He
started around 1am, and continued all night. He couldn't get comfortable,
his stomach hurt so bad. We ended up spending the night in our recliners
downstairs. He, right now, is taking small sips of water and fighting to
keep it down. He did take his Prevacid, and so far so good about keeping
that down. We gave him Pepto Bismol~~he threw it up. We gave him Ginger
Brew~~he threw it up. Please pray that he feels better soon. Please pray
that this bug leaves his body ASAP! Thank you.
Kristi and the Koury Klan
David is not feeling well. He (we) were up all night with him vomiting. He
started around 1am, and continued all night. He couldn't get comfortable,
his stomach hurt so bad. We ended up spending the night in our recliners
downstairs. He, right now, is taking small sips of water and fighting to
keep it down. He did take his Prevacid, and so far so good about keeping
that down. We gave him Pepto Bismol~~he threw it up. We gave him Ginger
Brew~~he threw it up. Please pray that he feels better soon. Please pray
that this bug leaves his body ASAP! Thank you.
Kristi and the Koury Klan
Thursday, November 12, 2009
Thursday, November 12, 2009
Good evening.
Today has been a rather frustrating day. I slept horribly last night, and
have been awake since a little after 5am. Having my friend's son was fine.
I had to feed him breakfast, though. He said his mom didn't feed
him......maybe he was just still hungry. I took him to school, and then
came home and got David going. Then I had a dentist appointment to have my
teeth cleaned. Rachel had an appointment right after me, so I waited until
she got there so I could see her! Then I had to drive thru Jack in the Box
for David (more about that later). Then I got home and remembered I had an
errand to run. Then I got home and had to make dinner. I haven't done any
shopping, so I just threw some spaghetti and corn together. It just seems
like it was a busy day.
The frustrating part is~~~please pray for David and his eating. It is such
a challenge to get him to eat! He has absolutely NO desire to eat. I can't
seem to entice him with anything. He did want Jack in the Box tacos for
lunch. That is the only thing we like at JIB; we don't eat much fast food.
But he is at the point that whatever he wants, I will do my best to get
for him. Luckily the tacos are 2 for $1!! So his lunch (he wanted 4) cost
me $2.13. Then he doesn't even eat all of the tacos. The last time he
weighed himself at home he weighed (fully clothed) 125 pounds. That is
down several pounds!! I don't know what to do to stimulate his appetite.
Nothing sounds good to him (except JIB tacos today). He did eat ok of the
spaghetti and corn for dinner. He basically is just not back to himself
yet. He feels ok, just seems to be developing an aversion to food for some
reason. Please pray that we can get past this hurdle. I am going to make
him drink a milkshake tonight. He is 15; he should be eating me out of
house and home!!! Is this just another long-term side effect of cancer and
chemo? *sigh*
Thank you for your prayers, love, and support~~~please keep the prayers
coming. Thank you for checking in on David and the Koury Klan. I'm off to
make a milkshake (and I am going to sneak in some more calorie booster;
thanks Karen). Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Today has been a rather frustrating day. I slept horribly last night, and
have been awake since a little after 5am. Having my friend's son was fine.
I had to feed him breakfast, though. He said his mom didn't feed
him......maybe he was just still hungry. I took him to school, and then
came home and got David going. Then I had a dentist appointment to have my
teeth cleaned. Rachel had an appointment right after me, so I waited until
she got there so I could see her! Then I had to drive thru Jack in the Box
for David (more about that later). Then I got home and remembered I had an
errand to run. Then I got home and had to make dinner. I haven't done any
shopping, so I just threw some spaghetti and corn together. It just seems
like it was a busy day.
The frustrating part is~~~please pray for David and his eating. It is such
a challenge to get him to eat! He has absolutely NO desire to eat. I can't
seem to entice him with anything. He did want Jack in the Box tacos for
lunch. That is the only thing we like at JIB; we don't eat much fast food.
But he is at the point that whatever he wants, I will do my best to get
for him. Luckily the tacos are 2 for $1!! So his lunch (he wanted 4) cost
me $2.13. Then he doesn't even eat all of the tacos. The last time he
weighed himself at home he weighed (fully clothed) 125 pounds. That is
down several pounds!! I don't know what to do to stimulate his appetite.
