Monday, March 30, 2009

Good evening. I put the Golden Gate Bridge as David's background because we will be in San Francisco on Thursday.

David did pretty good in PT today. He had to suck on a peppermint while he was doing the elliptical, but otherwise did ok. I am trying not to give him the Zofran unless absolutely necessary. He will be getting it on Thursday~~don't want any carsickness!! But I am trying to have him sorta tough it out at PT. He works really hard, as usual, at PT. He is such a trooper. Tomorrow he goes to the pool! He doesn't like the work he has to do in the pool, but he does enjoy being in the pool.

A year ago tonight he finally got out of the PICU and put in a regular room. Sometimes I can't believe it has been a year; other times I can't believe it has been ONLY a year. You osteo families know exactly what I mean by that. I just don't want my baby to have to go through that again. That is why we are praying so hard for clear scans on Friday. It is so scary to me that David could have cancer growing in his lungs and we wouldn't even know it without the scans!! Grrr. Please pray for him and clear scans. Thanks.

I hate our insurance company. They denied claims last year because David exceeded his pre-authorization for hospital stays. Now; that is because they only pre-authorized a 4 day stay for a 5 day chemo infusion!! Hello! A 5 day infusion means 6-7 days in the hospital. Then we found out that they will only pay for 6 Zofran pills every 23 days!! Give me a break! I guess he can only get nauseous 6 times in 23 days. No wonder this cancer disaster has caused such devastation in our finances!! *sigh* But what are we gonna do? Of course we pay a LOT out of pocket, it is not fair for David to suffer because the insurance company won't pay for medicine he needs. That is why I have asked, over and over, for you to pray for our finances. Being minus one income and expenses greatly multiplied~~ you get the picture.

Thank you for visiting and checking in and up on David. Thank you for your prayers. Have a good night and sleep tight. God bless you all. We love you.

Kristi and the Koury Klan

Even with insurance coverage, a family will have out-of pocket expenses of about $40,000 per year, not including travel.