Monday, March 23, 2009

David's doctor appointment went very well. He is now 5'8" tall and weighs 124 pounds!! We are thrilled about that! He has a sugar-free instant breakfast every night with dinner, and I think that is helping. He is able to maintain his weight because he has 'good' eating days and 'bad' eating days. I guess it all balances out. I am so happy he is doing so well. Connie said he is getting stronger, too. And he is looking good. Connie is very happy with how well David is walking~~~so are we! His knee does buckle on him, but Connie just said be careful on the stairs. If he should fall just walking, he won't fall far; plus his hands can catch him. Falling on the stairs...........that's a different story. We have noticed that his knee tends to buckle more when he is tired. He doesn't have the stamina he used to have, but I suppose that will come in time. But he is doing very well. He has scans April 3rd, so we are praying they come back clear. Please pray for that.

PT went good today. Jennifer came with us. She spent the whole day with us. She had to get the oil changed in her car, so we took her car to Reno. Then she played with David in PT. She got to see how hard he works. Linda put Jennifer on a balance board along with David when they played catch. Linda said she gave Jennifer the 'easy' board (wasn't that sweet?). Jennifer said her legs were tired! David is up to throwing and catching a 6 pound ball. He has to squat down to strengthen his quads and catch the ball. He does very well. We are so proud of him. He 'complains', but he really puts his heart into it. He did get nauseous during PT, tho. Connie gave me a prescription for more Zofran. I don't know when this will ever end!

Well, that is about it for today. We are going to go to bed early tonight, we are so tired. I am going to quote something I read today~~because it is so true. Ready? Here goes, "Sleep is one of those things that we can never engage in after a cancer diagnosis". You would think that we would be able to get a good nights' sleep now that we are home. Yeah, it doesn't work that way. Once cancer hits your child; life is NEVER the same. We sleep, just not good. We haven't felt rested in 1 and 1/2 years!! There are days that we have to literally drag ourselves through the day. *sigh*

David has PT in the pool tomorrow, please pray that it goes well. Please pray he doesn't get nauseous. I will give him Zofran in the morning, so hopefully that will help. Poor child. Thank you for visiting and checking up on David and the Koury family. Have a good night. God bless you all. We love you.

Kristi and the Koury Klan

Today, up to 75% of the children with cancer can be cured, yet, some forms of childhood cancers, like osteosarcoma, have proven so resistant to treatment that, in spite of research, a cure is illusive.