Monday, March 9, 2009

Good evening. Sorry I haven't updated for awhile. It has just been too hard lately. We have been very busy, and it has just been emotional. The website we are on (an osteosarcoma support group) is our 'family' and when one of the children die, it is like one of our children has died. I have said before, we have a special bond. A bond that NONE of us wanted, but we are bound just the same. I was 'talking' to another mom this evening, and she said it best, "Sisters we are now....no matter what." And that is the truth. If you would like to visit her son's site, it is www.caringbridge.org/visit/tyulmer. They are a wonderful family; and Ty is a nut! He has a fantastic attitude about everything. Please pray that Ty clears the 'meth' from his system by Thursday. Thanks.

David had PT today. Linda is pleased with him; when he lays on the table he is able to get his leg straight without her pushing on it. She is very happy about that. He is doing so well. I think if he didn't limp; because of the leg length difference, you would never know. His leg moves real well; considering a good amount of the quad muscle was removed! But I forgot to give him zofran this morning, so he got nauseous today. He even had to stop doing one of his exercises because he was too nauseous to go on. Poor kid. When will this ever end? Osteosarcoma leaves a daily reminder of all the things it stole from our children. Most people do not understand. It is so much more that just diagnosis, chemo, surgery, more chemo, more surgery, more chemo and then move on with life. We all wish it was that easy. We look at things so different from other people. Every time David coughs I wonder if he has lung mets. Every time his knee buckles, I am concerned that he will fall and break either the bone or the prosthesis. His childhood has been 'stolen' from him. Linda said she can't imagine how hard it must be for him to not be able to do the 'normal' things that other teenage boys take for granted. And how hard it must be for us to know he can never do the 'normal' teenage things. IT SUCKS!! A child without osteo tripping and falling is almost to be expected; my other children did it! But it could be disastrous for David to trip! We have to sort of put him in a bubble of protection~~sometimes over protection. And, yes, we are 'moving forward' with life; but this will never be over. This isn't something that we can just put behind us and go on. Again, osteo leaves a daily reminder! *sigh*

Well. I better go. I need to get David's medicine. See, another reminder; lots of daily and twice daily meds! Thank you for visiting, and for your prayers. Keep the prayers coming, we need them. God bless you all. We love you.

Kristi and the Koury Klan

“Time is shortening. But every day that I challenge this cancer and survive is a victory for me.” Ingrid Bergman quotes (Swedish born American film and stage Actress, 1915-1982)