**A Paypal account has been set up to help pay for ongoing travel and medical expenses for David. Just click on the button below

Saturday, February 27, 2010

Saturday, February 27, 2010

Good evening.

Sor​ry I haven't updated sooner. The trip to San Francisco went well. My best friend came with us. She just needed to get away for a day, and see some new sights, so we took her with us. She got to see first hand how exhausting these trips are. People who don't do it have really NO idea how tough these trips are. And these are the easy ones! Not near as rough as the chemo trips! Anyway, we left around 7:45am and got to S.F. around 11:45 or so. We had lunch across the street from the UCSF at this yummy deli. Then we went across the street to get David's leg xrayed. Then we had David's appointment. Dr. O'Donnell watched David walk and checked out the xrays. He said his 'bad' leg is still a bit shorter, so we are to come back in 3 months and check again. If need be, we will schedule the surgery for June. He said when we come back in May they will xray David's left knee to see if it is done growing. If it is done growing, we will discuss the surgery to replace the expandable implant with a non-expanda​ble one. Dr. O says probably when David is around 17 or 18; depending. So, we will see how things go. But that was a good appointment.​

After San Francisco we went to Oakland Children's Hospital. We had to give something to Christine in Nuclear Medicine. She was so excited with what we brought her. Then we knew of another boy with Osteo (from our support group website) named Alex, so we went up and saw him. We spent some time with his mom. His sister is the one who spends the most time with him so we were hoping to meet her; but it was good to meet and spend time with his mom. Then we left Oakland and came home. We got home a little after 10pm. It was a good day, just exhausting, as usual.

The weather has been great here. We have had snow, rain, hail, and wind. It has been nice.

Please pray for David as he is studying to take the Nevada Proficiency test in a couple of weeks. I have to take him to Reno for the test. His test dates are March 11 and 12. Please pray he passes them, he can't get a diploma without passing the tests. Thanks.

Plea​se continue to pray about our house situation. Bryon had contacted Dean Heller's (our NV congressman​) office; and Harry Reid's office. Well, we got NOWHERE with Harry Reid (big surprise); but Dean Heller's office is being very proactive in helping us. So, things are moving. We still don't know exactly what is going to happen, so we are still praying we can keep our house. Thank you for your prayers.

Tha​nk you for visiting and checking up on David and the Koury Klan. Thank you for your prayers. Please continue to uplift us in your prayers. God bless you all. We love you.

Kristi and the Koury Klan


Pediatr​ic cancer is a punishing disease for children and their families. And the often harsh treatments for cancer can impede youngsters' development at a crucial time.

Wednesday, February 24, 2010

Wednesday, February 24, 2010

Good evening.

Wel​l, today was a VERY interesting day. I have told you all how much stress I am under. Well, I found out, the hard way, about a mistake I made. When we ran out of checks in the checkbook, I grabbed another book of checks from the box. No big deal, right? Well, normally that would be true. Well, unbeknown to me, somehow a book from an account that was closed almost 3 years ago was in the box. And did I grab that book? Of course I did. So, after I got a notice that a check I had written had been returned, I promptly went to the bank to try to straighten it out. They informed me that I had written the check on the closed account. So I spent the better part of the afternoon calling all the companies I had written a check to; then I promptly burned the remaining checks from that book. We have NO idea how that rogue book of checks found it's way into the box of 'good' checks! We didn't know we still had checks from that closed account. *sigh* It is a more convoluted story that I posted, I gave you the Reader's Digest condensed version! Stress is high in my life, can you tell? I am so glad today is over! But at least I was able to get everything straightene​d out, for the most part. So it is all good.

Tomorr​ow we go to San Francisco. It will be a long day, as it always is when we go to S.F. We are meeting with the surgeon. He will be taking a look at David's leg to see if we need to schedule another surgery this summer. If so, it will probably be in June. Please pray for our safety as we drive to San Francisco. Thank you.

I was talking to the Physical Therapy office today, they are really missing David. I haven't taken him lately because he has been feeling a bit 'under the weather' and we needed to make sure he is healthy for tomorrow. So I told them we will be there next week. So, Toby, you will see him in the pool on Thursday! We love them, and we know they love David. It will be good to get him back working out regularly again.

David had fun in Bible Study tonight. He was glad he got to go. So he had a good night.

Thank you for checking in on David and the Koury Klan. Please keep our house situation in your prayers. Thank you for all your prayers. Have a good day tomorrow. If we get home early enough tomorrow I will post how the appointment went. God bless you all. We love you.

Kristi and the Koury Klan


Nationa​lly, childhood cancer is 20x more prevalent than pediatric AIDS.
Pediatric AIDS receives 4x the funding that childhood cancer receives.
In one month there are 2x as many deaths from childhood cancer as pediatric AIDS for the entire year.

Monday, February 22, 2010

Monday, February 22, 2010

Tomorrow is Free Pancake Night at IHOP; so if you have an IHOP near you, go have some pancakes. They do this for Children's Miracle Network. We went last year, and David met Miss Nevada. Please go and support Children's Miracle Network. Thanks.

Thin​gs are very interesting around here~~~I will post as thing transpire. Please keep praying for my family. Thank you.

Thank you for visiting, and for all your notes of encourageme​nt to me. I appreciate it more than you know. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan


'There is no tragedy in life like the death of a child.Thing​s never get back to the way they were.'~~~ President Dwight Eisenhower

Saturday, February 20, 2010

Saturday, February 20, 2010

Good evening.

I forgot to tell you a couple of things. #1~~~Joey's scans came back clear!! Thank you God! Thank you for your prayers. #2~~~Amber came through her surgery fine. Please continue to pray for her pain and her healing. Thank you. Sorry I forgot to tell you this yesterday.

T​oday was a busy (as usual) day. Bryon and I did the grocery shopping. I got everything on my list, yay! Had to go to 4 different stores.......​oh well. I am glad it is just done. Now I have to put it all away. Then we went to church tonight. It was really good.

Please continue to pray about our house. We have a couple of leads, and things are very interesting around here. But I know that God is good at swooping in at the last second and working things out. So we will see. Clearly, my first choice is to keep my house. But if we lose it, we lose it. God has been speaking to me and reminding me that this is just my temporary home anyway. My mansion is in Heaven with Him, so it truly doesn't matter where I live while I am on this earth. He will always be there with, and for, me. He is the only One who will never leave me or forsake me. He is the only One who will NEVER let me down, betray me, or walk away when things are tough. He accepts me NO MATTER WHAT!! So I know I can trust Him to take care of us. This life is not about me, it is about HIM. It is about giving God the glory. Does that mean everything will go my way? Of course not! My child has cancer! It just means that He loves us, and we live in a sinful world where bad things happen. But He is there, always. And He will get the glory no matter what happens to David. As I said many months ago; if David lives, he wins; he is still alive. If David dies, he wins; he goes to Heaven to wait for us. We have the hope of seeing him again. I can't imagine not having that hope. Of course we pray that David survives this cancer; but there are so many children who have died just in the time since David was diagnosed. And there are some children right now who are out of options. That is why I am realizing that a house is just boards and paint and glass. We are a family, and we can make a home wherever we live. This is 'easy' for me to say, but still hard to accept sometimes. I still don't want to lose my house. Please pray that I/we will be able to accept whatever happens. Thanks.