Nothing sounds good to him (except JIB tacos today). He did eat ok of the
spaghetti and corn for dinner. He basically is just not back to himself
yet. He feels ok, just seems to be developing an aversion to food for some
reason. Please pray that we can get past this hurdle. I am going to make
him drink a milkshake tonight. He is 15; he should be eating me out of
house and home!!! Is this just another long-term side effect of cancer and
chemo? *sigh*
Thank you for your prayers, love, and support~~~please keep the prayers
coming. Thank you for checking in on David and the Koury Klan. I'm off to
make a milkshake (and I am going to sneak in some more calorie booster;
thanks Karen). Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Wednesday, November 11, 2009
Wednesday, November 11, 2009
Good evening.
First things first~~~Happy Veterans Day. Thank you to all our veterans and
their families. Thank you for your service to our country. That includes
Bryon, and my brother, Mike. Thank you!
It is so beautiful right now!! VERY windy, because a storm is blowing in!
Woo-Hoo!! It is supposed to snow sometime tonight and tomorrow. I am so
happy about that! It has been a beautiful day.
David is doing ok. The fever just keeps jumping around. Earlier it was
99.4. Then it goes down to 98.3. But I am not really worried about it too
much. I think part of it is the fact that he has an artificial part in his
leg. His body is adjusting to having that part there. But I would still
feel better if the fever would just go away and stay away!!! *sigh*
We had our support group meeting tonight. We missed you again, Roseanne.
We won't be having a meeting next month; there is a Christmas party in
place of the meeting. So that will be fun.
Well, it is late. I have to watch my friend's son tomorrow morning before
school. Then I will walk him to school. Then I have a dentist appointment
to get my teeth cleaned in the afternoon. It will be a busy day tomorrow.
I am tired, it has been a long day. Thank you for visiting and checking in
on David and the Koury Klan. Have a good evening, and a good day tomorrow.
God bless you all. We love you.
Kristi and the Koury Klan
Confucius said it best "The smallest gesture is better than the grandest
intention"
First things first~~~Happy Veterans Day. Thank you to all our veterans and
their families. Thank you for your service to our country. That includes
Bryon, and my brother, Mike. Thank you!
It is so beautiful right now!! VERY windy, because a storm is blowing in!
Woo-Hoo!! It is supposed to snow sometime tonight and tomorrow. I am so
happy about that! It has been a beautiful day.
David is doing ok. The fever just keeps jumping around. Earlier it was
99.4. Then it goes down to 98.3. But I am not really worried about it too
much. I think part of it is the fact that he has an artificial part in his
leg. His body is adjusting to having that part there. But I would still
feel better if the fever would just go away and stay away!!! *sigh*
We had our support group meeting tonight. We missed you again, Roseanne.
We won't be having a meeting next month; there is a Christmas party in
place of the meeting. So that will be fun.
Well, it is late. I have to watch my friend's son tomorrow morning before
school. Then I will walk him to school. Then I have a dentist appointment
to get my teeth cleaned in the afternoon. It will be a busy day tomorrow.
I am tired, it has been a long day. Thank you for visiting and checking in
on David and the Koury Klan. Have a good evening, and a good day tomorrow.
God bless you all. We love you.
Kristi and the Koury Klan
Confucius said it best "The smallest gesture is better than the grandest
intention"
Monday, November 9, 2009
Monday, November 9, 2009
Good evening.
Today was an ok day. David did school, and he had a couple Elluminate
sessions. He is so funny. He says he misses Geometry because he really
doesn't like Algebra II! He makes me laugh. But he needs to work harder at
getting caught up. I need to call the online school and tell them they
were supposed to set up a 504 for him, and I don't think they did. I don't
think they know what that is! He already started late (their fault), and
he has had days of surgeries, recovery, and just plain illness that has
kept him a little bit behind. Please pray that he will be able to get
caught up soon! The end of the semester will be here soon, and he needs to
be caught up. Well, as far as he needs to be once the 504 is set up.
Please pray that I will not have any trouble getting that for him. I know
the poor child is just overwhelmed with everything he has been going
through! *sigh*
His leg is almost 100% pain-free!! It is still the staples that are giving
him trouble. The biggest problem is his clothes keep getting caught on the
staples; then they pull! Poor kid. He is working on getting the leg
straight, again. He is still on the antibiotic, I hope to d/c that in a
day or so. Yesterday his fever went up a little bit; to 100.3. Not too
bad. Today it was around 99.2, so I am keeping him on the Bactrim for
another day or so. We will see how things go.
Thanks for checking in on David and the Koury Klan. Thank you for your
love, prayers, and support. Please keep the prayers coming. God bless you
all. We love you.
