Sunday, February 22, 2009

Good evening. It is with a very heavy heart that I must tell you that Brandon died this afternoon. 2 years and 1 day after diagnosis. It is very difficult for us to read of another osteo warrior dying. We know that it could possibly be our turn to write those horrible words someday. It sucks more than I can say. Only other osteo parents can know what Bryon and I are feeling right now. How are we supposed to tell our child there is hope, when so many of the other osteo warriors are dying? Especially when they (the doctors) don't give David much of a chance; and statistically he has less than 20% chance of surviving long term, despite aggressive therapy!? The children who have lived the longest seem to be the ones who are/were NOT metastatic at diagnosis. David was metastatic at diagnosis. I don't know. I just remembered that another young man died on Feb 5; his name was Ryan. I mentioned him late last year. They told him in December that he had 2-3 months to live. I am so sick of this cancer. It is so aggressive; so scary; so seemingly unstoppable!!! *sigh* Please pray for our family. It is getting so scary for us. 'Scanxiety' for David's scans in April is kicking in, BIG time! With more and more children dying and relapsing. . . .

David is feeling ok. He has PT tomorrow. Please pray for him to feel better. Please pray that PT goes well for him. Weekends go way too fast for him; and us, too, of course. I am including a saying I read today:Do you want to see heroes? Go to the Children’s Cancer Hospital, they fill the clinic and the halls. Their laughter echo’s through the building. Their beautiful smiles brighten the rooms like welcomed sunshine! Their courage is like no other.That is totally the truth!!

Anyway, you all have a great week this coming week. Please remember all these osteo families in your prayers. Thank you. We love you. God bless you all.

Kristi and the Koury Klan