Plea​se continue to keep our osteo family members in your prayers: Rachel, Nick, Todd, Lindsey, Nikki, Sara S, Sara R, Kennedy, Chris, Teagan, Meghan, Ben B, Zoe, Ty, Nicki, Madison, Frankie, Keaton, Amber, Jenna, Case, Sam, Conner, Garrett, Andreas, Natalie, Sonya, Brendan, Jonah, Justin, Amanda, Marianne, to name a few. I know I have forgotten some, please forgive me. Please pray that the tumors in David's lungs stay just the way they are and do NOT grow. Or better yet, pray they just flat out go away!! Thank you for your continued prayers.

Tha​nk you for visiting and checking in on David and the Koury Klan. Have a good night, and a blessed day tomorrow. God bless you all. We love you.

Kristi and the Koury Klan


The only thing worse than being diagnosed with cancer is watching your child go through it.

Saturday, February 20, 2010

P.S.~~~~God only promised to supply all our NEEDS, He never promised to give us all our WANTS!! As selfish humans, we want all the 'wants,' too. We need to be satisfied with just the 'needs' and be content if He doesn't give us everything we want. And right now I have God, my husband, and the 5 kids.......​life is good. Thanks for your prayers.

Kri​sti

Friday, February 19, 2010

Friday, February 19, 2010

Good evening.

Today was a busy day. We had to go to Reno this morning to get a certified copy of Bryon's name change. When he was 16 his last name was changed from 'Peters' to 'Koury.' He did not have a certified copy of the paper, and he needs it for many reasons. #1~~in order to get a new driver's license (the Real ID act) you have to have a lot of identification. Well, his birth certificate doesn't match his driver's license or his social security card name. So we had to get a copy of the name change so he can get a copy of his birth certificate. It is kind of a long story. #2~~he also needs all this info to get a passport. A few years ago we were going to go to Canada, but Bryon didn't have a birth certificate to get a passport. Plus, for years we have been talking about going on an Alaskan cruise, and, again. he needs a passport. It is kind of a mess........I have our marriage certificate with my 'name change' on it, so I'm all good :) I don't see us taking that cruise any time real soon, but one never knows! If things work out with the house, we will be able to save money to do things that we want to do! We are still in major prayer about the house. Please continue to pray about us keeping our house. Thank you.

When we went to the court house they had to 'wand' David. Yep, he set off the metal detectors!! I told them that I have the documentation about the prosthesis, but they said it was ok, they would just wand him and it would all be good. I totally forgot about the metal detectors! He thought it was kinda fun; crazy kid!!! If he goes through metal detectors in the summer (and he is wearing shorts) they will see the big 'ol scar! So that made David's morning interesting!

Then we came home and I got to get my nails done (thank you, Jennifer and Rachel). I am so thankful to my daughters for giving me the wonderful gift of my nails. It was nice to be 'pampered' for that hour.

Then it was dinner, put food away, dishes, etc. And now we are just relaxing in front of the fire. Actually, I need to finish making my shopping list. I made my 'menu' list (what we will be eating for the next 2 weeks), now I need to make the list of the ingredients to buy to make those meals. It is so much cheaper for me to do it that way. Plus, I don't have the "what should I make for dinner tonight" problem. I have a list, and I just pick from the list. It takes a bit of stress off of me! And that is a good thing!!

I want to say a big THANK YOU to whomever deposited money into David's account. We have to make a trip to San Francisco on Thursday, so the money will come in handy. Thank you so very much!

Thank you for visiting and checking in on David and the Koury Klan. Have a great night. God bless you. {{hugs}}

Kristi and the Koury Klan

"You gain strength, courage, and confidence by every experience by which you really stop to look fear in the face. You are able to say to yourself, 'I live through this horror. I can take the next thing that comes along.'"~~~Eleanor Roosevelt

Wednesday, February 17, 2010

Wednesday, February 17, 2010

Good evening.

Things are interesting around here, to say the least! Please keep praying about our house. I will leave it at that, for now.

Please pray that my stress level can be reduced. On the outside, people think I am fine. Well, remember I said that my eyelashes are falling out because of stress? Well, there is more evidence of my body reacting to the stress. I had my teeth cleaned today. Normally my teeth are fine, and very little bleeding with the cleaning. Well, the hygienist said that though my teeth are good; very little tartar, very little plaque; but my gums tell the truth! She said I am doing everything right, taking good care of my teeth, but my gums are not so good. So she put me on a low dose antibiotic, and has me using a special rinse twice a day for 2 weeks. Please pray for my stress level. But I guess with the house situation and David..........*sigh*

David didn't go to Bible Study tonight. Actually, it was 'fun night' and they were going to play lazer tag. He didn't go for two reasons: #1, he would be too easy of a target~~~he can't run! He wouldn't have that much fun when he can't really play. #2, we really couldn't afford it anyway. I feel bad about that, but it is what it is. So he just stayed home tonight. He loves going, and he will go next week.

Please pray for a boy named Joey. He has scans tomorrow. He is a lymphoma survivor. Please pray that his scans come back clear. Thanks!

Also, please pray for another woman named Amber. She is having a thoracotomy tomorrow. Please pray for minimal pain, and rapid healing. Thanks!

Please remember all our Osteo family members in your prayers. Some are struggling BIG time; Keaton, Lindsey, Rachel, Nick, Todd, to name just a few. Thank you for praying for these children.

Thank you for visiting and checking in on David and the Koury Klan. Please continue to pray about our house. God is still in the miracle business, and one never knows!! Thank you so much. God bless you all. We love you.

Kristi and the Koury Klan

'When you get to the end of your rope; tie a knot and hang on.'~~~Winston Churchill

Monday, February 15, 2010

Monday, February 15, 2010

Good evening.

Please continue to pray about our housing situation. A very specific request is that when we do apply to rent a house, that our credit will not hurt us too bad. Clearly our credit is in the toilet, and I don't want it to hinder us from being able to get a house to rent. We have to move, and I don't want to be homeless!! Please pray that the landlords we apply to will be understanding of our situation and realize that we WILL pay rent, we have to have a roof over our heads!! Without a $3000+ mortgage, we can afford the rent on a house!! Please pray. Thank you.

I will update again soon. Have a good night. Thank you for visiting and checking in on David and the Koury Klan. God bless you. We love you.

Kristi and the Koury Klan

'I am beginning to learn that it is the sweet, simple things of life which are the real ones after all.'~~~Laura Ingalls Wilder

Saturday, February 13, 2010

Saturday, February 13, 2010

Click on this link.
http://www.thinkbigworksmall.com/mypage/player/tbws/23088/1072689
It takes a few seconds to load, just be patient. Anyway, it wil explain why banks (ours) are not interested in modifying loans. Please keep praying. Thank you.

Kristi and the Koury Klan


Stephen Sallan, chief of staff at Dana-Farber Cancer Institute in Boston, says, 'Adults attract more cancer research than children because they are a far larger and more lucrative market. Patients younger than 20 make up 12,400 of the nearly 1.4 million Americans stricken with cancer each year. Drug companies are generally unwilling to invest hundreds of millions of dollars into such a small market,' he says.