Kristi and the Koury Klan
Several childhood cancers continue to have a very poor prognosis,
including: brain stem tumors, metastatic sarcomas (that is what David
has), relapsed acute lymphoblastic leukemia, and relapsed non-Hodgkin's
lymphoma.
Today was an ok day. David did school, and he had a couple Elluminate
sessions. He is so funny. He says he misses Geometry because he really
doesn't like Algebra II! He makes me laugh. But he needs to work harder at
getting caught up. I need to call the online school and tell them they
were supposed to set up a 504 for him, and I don't think they did. I don't
think they know what that is! He already started late (their fault), and
he has had days of surgeries, recovery, and just plain illness that has
kept him a little bit behind. Please pray that he will be able to get
caught up soon! The end of the semester will be here soon, and he needs to
be caught up. Well, as far as he needs to be once the 504 is set up.
Please pray that I will not have any trouble getting that for him. I know
the poor child is just overwhelmed with everything he has been going
through! *sigh*
His leg is almost 100% pain-free!! It is still the staples that are giving
him trouble. The biggest problem is his clothes keep getting caught on the
staples; then they pull! Poor kid. He is working on getting the leg
straight, again. He is still on the antibiotic, I hope to d/c that in a
day or so. Yesterday his fever went up a little bit; to 100.3. Not too
bad. Today it was around 99.2, so I am keeping him on the Bactrim for
another day or so. We will see how things go.
Thanks for checking in on David and the Koury Klan. Thank you for your
love, prayers, and support. Please keep the prayers coming. God bless you
all. We love you.
Kristi and the Koury Klan
Several childhood cancers continue to have a very poor prognosis,
including: brain stem tumors, metastatic sarcomas (that is what David
has), relapsed acute lymphoblastic leukemia, and relapsed non-Hodgkin's
lymphoma.
Saturday, November 7, 2009
Saturday, November 7, 2009
Good evening.
We have had a busy couple of days. On Friday we went to the Physical
Therapy office to show off David's prosthesis. They couldn't believe how
heavy it was! They also told us that David can come in and 'work out'
because I know how to use everything; and they won't charge us. He can use
the bike, the elliptical, the shuttle, the leg press, things that he can
do by himself. So I am thinking about taking him in a couple times a week
so he can build up that leg again. His right calf has atrophied so bad it
isn't even funny! So, we will see.
We went to church tonight; it was very good. Today we went to Lowe's to
get some anti-freeze for the water lines in the trailer. We have to
winterize the trailer. We were really hoping to go camping again before
winter....didn't plan on David breaking his prosthesis! David got very
tired very quickly walking around Lowe's. Jennifer worked, so Rachel and I
wanted to look at all the Christmas stuff at Lowe's. But we had to cut it
short because David got too tired and worn out. Oh well. Poor kid.
His fever is pretty much gone! Yay! His knee is still very swollen. The
staples are bothering him, BIG TIME! I was advised to ask for dissolve-
able sutures; yeah, I forgot to ask for them! So David is suffering with
the staples. But he is a trooper. He just deals with it. They just pull
sometimes and they catch on his clothes. November 19th can't come fast
enough for him!!
Thank you for visiting and checking up on David and the Koury Klan. Thank
you for all your prayers. Thank you for being here for us. Have a good
evening. God bless you all. We love you.
Kristi and the Koury Klan
(Fight For Life
© Lorna Mahan)
"Fight For Life
Storms of life are strong enough
without cancer stepping in,
Came creeping through the back door
just counting on a win.
Engaging you in battle
we firmly stand our ground,
Armed with courage, faith and hope,
our child's life we surround..
This fight rages day and night
the will to survive is strong,
We will never surrender
In our lives you don't belong.
Prepare yourself to lose this time
our child's life you won't take,
This is a fight you will not win
Cancer, make no mistake!"
The above poem is my prayer. Please pray this with me! Thank you.
We have had a busy couple of days. On Friday we went to the Physical
Therapy office to show off David's prosthesis. They couldn't believe how
heavy it was! They also told us that David can come in and 'work out'
because I know how to use everything; and they won't charge us. He can use
the bike, the elliptical, the shuttle, the leg press, things that he can
do by himself. So I am thinking about taking him in a couple times a week
so he can build up that leg again. His right calf has atrophied so bad it
isn't even funny! So, we will see.
