Good evening.
One year ago today David had his revision surgery. One year and two days ago David graduated from High School. Where did that year go?
I got a call from Connie today. Very interesting phone call. She said she did some research for us on where David stands; as far as his cancer goes. She said she doesn't really know what to tell us. She said David has outlived his prognosis. She said, "David is one-of-a-kind. He is very unique. He had a big tumor with poor necrosis; that's bad. He had lung mets that didn't respond to treatment and grew and multiplied; that's bad. Basically, he shouldn't be alive right now. In October he will be four years out of treatment, and there is no protocol for him." See, they told us he wouldn't be alive right now, and she just reinforced that point today. Maybe he will make the medical books! She has no explanation as to why he is alive, she is very surprised! She said she can't really give us any definitive new prognosis, but said they are going to keep a close eye on his lungs. She said that is what 'concerns' her the most. It was a really strange phone call. She almost acted like she didn't know what to say, because David has them surprised. We always did call him our curve ball thrower; this time he threw the curve ball in a positive way!! We definitely have had to learn to 'expect the unexpected' with David. Praise God!!
I called Dr. O and David's next appointment is October 23rd. Now I have to email Connie and ask to have scans done on October 22nd, so we only have to make one trip to the Bay Area. Please pray that we can orchestrate everything to work out. With the price of gas, we can't afford two trips to the Bay Area! Thanks!
Our weather is very interesting! All my Carson City readers will agree with me on that! Two weeks ago it was cold, and snowy! Yup, snowy! Then a week later it was high 80's. We have been in the pool a few times. It is just funny, we go in the pool for a few days, and then it gets cold. But we will be having 80's now for the next week or so, so we will be going back in the pool again! David just said tonight that he can't wait until we can go in again. He really loves being in the pool. The water gets nice and warm, when we leave the cover on between uses, but it is always windy here so sometimes it is hard to get out of the pool! When that wind hits you, yowsa! We have taken Elena in a few times, and she loves it!! We are thankful that we have a pool.
Please continue to pray for our Osteo family member, Rachel. She has her not so bad days, and her bad days. Please pray for her and her family. Thanks.
Please continue to pray for David as he awaits his hydrogen breath test. He is having daily problems with his ulcer, and he can't take the prevacid. I am tired of seeing him in pain. Please pray that there will be a cancellation next week so he can get the test sooner. Thanks.
That is about all that is happening around here. David and I are just counting the days until we go camping! We can't wait. Please continue to keep David in your prayers. He has already beaten the odds, please pray that he will continue to do so. Thank you so much for your prayers. God bless you all. We love you.
Kristi and the Koury Klan
"Family isn't always blood. It's the people in your life who want you in theirs; the ones who accept you for who you are. The ones who would do anything to see you smile & who love you no matter what."
One year ago today David had his revision surgery. One year and two days ago David graduated from High School. Where did that year go?
I got a call from Connie today. Very interesting phone call. She said she did some research for us on where David stands; as far as his cancer goes. She said she doesn't really know what to tell us. She said David has outlived his prognosis. She said, "David is one-of-a-kind. He is very unique. He had a big tumor with poor necrosis; that's bad. He had lung mets that didn't respond to treatment and grew and multiplied; that's bad. Basically, he shouldn't be alive right now. In October he will be four years out of treatment, and there is no protocol for him." See, they told us he wouldn't be alive right now, and she just reinforced that point today. Maybe he will make the medical books! She has no explanation as to why he is alive, she is very surprised! She said she can't really give us any definitive new prognosis, but said they are going to keep a close eye on his lungs. She said that is what 'concerns' her the most. It was a really strange phone call. She almost acted like she didn't know what to say, because David has them surprised. We always did call him our curve ball thrower; this time he threw the curve ball in a positive way!! We definitely have had to learn to 'expect the unexpected' with David. Praise God!!
I called Dr. O and David's next appointment is October 23rd. Now I have to email Connie and ask to have scans done on October 22nd, so we only have to make one trip to the Bay Area. Please pray that we can orchestrate everything to work out. With the price of gas, we can't afford two trips to the Bay Area! Thanks!
Our weather is very interesting! All my Carson City readers will agree with me on that! Two weeks ago it was cold, and snowy! Yup, snowy! Then a week later it was high 80's. We have been in the pool a few times. It is just funny, we go in the pool for a few days, and then it gets cold. But we will be having 80's now for the next week or so, so we will be going back in the pool again! David just said tonight that he can't wait until we can go in again. He really loves being in the pool. The water gets nice and warm, when we leave the cover on between uses, but it is always windy here so sometimes it is hard to get out of the pool! When that wind hits you, yowsa! We have taken Elena in a few times, and she loves it!! We are thankful that we have a pool.
Please continue to pray for our Osteo family member, Rachel. She has her not so bad days, and her bad days. Please pray for her and her family. Thanks.
Please continue to pray for David as he awaits his hydrogen breath test. He is having daily problems with his ulcer, and he can't take the prevacid. I am tired of seeing him in pain. Please pray that there will be a cancellation next week so he can get the test sooner. Thanks.
That is about all that is happening around here. David and I are just counting the days until we go camping! We can't wait. Please continue to keep David in your prayers. He has already beaten the odds, please pray that he will continue to do so. Thank you so much for your prayers. God bless you all. We love you.
Kristi and the Koury Klan
"Family isn't always blood. It's the people in your life who want you in theirs; the ones who accept you for who you are. The ones who would do anything to see you smile & who love you no matter what."
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