Friday, February 12, 2010

Friday, February 12, 2010

Good evening.

Well, we looked at a house today. It is another beautiful house, and closer to Carson City (the other house we looked at the other day was out in Fish Springs~~~45 minutes from Carson). This house is only about 10 minutes away from our present house. Anyway, the only 'deal killer' for us would be if they don't allow dogs. We have Bryon's German Shepherd and David's Chihuahua. We would really like to get that house; please pray that if it God's will that we get it they will accept dogs. Thanks.

Because I have been asked many times, I am going to address this here instead of in individual emails. We tried for a modification from our present mortgage carrier. We have tried over and over; we have written our senator (the wonderful (gag) Harry Reid), and congressman Dean Heller. We got NOWHERE!!! There have been other things we have tried, and the bottom line is the company carrying our loan, Ocwen, is a heartless company that is only in it for the money. They basically are trying to run us out of our house because they will benefit from it. They got the bailout money, and if they foreclose and resell, they make even MORE money. We have talked to a few lawyers and they have shed a LOT of light on this situation. They don't care about the house, and they don't care about helping people with a hardship. We have fought for so long; and there just isn't any fight left. We want to keep the house, but we can't get the right help. It has come down to keeping our house, or making sure we can treat our son. Clearly that is a no-brainer!! I desperately want to keep the house; but not at the expense of my son. It just sucks so bad!! And we are having a hard time finding an acceptable house in Carson City. There are a LOT in Reno, Dayton, Fernley, Garnderville, Sparks, everywhere but Carson City. There are even more in Lake Tahoe than there are here! We are trying to find the size of house we want/need for a decent price. The only drawback with the house we looked at today is we would have to pay to store our trailer. Obviously the only 'perfect' house is the one we are living in now! But I guess that is just not to be. I have cried many tears over this, it truly breaks my heart to lose my house. Like I said before; when we bought this house 9 1/2 years ago we were NEVER going to move again. I wish I could see the future. I also wish the move was just over and done with! I am not sleeping good, and I am exhausted; physically and emotionally. I know that once I resign myself to the move, and detach myself from this house, things will be better. I just don't want to walk down the road of depression again~~~though I am close now!! Please continue to keep my family in your prayers. Pray that the house we saw today will accept our dogs. Thank you for your prayers.

The Physical Therapy office called today. They miss David, they love David. Anyway, they 'scolded' me for not bringing David in. I told them I couldn't afford it, and they said to bring him in whenever I want~~no charge! They said they know he needs it (which he does), and they want him to come in and exercise. They are sweet; and they do love David. They ALL decided that, not just Linda. So I will be bringing him in sometime, as much as I can. That will be good.

Thank you for checking in on David and the Koury Klan. Have a good evening, and a good weekend. Please, please pray for us. Pray for our emotional and mental state as we go through the devastation of losing our home. We are happy for people who are able to buy a house now, but it is hard to hear the excitement for them when we lost ours. Thank you so much. God bless you all. We love you.

Kristi and the Koury Klan

'Heaven is full of answers to prayer for which no one bothered to ask.'~~~Billy Graham

Thursday, February 11, 2010

Thursday, February 11, 2010 9:18 PM, PST

Good evening.

We are still asking for our miracle; but in the meantime we are looking for a house to rent. It rips my heart out to do that, but we have no choice. We are socking all we have into paying mortgage, and that is no quality of life for us. We want to be able to go on vacation and give David (and us) some memories while we still have him with us. I just never thought I would be where I am in my life right now. Please pray for us that we can find the house God wants us to have. We do have some requirements for the house; we can't be expected to give up EVERYTHING!!! Giving up our home is devastating enough. So please keep us in your prayers. Thank you.

We did look at an absolutely gorgeous house today~~~it was propane heated with a gas fireplace. We knew that would not be do-able for us. We will be looking at another house tomorrow. We will see......

I will keep you posted. Thanks for your prayers. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan

'It is a truth universally acknowledged that as soon as one part of your life starts looking up, another falls to pieces.'~~Helen Fielding

Monday, February 8, 2010

Monday, February 8, 2010

Good evening.

As I said on Facebook, I am quoting a gentlemen from church yesterday, "There are a couple more inches of global warming out there." Yeah, we had more snow. Dang that global warming! LOL

The phone call didn't happen today, hopefully tomorrow. It is too convoluted as to why it didn't happen, so I won't bore you with the details. I am just praying that something will happen that we are able to keep our house. If anyone knows of a philanthropist, or someone like that, could you let them know about us? We just want a lower payment (with a better interest rate) that we can afford. Thanks.

A number of people have said to us that, if we walk, they don't blame us. They have also said that they would do the same thing. With that being said; I DON'T WANT TO!!! Kim, you are right; if I can just let the emotional attachment go I will be ok. I will be able to 'move on' if I can just let go of the emotional attachment. But the thought of someone else living in my house is like a knife in my heart! I know it is just a house~~but that isn't the point! We would have to rent a storage unit; I really doubt we will find a house this size to rent. If we could find a house just like mine......that would be a wonderful miracle! I am just so stressed out right now! Because of all the stress I am under my body is reacting; my eyelashes are falling out! I internalize everything, and that is how my body responds. On top of everything, Bryon did our taxes and we OWE this year! Grrrrr. Please pray for our family! Thank you.

David is doing ok today. He didn't have PT, remember, we can't afford it. We have been doing research into options for treatments for David, and there are some things out there that we may have to resort to at some point in time. And insurance doesn't cover these things. We are praying we never need these treatments; but this is an aggressive cancer, it was aggressive in David, and he has those 2 lung mets, and we have to be prepared. But he is doing PT here at home, so that is good. He would rather do PT here, anyway. He doesn't like to go anywhere. He has always been a 'homebody' and being gone for a year to Oakland Children's Hospital has made him more so. So it really isn't too much of a chore to get him to do some PT here. I need to call the office and see about keeping him in the pool on Thursdays, though. We will see.

We miss Emilee. It felt strange not having her here today. Even though we only had her for 3 weeks, it feels different without her. But we know she will be back.

David is doing ok in school. He really enjoys his Elluminate sessions. He tries so hard. He is a great kid! I am so proud of him.

I want to say 'thank you' to those of you who have donated to St. Baldrick's in honor of David. I appreciate it very much!

Thank you for checking in on David and the Koury Klan. Thank you for your prayers. I will keep you posted on what is happening. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan

'When you are down and out something always turns up~~and it is usually the noses of your friends.'~~~~Orson Welles

Saturday, February 6, 2010

Saturday, February 6, 2010

Good evening, everyone.

Well, the phone call didn't go so well yesterday; things don't look good. Bryon is going to call again on Monday, so we will see. There is also a friend seeing what she can do for us. It is in God's very capable hands.........I will keep you posted. I just want to know that we tried EVERYTHING (and then some) to save the house. There are so many 'little' things that I don't want to let go of. I know it is just a house, and we are a family no matter where we live, but that really isn't the point. When we bought this house 9 1/2 years ago we were planning to NEVER move again! We moved a lot in our early years of marriage, and when the 3 older children were younger; I HATE moving! This is our first house, and I have a HUGE emotional attachment to it. One lawyer told Bryon that a lot of people are walking away from their houses; not because they can't afford it; but because they don't want to pay $500,000 for a house that is only worth $200,000-$300,000! I understand the logic in that, but I don't want to walk away without a fight! That's all I can say. Please continue to pray about this situation. Please pray that someone will be able to help us stay in the house. Thanks.