We went to church tonight; it was very good. Today we went to Lowe's to
get some anti-freeze for the water lines in the trailer. We have to
winterize the trailer. We were really hoping to go camping again before
winter....didn't plan on David breaking his prosthesis! David got very
tired very quickly walking around Lowe's. Jennifer worked, so Rachel and I
wanted to look at all the Christmas stuff at Lowe's. But we had to cut it
short because David got too tired and worn out. Oh well. Poor kid.
His fever is pretty much gone! Yay! His knee is still very swollen. The
staples are bothering him, BIG TIME! I was advised to ask for dissolve-
able sutures; yeah, I forgot to ask for them! So David is suffering with
the staples. But he is a trooper. He just deals with it. They just pull
sometimes and they catch on his clothes. November 19th can't come fast
enough for him!!
Thank you for visiting and checking up on David and the Koury Klan. Thank
you for all your prayers. Thank you for being here for us. Have a good
evening. God bless you all. We love you.
Kristi and the Koury Klan
(Fight For Life
© Lorna Mahan)
"Fight For Life
Storms of life are strong enough
without cancer stepping in,
Came creeping through the back door
just counting on a win.
Engaging you in battle
we firmly stand our ground,
Armed with courage, faith and hope,
our child's life we surround..
This fight rages day and night
the will to survive is strong,
We will never surrender
In our lives you don't belong.
Prepare yourself to lose this time
our child's life you won't take,
This is a fight you will not win
Cancer, make no mistake!"
The above poem is my prayer. Please pray this with me! Thank you.
Thursday, November 5, 2009
Thursday, November 5, 2009
Good evening.
David is feeling better every day, just like we told him he would. He is
still battling that fever, tho. Today it was between 99.7 and 100.4. We
wish he could just kick that fever to the curb; just like he did the
pain!!
He had a great time at Bible Study last night. And tonight he is not
walking with the crutches anymore!! He is using his cane (walking stick)
to get around. He won't use the walker, but as long as the cane works,
then I am fine with it. His ankle is causing him pain, though. His right
leg has not been used in two months, so the ankle gets tired quickly. But
otherwise his leg is doing great!!
I talked to Nita tonight. Thank you for your prayers for Chris (David's
Osteo friend). The doctor said that the problems he is having is arthritis
in his knee. They were in Colorado for a week and Dr. O said that the cold
caused it to 'flare up.' He said that it is common, and in about 10 years
they will need to do surgery on his knee and remove his kneecap and
replace it with an artificial one. Dr. O told us that when he goes in and
replaces David's expandable rod with a non-expandable (fixed) implant they
will be replacing David's kneecap then. That will save David a surgery
later on. One less surgery~~~~sounds good to me!!! Nita and I were
laughing because when Carol found out that Chris was having trouble with
his knee she instantly put him on crutches. Dr. O was surprised to see
Chris on the crutches; but then said to Nita, "Carol probably panicked
because we just had to replace the prosthesis in another boy." Nita said,
"David." and Dr. O said, "Oh, yeah. I forgot you know them!" It was pretty
funny! So, thank you for your prayers for Chris. It is sad that a 17-
year-old child has arthritis.......*sigh*
Tomorrow we are going to go to David's Physical Therapy office to show
them his prosthesis. I am curious to see their reaction.
Thank you for all your prayers, love, and support. Thank you, again, for
whoever you are that has deposited money into David's account. I ask God
to continue to bless you for your generosity; you have no idea how much it
helps us! Like I said before, just because David is 'out of treatment'
doesn't mean that the medical expenses stop! They just continue!!! Thank
you. Thank you for being here for us, all of you. Have a good night. God
bless you all. We love you.
Kristi and the Koury Klan
Even with insurance coverage, a family will have out-of pocket expenses of
about $40,000 per year, not including travel.
David is feeling better every day, just like we told him he would. He is
still battling that fever, tho. Today it was between 99.7 and 100.4. We
wish he could just kick that fever to the curb; just like he did the
pain!!
He had a great time at Bible Study last night. And tonight he is not
walking with the crutches anymore!! He is using his cane (walking stick)
to get around. He won't use the walker, but as long as the cane works,
then I am fine with it. His ankle is causing him pain, though. His right
leg has not been used in two months, so the ankle gets tired quickly. But
otherwise his leg is doing great!!
