Wednesday, January 6, 2010

Good evening.

We made it home~~~earlier than expected! We think with 13% unemployment in California, there are just fewer cars on the road. We were glad to make it home sooner than we were expecting to.

Ok, here was our day. We left the house sometime between 6 and 6:30am. We did make one potty stop, and we got to Children's around 10. Yup, we made pretty good time. We got a handicapped parking place in the front of the hospital; so we didn't have to pay for parking~praise God!! We checked into radiology about 10:15ish. Then Bryant was able to give David the injection for the bone scan around 10:30. Then we got into the CT almost right away; and the CT was done by 10:45ish. And it was NOT with contrast! David was happy about that! He said the contrast makes him feel really hot inside. Oh, just before the CT the nurse drew David's labs, and then took out the IV. Then we went to the cafeteria. We had a great surprise~~~we got to see Teagan!! We haven't seen her for quite some time, and it was fantastic to see her. She looks great! Then Teagan went to have her CT and bone scan, and we had lunch! And we got to see a bunch of doctors that we have missed! Like Dr. Hoppe, Dr. Styles, and Dr. Singer. We didn't make it upstairs because David couldn't go upstairs~~~swine flu and all. Anyway, David's bone scan was at 1pm. Then we went across the street to the clinic to see Connie. Ok, the results of the scans are~~~~~are you ready? Are you sitting down? Drum roll please.......NO NEWS!! Connie didn't have the report yet! So I have to call her tomorrow. Rather frustrating. So, scanxiety is still reining at our house! Please continue to pray!!

David's weight is great! Connie said that David is exactly on target for height and weight! She said his height was always steady in the 52%; but his weight was around 30%! So now his height and weight are exactly the same, and she is thrilled! She told David she is really proud of him. So we are going to wean him off the Megace. We will be doing a 1/2 dose for a week, then stop it. If he continues to eat he can stay off it. If he loses his appetite, then he is back on it. Also, she is going to be sending me the 504 documentation for his school. And his phosphorus levels are perfect! So he doesn't have to go back on the supplements! YAY! So, other than not knowing what the results of the scans are, it was a pretty good day. Bryon would have rather spent his birthday not going to Oakland, but it is what it is! We will 'celebrate' his birthday on Sunday with all 5 kids. He can't decide if he wants me to make enchiladas or beef stroganoff. Fickle man, lol! (smile)

So that was our day. I hope to be able to post tomorrow what the results of the scans are. We were really hoping to know the results today; but it wasn't to be. That is the story of our life! So we would continue to covet your prayers as we await the results. Thanks.

Thank you for visiting and checking in on David and the Koury Klan. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan

'Hope sees the invisible, feels the intangible, and achieves the impossible.'~~Helen Keller