David is doing ok. His knee and leg are very sore today. He said his knee is really stiff and really hurts. Hopefully that will go away soon. He is off the Megace and doesn't really seem to be eating that good. But I am keeping an eye on him, and making sure he takes his Prevacid and Vitamins daily. He still gets very tired easily, and fatigued. We really don't know how long that will last. But he is a trooper! I am so proud of him.

Well, gotta run. Thank you for visiting and checking in on David and the Koury Klan. Have a good evening. I will let you know what happens. Thank you for the prayers. God bless you. We love you.

Kristi and the Koury Klan

'Every child deserves a home and love. Period.'~~~Dave Thomas

Thursday, February 4, 2010

Thursday, February 4, 2010

Good evening.

Well, today is the 2-year anniversary of David's 1st limb-salvage surgery. Two years ago today David's life was changed (again), forever.




It also was the start of a week of him dying and nobody knew why! Wow. I am glad we are NOT in that place anymore.



Two years. Sometimes it feels like just yesterday that we were in that hospital room at UCSF~~~~sometimes it feels like a lifetime ago. Two years ago today David was on surgery #3. In October 2009 he had surgery #10. Two years ago we still didn't know what all was in store for David (and the family). Wow. Two years. Amazing.

David has had a pretty good week. He went to Bible Study last night, and was so happy to get back to it. He had PT in the pool today. He has PT in the office tomorrow. We will be talking to Connie about PT just one day a week~~~pool day. We have stuff here; Treadmill, Total Trainer, etc. that David can do here. Plus we have one of those huge blow-up balls that he does exercises on. We figured he can do his workouts at home and save some money. Every visit to the office takes away from David's lifetime cap! So he will just be doing his exercises here, except for the pool. So tomorrow will be his last office visit. I will have to call Connie tomorrow. David still limps, but I think he always will. Sometimes we struggle with wondering if we made the right decision about his leg. Should we have just gone with the amputation? He would have much more mobility than he has now. *sigh* We did the best we could, and made the best decision based on what we knew at the time. We pray it was the right decision.

Tomorrow is also my last day with Emilee. We have been having so much fun with her. She is a very good baby. She is so much more comfortable here now. She doesn't cling to me quite as much, she actually roams around the house! I can go to the other room and she doesn't get upset. She is such a sweet baby. I will miss her. There is a lady who has PT after David, and she smells Emilee's head and says, 'That is what Heaven smells like.' Sweet lady. So I will miss having Emilee.

Please remember to pray for Bryon and his meeting tomorrow. Actually, it is a phone call, but please pray that things go positive for us. Please pray that a deal can be made. If not......well, then that's it. Thank you for your prayers.

Thank you for checking in on David and the Koury Klan. God bless you all. We love you. {{hugs}}
Kristi and the Koury Klan

'The barb in the arrow of childhood suffering is this; its intense loneliness, its intense ignorance.' ~~Akhenaton

Tuesday, February 2, 2010

Tuesday, February 2, 2010

Quick update~~~I will try to update later. Please continue to pray for our housing situation. Barring a miracle, we WILL lose the house. Well, it is possible a miracle is 'in the works' at this time. We will see. Please pray that our mortgage company, Ocwen, will grow a heart and lower our payments. We have already jumped through many hoops for this blasted company~~~and so far we have gotten NOWHERE with them. Gotta run. I will try to update more later. Thank you for your prayers.

Kristi and the Koury Klan


“There has been a significant lack of progress during the last two decades in treating osteosarcoma,” said Ian Lewis, Professor of Cancer Studies at St. James University Hospital in Leeds, England

Friday, January 29, 2010

Friday, January 29, 2010

Good evening.

Thank you for your prayers for Elaine~~~her MRI came out clear! Yay! I was so happy to read that!

We REALLY need your prayers. Bryon talked to a lawyer today about our special request; which many of you have probably figured out is our house. David's cancer diagnosis has devastated and destroyed us financially. We have one more 'last ditch effort' in hopes of saving it. If that falls through, we will be walking away from it~~~and it kills me to have to write that!! Part of why it kills me is I know that some people are happy about this happening to us. Some of those people live here, some out of state. And that is hard for me to believe, and accept. But it is true. Therefore, part of the reason I want to keep my house is pride, and I willingly admit that. We have put soooo much into this house (our home) and it is going to be soooo hard to lose it. The emotional aspect of losing our home is almost more than I can bear. Like I said many months ago; my son has lost so much, and now he is losing his home. This sucks SOOOO bad! All I can say is, pray for us! We are trying that one last thing........who knows. Maybe it will work out for us. I wish I knew an investor who would come in and buy my house and then sell it back to me for a reasonable mortgage payment (not the $3000+ we are paying now); but I don't know any such person. Please, please pray for us. I want to save my house, but I want my will to align with God's will; not the other way around. I know that God knows what is best for us, but sometimes I just don't get it! Thank you for your prayers.

Thank you for checking in on David and the Koury Klan. Sorry this is a short post, I am just not 'good company' tonight. God bless you all. We love you.

Kristi and the Koury Klan

'So long as children are allowed to suffer, there is no true love in this world.'~~~Isodore Duncan

Wednesday, January 27, 2010

Wednesday, January 27, 2010

Good evening, everyone. I hope you all had a good day today.

David's orthodontist appointment yesterday went very well. David's teeth are fine. His retainers fit great, and his teeth are nice and straight. Again, I am just unhappy with the color of them. Another reminder of his cancer journey. Maybe when he is older he can get them bleached. But he has a beautiful smile, and I am happy about that. Our orthodontist really cares about David, and our family, and he always asks how David is doing. When I told him that David does have a spot in each lung that they are watching, he instantly teared up! He hugged me and said he will be praying for us. He is a great guy. So David's appointment went well. He doesn't want to see David for 6 more months!

David had a pretty good day today. He got to go to Bible Study tonight, and that made his day great! He loves going, and the social time with his peers is very important. Peers that don't judge him, or make fun of him, just accept him. As far as school goes, he is 'back in the groove' of it! He is looking forward to the unit in History where he will be learning about World War II. He has a few books about WWII, and he is VERY excited to get to that unit. He still struggles a bit, he gets tired so easily. The fatigue really gets to him. But he still just plugs along. Plus he is gone for 1 1/2 hours 3 days a week with PT. And that wears him out! Tomorrow he has PT in the pool. He works amazingly hard in the pool. The pool seems like it would be easier, but not really. He can only bend his knee to 90* in the pool; but he can get to 105* in the office! Weird, huh? So tomorrow morning will be busy.