I talked to Nita tonight. Thank you for your prayers for Chris (David's
Osteo friend). The doctor said that the problems he is having is arthritis
in his knee. They were in Colorado for a week and Dr. O said that the cold
caused it to 'flare up.' He said that it is common, and in about 10 years
they will need to do surgery on his knee and remove his kneecap and
replace it with an artificial one. Dr. O told us that when he goes in and
replaces David's expandable rod with a non-expandable (fixed) implant they
will be replacing David's kneecap then. That will save David a surgery
later on. One less surgery~~~~sounds good to me!!! Nita and I were
laughing because when Carol found out that Chris was having trouble with
his knee she instantly put him on crutches. Dr. O was surprised to see
Chris on the crutches; but then said to Nita, "Carol probably panicked
because we just had to replace the prosthesis in another boy." Nita said,
"David." and Dr. O said, "Oh, yeah. I forgot you know them!" It was pretty
funny! So, thank you for your prayers for Chris. It is sad that a 17-
year-old child has arthritis.......*sigh*
Tomorrow we are going to go to David's Physical Therapy office to show
them his prosthesis. I am curious to see their reaction.
Thank you for all your prayers, love, and support. Thank you, again, for
whoever you are that has deposited money into David's account. I ask God
to continue to bless you for your generosity; you have no idea how much it
helps us! Like I said before, just because David is 'out of treatment'
doesn't mean that the medical expenses stop! They just continue!!! Thank
you. Thank you for being here for us, all of you. Have a good night. God
bless you all. We love you.
Kristi and the Koury Klan
Even with insurance coverage, a family will have out-of pocket expenses of
about $40,000 per year, not including travel.
Wednesday, November 4, 2009
Wednesday, November 4, 2009
Good evening.
David is doing better. He went to Bible Study tonight. He is still running
a low-grade fever; 99.4; but that is much better than the 102.8 that it
was!!! I am happier. I am still giving him the Bactrim (thanks, Karen), so
we will make sure nothing takes hold of him!! I am sure the fever will be
gone in a day or so. Please pray that it is. Thanks.
David took his prosthesis to Bible Study tonight for 'show and tell.' He
likes freaking people out with it. Well, some people are freaked out by it
(because it was in his leg), and others think it is really cool. So he had
fun showing it off; goofy kid!!
David is doing really well in school. He is getting caught up, slowly but
surely. Two of his classes are taking the whole week of Thanksgiving off,
so he will be able to get totally caught up in those classes that week. He
has to get caught up before the semester ends, of course. But I am sure he
will be able to do it. Please continue to pray for him. Thank you.
That is about it for tonight. Thank you so much for your prayers, love,
and support. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
David is doing better. He went to Bible Study tonight. He is still running
a low-grade fever; 99.4; but that is much better than the 102.8 that it
was!!! I am happier. I am still giving him the Bactrim (thanks, Karen), so
we will make sure nothing takes hold of him!! I am sure the fever will be
gone in a day or so. Please pray that it is. Thanks.
David took his prosthesis to Bible Study tonight for 'show and tell.' He
likes freaking people out with it. Well, some people are freaked out by it
(because it was in his leg), and others think it is really cool. So he had
fun showing it off; goofy kid!!
David is doing really well in school. He is getting caught up, slowly but
surely. Two of his classes are taking the whole week of Thanksgiving off,
so he will be able to get totally caught up in those classes that week. He
has to get caught up before the semester ends, of course. But I am sure he
will be able to do it. Please continue to pray for him. Thank you.
That is about it for tonight. Thank you so much for your prayers, love,
and support. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Tuesday, November 3, 2009
Tuesday, November 3, 2009
Good morning.
Praise God, David's pain is down to a 1-2!! Yay! His fever is still
hovering around 100, but he is feeling better. He is not suffering from
chills, aches, or anything like that anymore. Thank you for your prayers.
And the Prevacid is working much better than the Prilosec did! He is not
nauseous with the Prevacid. I am so happy about that! It is so hard to see
him nauseous all the time~~~that affects how he eats! He ate ok yesterday.
For lunch he had a grilled cheese sandwich and a very small bowl of tomato
soup. For dinner he ate all of his hamburger! He is doing better in the
eating category. Not as good as we want him to do; not as good as he was;
but still better. Thank you soooo much for your prayers.
Please pray for David's friend, Chris. He is having some problems with his
knee. Chris is David's Osteo friend he met in the hospital. His titanium
knee is giving his some trouble. He is going for an x-ray today and
meeting with the surgeon (same one as David's) on Thursday. Please pray
that there is nothing wrong with his implant! Thanks.