Please continue to pray for us. Things are getting worse all the time. The state of Nevada is in the 'red' by a lot; so that is why Bryon has to have a furlough day a month. Now the talk (out of Vegas) is that they are looking at a 20-30% pay cut for state employees. Well, if that happens, we will lose our house. The way to balance our state budget is easy; but nobody has the guts to do it. This country is being bled dry by the illegal aliens who get things for free that we can't have. We are paying for them. I am not stupid, I know how it works. I have a friend who used to work at the local urgent care, and she said that 90% of the patients came in with a Nevada check-up card and a Mexico I.D. card. So how much was their bill? You guessed it~~~a big, fat $0!! So guess who pays for that?!?! If we would stop giving them everything, the state (and the country) could have a balanced budget. It isn't rocket science, people. We saw a LOT of this kind of stuff when we were in Oakland. Our insurance company has paid Oakland Children's Hospital over $1,000,000; yet they sent us to collections for $3,000. I am an American citizen, yet I have to pay for the ones who are here illegally. Anyway, we don't know how this is all going to play out, but we see absolutely NO way we can save our house if Bryon's pay is cut another 20-30%. I have just prayed that if for some reason it is God's will that we lose our home, that God will let me be okay with it. Right now I am NOT okay with it! But my family comes first, and I don't want to be 'married' to my house. Please keep us in your prayers. Thank you so much.

Thank you for visiting and checking in on David and the Koury Klan. Could you please pray for Elaine tomorrow? She is a brain cancer warrior, and she has an MRI tomorrow to make sure she is still cancer free. Thank you for your prayers for her. Thank you for your prayers for us, too. Have a good evening, and a good day tomorow. God bless you all. We love you.

Kristi and the Koury Klan

'Never deprive someone of hope; it might be all they have.'~~~H. Jackson Brown Jr.

Monday, January 25, 2010

Monday, January 25, 2010



Good evening. Our weather was very strange today. We had snow, rain, hail, but no sun. It was cold and beautiful.

We had a great weekend. It went by way too fast, tho. We had a fantastic hotel room; sorta like a suite.



We got to use our restaurant gift card (and there is still money left on it), and we got to go to the movies on our free movie passes! The movies we saw were 'Extraordinary Measures,' and 'The Book of Eli.' Both fantastic movies! We weren't sure if we would be able to handle 'Extraordinary Measures,' but we loved it! Yes, it was a tear-jerker, but a fantastic movie. 'The Book of Eli' was a bit graphic, but another fantastic movie. We don't usually go to the movies; we just wait until they come out on video! So it was nice to be able to do that. We took a drive out to Pyramid Lake; I had never been there before. And we just walked around Legends and went to Scheels. It was raining on Sunday, so we didn't want to be outside too much, and the Legends is an outside mall~~~I guess it is a mall. Anyway, we had a great weekend, it just went by way too fast!

David did good in PT today. He is trying hard to get strong. He works really hard. Emilee had fun watching him and 'talking' to everyone there. She sat in the stroller and was such an angel! She is so much fun. We have fun with her. She enjoyed watching David do his exercises, and he kept talking to her and making faces at her (and she would make them back). So David had a pretty good PT session. He is doing better. He is limping more now; he is rather sore. But he is doing good.

Tomorrow David has an orthodontist appointment. It is just another maintenance appointment for him. It is just to check his retainers. His teeth are so nice and straight; we just wish they weren't so discolored from chemo! *sigh*

Well, that is about all for now. Thank you for checking in on David and the Koury Klan. Have a good night. God bless you. We love you!

Kristi and the Koury Klan

'The way I see it; if you want the rainbow you gotta put up with the rain.'~~~~Dolly Parton

Friday, January 22, 2010

Friday, January 22, 2010

Good morning. I have a few minutes to update before we get ready to leave (while Emilee is sleeping).

We have several inches of snow outside!! It is a beautiful winter wonderland!! It is sunny (and cold~~34*{but feels like 24*}) and the snow will be around for awhile!! YAY!! We are having a fantastic winter this year. So much better than last year.

David is doing ok in PT. He added the elliptical to his routine today. Linda noticed he isn't limping as bad, so that is good. She also noticed he isn't as tight. Right after surgery his straight still had an 8* bend; now he is down to 3.4*! So he is getting straighter. His extension is still pretty bad, tho. But, like I said before, without those lower quad muscles he just doesn't have the strength. You never know what muscles you use until you no longer have them. Nor do you know which muscles do what! He will never be the way he was, but he will be the best that he is! (I hope that makes sense) He is trying hard. Please continue to pray that he gets stronger. Thanks.

Emilee is getting used to being here. She is still rather clingy to me (but that is fine with me!) but she is doing better. She came with us to PT and she just sat in the stroller and watched all the activity going on around her. She is such a sweetie.

Well, I gotta run. Thank you for all the anniversary wishes. And thank you, Christine and Emery, for the thoughtful gift. We are very thankful for this time to get away; we need it VERY badly! You all have a great weekend. We will NOT be bringing our laptops, so I won't be updating until we get home. Thank you for checking in on David and the Koury Klan. God bless you all. We love you.

Kristi and the Koury Klan

'Marriage is a wonderful institution, but who would want to live in an institution?'~~Henry Louis Mencken

Tuesday, January 19, 2010

Tuesday, January 19, 2010

Good evening.

Today went pretty good. David did ok in the pool. He also started second semester of school. I am praying he does better this semester than he did last one! He didn't do too bad; I should be getting his grades by next week. I think his only 'bad' grade will be in English. But I know he is trying his best. This semester he is starting on time; so that is good. Please pray that he does well this semester. Thank you.

It went good with Emilee today. She is such a sweet baby. While David was in the pool, Emilee and I just walked around the perimeter of the pool. She just wanted to keep walking around and around and around. But I didn't mind. It was not a bad day. This isn't a super long term job, just while Emilee's daddy is deployed. Actually, it is for 3 weeks initially, then starting sometime in March it will be for 7 months. But it will still be a help, and I will LOVE taking care of that precious baby. She is really adorable, and David loves her, too. Please continue to pray that it goes well, and her mommy has an easier time leaving her (I don't blame her for struggling with leaving her daughter). Thanks for your prayers.

Our weather is very cold, and more storms are on the way!! YAY! Loving the snow!

This weekend the forecast is to be clear; no storms. Sunday is my and Bryon's 29th wedding anniversary~~~so we are going away for the weekend. Not really far away, just about 30 miles away. We have a free night at a Marriott, and our daughter, Jennifer, wants to pay for the second night for an anniversary gift to us. Plus, we have some gift cards for restaurants, so this weekend won't cost us much! I am looking forward to it. So we will be leaving Friday evening, and coming home on Sunday. We really need to get away together and reconnect. This past 2+ years has been VERY hard on our marriage, and this is something we need to do. So I am thankful that Jennifer wants to pay for a night for us to be away (thank you, sweetie!). Please pray for our safety, and safety for the kids while we are gone. Thank you so much.

That is about all that is happening in the Koury Cancer Ward. Thank you for checking in on David and the Koury Klan. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan

'I love being married. It's so great to find that one special person you want to annoy for the rest of your life.'~~~Rita Rudner

Saturday, January 16, 2010

Saturday, January 16, 2010

Good evening.

First things first~~HAPPY BIRTHDAY, JEREMY!! Today is my oldest child's birthday.

Sorry I haven't updated lately~~~just haven't.

David has been doing quite well lately. He had a great time at Bible Study Wednesday night. We went to our support group meeting and had a good time, too. David was very happy to be back at Bible Study; they have been off for the holidays, and then David had scans last week. Anyway, he was very happy to be back.

David did good in the pool on Thursday. He also did quite well in PT on Friday. He has been walking, and doing well. His knee still hurts in the cold, but he just keeps on walking. Tonight we went over Jeremy and Lucy's for dessert, and Rachel, David, and I walked over there. They live a mile from us, so it was a good walk for David. He and Rachel walked earlier (before church) for 40 minutes. Connie will be proud of all the walking he is doing. He is trying to build up his stamina. It is VERY slow going; he still gets very tired and fatigued easily. But hopefully he will start to feel better soon.

I have had an answer to prayer. On Tuesday I will be starting to take care of a baby. I am so excited about that. I have really missed having a baby in the house. And it is going to help us out financially. We still need prayer for our 'special request,' though. Please continue to pray for that. Thank you for all your prayers.

Thank you, Wylene, for your very generous gift to us. We appreciate it more than you know. Thank you so much.

Thank you for visiting and checking in on David and the Koury Klan. Thank you for all your prayers. Have a good night. God bless you all. We love you.

Kristi and the Koury Klan


If you lose money, you lose much; if you lose friends, you lose more; if you lose faith, you lose all. ~~Eleanor Roosevelt

Tuesday, January 12, 2010

Tuesday, January 12, 2010

Good evening.

It has been a rather busy last couple of days. David had PT on Monday, and it was a difficult day for him. Linda said he was much tighter, and he was in more pain trying to get his leg straight. She also noticed that he was limping more. Don't really know what that is all about. He is doing his extra walking that Connie ordered, so maybe that is factoring into it. The other night we went for a walk, and David took his dog, I took the tiny dog, and Bryon took the German Shepherd. It was fun, and comical! The 3-pound chihuahua I had was walking so fast to keep up with all of us that David said his legs were just a blur! It was pretty funny. But it was a nice, cold walk. So David is doing extra work, so that could be why he is more tired and having a harder time at PT. But, as usual, he just does what he is told. I am so proud of him.

His eating is still going good. The 1/2 dose of Megace is still working, but I can tell it doesn't work as well as a full dose! But he is still eating good. Please continue to pray that he does continue to eat. Thanks!

Bryon and I went over the CDs of David's CT scans, and we discovered the nodule appeared in the July scans. We know they didn't say anything right away because it could have been anything; infection, a lung met, scar tissue, etc. So they needed to 'watch it' and see what it does. Well, it is bone, but it is stable. But, the flip-side of that is, that means that David had a recurrence. So that is one of the reasons we are totally praising God that the nodules are stable. But, like I said from the beginning, I am not going to put God in a box. The greater the odds of David not surviving, the bigger the miracle!!! And since he is a walking miracle right now, we are praising God!! We were told that a recurrence within the first 5 years is not survivable~~~but we know of a few kids who are surviving. Man is into the 'numbers,' God isn't!! So stay tuned!

Thank you for checking in on David. Thank you for your support. Thank you for your prayers. God bless you all. We love you.

Kristi and the Koury Klan

Courage is the art of being the only one who knows you're scared to death. ~~~Harold Wilson

Friday, January 8, 2010

Friday, January 8, 2010

Good evening.

I got a call from Connie~~~bone scan is clear! Praise God! We were so happy to hear that! Connie said that David will continue to have scans every 3 months (12 weeks) for the rest of this year. Then next year we will start having scans every 4 months. We are praying that David's scans stay 'stable' and clear. But we will just take it one day at a time, and not worry about the next scans~~that is until it gets close to them again! (Smile) We are trusting God to take are of David. And right now we are praising God for stable disease and clear bone scan!!!! Thank you so very much for your prayers; they mean more to us than we can say.



This is David getting his bone scan


This is the bone scan image












This is David's CT Scan. Notice the little white dot just to the left of center. This is one of the lung mets (cancer) they are watching. So far it is stable - not growing or multiplying



David had an ok day. He did good in PT, he just gets very tired. He also tends to, at times, cop a 'tude when he just wants to go home. He doesn't like to do the exercises, he gets really tired, he works really hard, and he knows it is going to take time. He 'stuffs' a lot of his feelings; just like ME!! He wants his life back, and he misses being able to do the things he used to be able to do. He misses being a normal 15-year-old kid. He was robbed of his childhood at the tender age of 13. This has taken an emotional toll on him; and some days are not as bad as other days. I can tell when he is having a bad day, though. Please continue to keep him in your prayers. Thank you.

I just wanted to post the fantastic news about the bone scan. Thank you, thank you for your prayers. Thank you for checking in, and for your love, prayers, and emotional support. Have a great evening. God bless you all. We love you.

Kristi and the Koury Klan

Sometimes life is just hard; for no reason at all.

Thursday, January 7, 2010

Thursday, January 7, 2010

Good evening.

Ok. I called Connie today, and she finally called me back. The results of the bone scan are not back yet. She said that is odd, usually they are back sooner. So she will be calling me tomorrow with those results. The results of the CT scan are a mixed bag. The good news is 'stable disease' and no new nodules. The bad news is 'stable disease' meaning there is disease. The couple nodules they are watching are unchanged~~which is fantastic news! Trust me, I know how wonderful that news is. We just wanted him to be NED (No Evidence of Disease), and he clearly is not as long as there is disease. I have to remember what I learned from our online support group; and that is 'Don't bleed until you are shot,' and we have not been shot, yet. We are not hemorrhaging, we have not been shot, we have just been grazed. If these nodules stay in his lungs and never change, that would be fantastic! Connie said they are nothing to worry about at this point. So we won't worry. Besides, God is in control. That can be a very difficult pill to swallow sometimes. It is so hard for us to watch our precious son go through what he has gone through the past 2+ years. But we know God has a plan for him; and us! There are lessons we are supposed to learn through all this. I just wish I knew that everything was going to be fine. I guess it is, one way or another. Like I said before, David is in a win-win situation. If he dies, he wins because he will be in heaven. If he lives, he wins because he is alive!! So he wins either way! So that is the result of the CT scan. We are breathing somewhat easier. We can 'relax' for another 3 months. Well, 2 1/2 months anyway. Lol.

David did pretty good in PT today. I forgot to tell you that Connie wants David to build up his stamina by walking. She said on the days he has PT he is to walk for 20 minutes. On the days he doesn't have PT he is to walk for 45 minutes. So tonight we went for a walk before dinner. He only made 17 minutes, but he did great. It is freezing, so his knee was causing him a bit of pain. But he walked anyway. I told him 17 minutes was ok. So tomorrow we will walk another (hopefully) 20 minutes. Connie also said that on days where it is too windy, rainy, icy, snowy, etc. he can use the treadmill for 20 minutes. But she would rather him be outside. I agreed 100% with her. Please continue to pray for him. Thanks.

I will post tomorrow after I get the results of the bone scan. We are praying that scan comes out totally clear! Thank you for visiting and checking in on David. Please continue to pray for him, and us. And to the people who have deposited to David's account, thank you. You know who you are. We appreciate it more than you know. Have a good night. God bless you all. We love you.