Well, David is finally getting ready for breakfast. He sleeps in, and gets
ready about this time. Have a great day. Thank you for checking in on
David. Thank you for all your prayers. God bless you and your day. We love
you.
Kristi and the Koury Klan
Hope is ours for the taking every single minute. It's the assurance that
things will make sense when there's no sense to make of things.
~Luci Swindoll
Praise God, David's pain is down to a 1-2!! Yay! His fever is still
hovering around 100, but he is feeling better. He is not suffering from
chills, aches, or anything like that anymore. Thank you for your prayers.
And the Prevacid is working much better than the Prilosec did! He is not
nauseous with the Prevacid. I am so happy about that! It is so hard to see
him nauseous all the time~~~that affects how he eats! He ate ok yesterday.
For lunch he had a grilled cheese sandwich and a very small bowl of tomato
soup. For dinner he ate all of his hamburger! He is doing better in the
eating category. Not as good as we want him to do; not as good as he was;
but still better. Thank you soooo much for your prayers.
Please pray for David's friend, Chris. He is having some problems with his
knee. Chris is David's Osteo friend he met in the hospital. His titanium
knee is giving his some trouble. He is going for an x-ray today and
meeting with the surgeon (same one as David's) on Thursday. Please pray
that there is nothing wrong with his implant! Thanks.
Well, David is finally getting ready for breakfast. He sleeps in, and gets
ready about this time. Have a great day. Thank you for checking in on
David. Thank you for all your prayers. God bless you and your day. We love
you.
Kristi and the Koury Klan
Hope is ours for the taking every single minute. It's the assurance that
things will make sense when there's no sense to make of things.
~Luci Swindoll
Sunday, November 1, 2009
Sunday, November 1, 2009
Good evening.
I just took David's temperature and it is 100.7!! I wish his fever would
just break and go away, forever! We did not go to church today; well,
Bryon did. David was playing Monopoly with Rachel, so he is feeling
better. I just wish the fever would go away. His pain is stable at a 2-3,
so he won't take pain meds when his pain is manageable. He is so silly. He
doesn't want to get his pain to a 0; not enough to take the Percoset,
anyway. I don't blame him. We raised our children to not run to drugs with
every little pain and/or ache. We have a pretty healthy family (minus the
cancer, of course, lol), and that could be part of it. But I still wish
David's fever would just go away. I don't know what is causing it. *sigh*
I will just continue to give him the Bactrim.
Thank you to you who have offered meds to me. I really appreciate it.
Tomorrow David will go back to school. He has had a week off. He likes
most of his classes, so he is ok with going back. He really wants to be
better by Wednesday so he can go to Bible Study. Please pray that he is
better by then. Thanks.
He is working on getting his leg straight. Dr. O lengthened the rod when
he installed it in David's leg, so the muscles are tight again. So he is
trying to get it straight. He is also bending it some, but the staples
pull and it hurts. Please pray that he feels better soon, and his leg pain
goes away. Thank you so much.
Thank you for checking in on David and the Koury Klan. Thank you for your
love, prayers and support. Have a good night. God bless you all. We love
you.
Kristi and the Koury Klan
I just took David's temperature and it is 100.7!! I wish his fever would
just break and go away, forever! We did not go to church today; well,
Bryon did. David was playing Monopoly with Rachel, so he is feeling
better. I just wish the fever would go away. His pain is stable at a 2-3,
so he won't take pain meds when his pain is manageable. He is so silly. He
doesn't want to get his pain to a 0; not enough to take the Percoset,
anyway. I don't blame him. We raised our children to not run to drugs with
every little pain and/or ache. We have a pretty healthy family (minus the
cancer, of course, lol), and that could be part of it. But I still wish
David's fever would just go away. I don't know what is causing it. *sigh*
I will just continue to give him the Bactrim.
Thank you to you who have offered meds to me. I really appreciate it.
Tomorrow David will go back to school. He has had a week off. He likes
most of his classes, so he is ok with going back. He really wants to be
better by Wednesday so he can go to Bible Study. Please pray that he is
better by then. Thanks.
He is working on getting his leg straight. Dr. O lengthened the rod when
he installed it in David's leg, so the muscles are tight again. So he is
trying to get it straight. He is also bending it some, but the staples
pull and it hurts. Please pray that he feels better soon, and his leg pain
goes away. Thank you so much.
Thank you for checking in on David and the Koury Klan. Thank you for your
love, prayers and support. Have a good night. God bless you all. We love
you.
Kristi and the Koury Klan
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