Kristi and the Koury Klan

Be who you are and say what you feel; because those who mind don't matter, and those who matter don't mind.

Wednesday, January 6, 2010

Wednesday, January 6, 2010

Good evening.

We made it home~~~earlier than expected! We think with 13% unemployment in California, there are just fewer cars on the road. We were glad to make it home sooner than we were expecting to.

Ok, here was our day. We left the house sometime between 6 and 6:30am. We did make one potty stop, and we got to Children's around 10. Yup, we made pretty good time. We got a handicapped parking place in the front of the hospital; so we didn't have to pay for parking~praise God!! We checked into radiology about 10:15ish. Then Bryant was able to give David the injection for the bone scan around 10:30. Then we got into the CT almost right away; and the CT was done by 10:45ish. And it was NOT with contrast! David was happy about that! He said the contrast makes him feel really hot inside. Oh, just before the CT the nurse drew David's labs, and then took out the IV. Then we went to the cafeteria. We had a great surprise~~~we got to see Teagan!! We haven't seen her for quite some time, and it was fantastic to see her. She looks great! Then Teagan went to have her CT and bone scan, and we had lunch! And we got to see a bunch of doctors that we have missed! Like Dr. Hoppe, Dr. Styles, and Dr. Singer. We didn't make it upstairs because David couldn't go upstairs~~~swine flu and all. Anyway, David's bone scan was at 1pm. Then we went across the street to the clinic to see Connie. Ok, the results of the scans are~~~~~are you ready? Are you sitting down? Drum roll please.......NO NEWS!! Connie didn't have the report yet! So I have to call her tomorrow. Rather frustrating. So, scanxiety is still reining at our house! Please continue to pray!!

David's weight is great! Connie said that David is exactly on target for height and weight! She said his height was always steady in the 52%; but his weight was around 30%! So now his height and weight are exactly the same, and she is thrilled! She told David she is really proud of him. So we are going to wean him off the Megace. We will be doing a 1/2 dose for a week, then stop it. If he continues to eat he can stay off it. If he loses his appetite, then he is back on it. Also, she is going to be sending me the 504 documentation for his school. And his phosphorus levels are perfect! So he doesn't have to go back on the supplements! YAY! So, other than not knowing what the results of the scans are, it was a pretty good day. Bryon would have rather spent his birthday not going to Oakland, but it is what it is! We will 'celebrate' his birthday on Sunday with all 5 kids. He can't decide if he wants me to make enchiladas or beef stroganoff. Fickle man, lol! (smile)

So that was our day. I hope to be able to post tomorrow what the results of the scans are. We were really hoping to know the results today; but it wasn't to be. That is the story of our life! So we would continue to covet your prayers as we await the results. Thanks.

Thank you for visiting and checking in on David and the Koury Klan. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan

'Hope sees the invisible, feels the intangible, and achieves the impossible.'~~Helen Keller

Tuesday, January 5, 2010

Tuesday, January 5, 2010

Good evening.

First, I want to say 'thank you' to all of you who wrote and encouraged me. That is why I love you all, I know you are there for me. I can say how I feel, you don't judge me, and you do what you can to encourage me. Thank you. I really appreciate you all.

Well, tomorrow is the day. David is not nervous at all. I told him that is ok, I am nervous enough for both of us! He doesn't need to be nervous, I'll take care of that for him. Aren't I just the best mom? LOL!!! Please pray that his scans come back clear! Thank you for your prayers.

Tomorrow will be a busy day. We will leave at 6am. We have to check in at 10:30. Oakland Children's Hospital called and said David will have the injection for the bone scan (and labs drawn) at 11am. He can't eat until after the CT scan. Then he will have the CT scan at 12pm. Then we all get to eat!! Then he has the bone scan at 2pm. Then we will go across the street to the clinic and have his monthly oncology appointment; and hopefully get the results of his scans and labs. By the time we get done with everything and are ready to go home, it will be rush hour traffic! Like I have said before, I don't know why it is called 'rush hour' when no one is rushing anywhere! The good thing is we will be able to use the carpool lane!! So Bryon predicts we will be home around 10pm. See? Long day! And it is Bryon's birthday! Poor guy. What a way to spend his birthday. Bryon told David that the best birthday gift he could give him would be clear scans. Poor kid, he has no control over that! But He told Bryon he will do his best! I am not looking forward to such a long day. And David still gets so stiff in the car, even though he has the whole backseat to himself. Four hours is a long time for him to be sitting in the car~~we will have to have a potty stop or something to let him stretch his legs. He said he wants to sleep for most of the time; maybe watch a movie, too. Please pray for safety for us as we drive to Oakland. Thanks.

We are so glad that some things just never change. I have mentioned this before, but for the newcomers I will mention it again. The whole winter we were traveling to Oakland for chemo and surgeries when David was first diagnosed the weather was harsh. Storm after storm after storm. When we were home the weather would clear up, then a storm would come in as we were preparing to leave. Well, there is 'bad' weather coming in tomorrow night. There is a small storm coming in; so we will be coming home to the storm, not leaving in one. So it is just nice to know that some things never change!! For awhile we were wondering if my car would know how to get to Oakland on dry roads! We thanked God many, many times for my Honda Pilot!! Let me tell you, it is THE BEST vehicle in the snow!!

Thank you for checking in on David and the Koury Klan. Thank you for all your prayers; we need them!! I will try to post tomorrow when we get home; depending on when we get home, and how tired I am. Again, thank you for being there for me/us. God bless you all. We love you.

Kristi and the Koury Klan


The only thing worse than being diagnosed with cancer is watching your child go through it.

Monday, January 4, 2010

Monday, January 4, 2010

Good evening.

Today was a busy day for David. He had PT this morning, and he had a tough time! His calf is very sore, so just walking is difficult for him. The exercises were very difficult; but he did them anyway! He is such a fantastic kid, and a trooper. I could tell he was in a lot of pain; almost to the point of tears! We aren't sure why his calf is so sore, it has been sore since yesterday. He woke up with it sore, so maybe he had a charlie-horse or something in his sleep~~~~who knows?!?! So he struggled through PT. But he still did what he needed to do. Then he had school. He is struggling a bit in that area, too. It is hard to get back in the groove after 2 weeks off! He will only have school 4 days this week; he won't be able to have school on Wednesday. David's eating today was pretty fantastic! Breakfast was eggs with cheese and toast. Lunch was a Chicken Bake (we got them at Costco). After lunch, right after lunch, he wanted some chips and salsa. Bryon made salsa last night, so David had some with/after lunch. Then he had 2 Reese's peanut butter cups. Around 3 he had some crackers and chicken salad. Then for dinner he had 2 bar-b-qued hamburgers; then he wanted some more chips and salsa; then more Reese's peanut butter cups!! He ate great today! We are so happy to see him eat!

We got some more wood today, THANKS ALAN!! It is quite cold, so the wood is very much appreciated!!

I was talking to someone today, and he said he understands why I am feeling some frustration and perhaps anger at God. He did say that we have a big God, He can handle it. I was feeling it because it just seems like everything is just spinning out of control!! Today someone came to shut off our power. Each month I have to 'rob Peter to pay Paul,' and it is catching up with me! I was able to stop the shut-off, thank God. I just was asking God what He wants from us! We are trying to save our house, pay the bills, feed the family, etc. with money that we don't have! BIG *sigh*! I am glad God can handle my frustrations and stress!! We would really continue to covet your prayers. Thank you.

I was chatting with my friend today, and she asked me if it gets easier when scan time comes around the farther out we are. I told her NO!! Actually, it gets worse. The farther out we are, the more chance of 'something' showing up in the scans. Those rogue cells can rear their ugly heads! Right after chemo it can happen, too, but in our minds it is less likely to happen right away because the effects of the chemo are still in David's body. But now that he is out of treatment~~~it is scary. She was saying so this is something we will have scanxiety about for the rest of our lives (or David's); and I said YES!! She is finally getting closer to 'getting it!' She asked if it had been 6 months already since his last scans; and I told her that since David is classified as 'high risk' for recurrence he has to have scans every 3 months~~~still! His last chemo was 15 months ago, today!! We were told the protocol calls for scans every 3 months for a year, then every six months. Like I said, David is still every 3 months. Even though my friend is here, watching David go through what he is going through, she admits she still can't imagine what he is going through. It is still hard for her to understand all the ramifications of how his life has changed, forever. And how ours has changed. But I don't expect her to understand, at least she is there for me. That is a lot more than I can say for some people~~the ones I really thought would be there. But I am just trying to move forward; with God's help! I am trying not to 'bleed until I am shot,' it is just hard sometimes. Please pray for clear scans for David. Thank you.

I want you all to know that David's website. www.davidpaulkoury, will be expiring Jan. 18. That site will no longer be available. We couldn't afford to keep it up. But Bryon has opened another one, a free one, and the link is: http://davidkoury.blogspot.com/ It will coincide with this one. The link is also under the 'Resources' at the top of the page. Thanks for your understanding.

Thank you for checking in. Thank you soooo very much for your prayers; we REALLY need them. Have a good evening. God bless you all. We love you.

Kristi and the Koury Klan

"God doesn't give you the people you want, He gives you the people you NEED. To help you, to hurt you, to leave you, to love you and to make you into the person you were meant to be."

Saturday, January 2, 2010

Saturday, January 2, 2010

Good evening.

I hope you all had a great New Year's. Ours was quiet. We just stayed home and stayed up past midnight. Then we went to bed. New Year's day was busy. We spent the day cleaning and re-arranging. Then today Bryon took the Christmas lights off the house. It has been a somewhat busy, but enjoyable weekend.

We are praying for David's scans on Wednesday. It just never gets any easier when the time comes for scans. David will be having his blood drawn to find out how his counts are, and if he can stay off the phosphorus pills. I won't be giving David his Megace that day. The reason is because his CT is with contrast this time, and he can't eat before the CT scan. Poor kid, the CT scan isn't until 12:00, so he will eat afterwards. Fortunately, the CT scans doesn't take long. David gets the injection for the bone scan at 11; then the CT at 12; then the bone scan at 2. Christine always wants David to drink and eat before the bone scan, so that will work out perfect! But I know he will be hungry. Actually, we all will be. We never eat when David can't; that just wouldn't be nice. So we all go hungry together. Bryon and I can afford it, David can't!! But he will make up for it at lunch, hopefully. He doesn't much care for the cafeteria food~~~but that just can't be helped. We will get him to eat something. Anyway, please pray that it is an easy day for David, and that the scans come back clear. Thanks.

Thank you for checking in on David and the Koury Klan. Thank you for your prayers. God bless you all. We love you.

Kristi and the Koury Klan

"To lose a child is to lose a piece of yourself."~~Dr. Burton Grebin

Thursday, December 31, 2009

Thursday, December 31, 2009

HAPPY NEW YEAR!!

I hope you all have a great 2010. I am praying that it is a better year for us. We will start out the year with scans on the 6th. I am definitely feeling the stress of the upcoming scans. I posted on my Facebook that I hope 2009 is better that 2010 was!! My dear friend, Olga, let me know I had it backwards!! Thanks, Olga. Yup, scanxiety is living at my house!! I am praying that we all have a better year. You are all in my prayers!

David just had a lazy day today. He just played video games all day. He has been complaining about the cold bothering his knee. Poor kid; 15 years old and he has 'old man' knees! Well, just the one knee. Little things that none of us even thought about before. When he was having the surgeries, all we were focusing on was getting rid of the cancer. I just never thought that he would be bothered by the cold! *sigh* Just one more thing he has to learn to deal with.

We are counting our blessings. We are all alive, we have a roof over our heads (for now), we are warm (thank you again for the wood, Alan), we have food in our bellies, and there is still snow on the ground!! Our biggest request right now is that David's scans come back clear. Please pray that they come back clear. Thank you in advance.

I hope and pray that you all have a great New Year as you celebrate it however you are celebrating it! We are just staying home. Thank you for visiting and checking in on David and the Koury Klan. Thank you for your love, prayers, and encouragement to us. God bless you all. We love you.

Kristi and the Koury Klan

Childhood cancer is devastating and creates unique pressures on the whole family.

Tuesday, December 29, 2009

Tuesday, December 29, 2009

Good evening.

I forgot to tell you two things last night. One, it was snowing!!! Jennifer had a white birthday! So the roads were all white again this morning. Two, David ate 9 enchiladas!! Yep, you read that right~~~9!!! I could NOT believe he kept going back for more! He is doing great in the eating category~~for the most part.

David did pretty good in PT today. It was freezing when he got out, the therapy pool room is VERY warm! But the car warmed up fast. Then we went home and David showered. Then he wanted to spend his Christmas money at Game Stop, so I took him. He bought a game he really wanted! Drema, thank you so much for the money you sent him! After that I had to run to Costco to get some dog food. Then we came home and I made David lunch. He ate 12 Bagel Bites for lunch. See, he is eating pretty good. He didn't eat that great for dinner, but that is ok. Overall, he had a pretty good day. He is such a trooper.

Tomorrow he has PT again. Last week having PT three days in a row was very difficult for him. Please pray that he does well. Thank you.

This coming March is St. Baldrick's again. That is where people shave their heads to raise money for Childhood Cancer research. Last year Jennifer shaved her head and raised over $1,000, by herself!! This year Jennifer, Rachel, and I are all going to shave our heads. We are doing it in honor of David. We are called "Team David". It is money that will, hopefully, help find a cure for Osteosarcoma. Contrary to what some people believe; St. Jude's does not do ALL the research for Childhood Cancer. Other organizations need money, too. When the 'paperwork' is all done for having David be a featured child I will post a link to it. Rachel and I are scared to do this, but we want to do it in honor of David. We want to do something to help raise money for the best cause out there (in my opinion). Other cancers have fundraisers; and lots more money; and we believe that the children need the money. We need to find a cure for Childhood Cancers!! These children have just begun to live, and way too many of them are dying!! Be looking forward for the link!

That is about it for today. Thank you for checking in on David and the Koury Klan. Have a good night. Thank you for your prayers, and love. God bless you all. We love you.

Kristi and the Koury Klan

Being happy doesn't mean everything is perfect. It means you've decided to see beyond the imperfections.