Good evening.
Our temperatures are finally getting fall-like. Our low this morning was 20.4 degrees! Our highs are in the 50's! Yay! We are loving the cooler weather. David is so happy, he now wants it to snow!
We finally got rid of all 4 kittens! Woo-Hoo! I am so happy to have those kittens gone! We have enough animals already. There are a couple more I would love to get rid of......I just can't. I hate chihuahuas, and would love to see them gone. But one is Jennifer's, and one is David's; so....... I am stuck with them, for awhile anyway.
Please continue to pray for David and school. He is doing ok, I just wish he was doing better. He is a bit behind, again, and I have told him he needs to get caught up. Please pray that he can get caught up. Thanks.
David is looking forward to Friday; it is a holiday. It is Nevada Day. Well, technically, Nevada Day is Oct. 31st, but several years ago they decided to celebrate it the last Friday of October. So everybody is off that day! Sleep in day!! 3 day weekend. YAY!!
I forgot to tell you all, Rachel got her passport! She is leaving Reno at 6am Sunday morning. She will fly from Reno to Los Angeles; then Los Angeles to Philadelphia; then Philadelphia to Tel Aviv! She is so excited!! We are so excited for her. The time went sooooo fast! I can't believe she leaves in just a few days. It will be such a wonderful experience for her. A couple that is going will be getting married while they are there~~they will be getting married on the Sea of Galilee. And thy have asked Rachel to be part of the ceremony. That is so sweet. Please pray for Rachel as the time gets closer. She is getting the normal nervousness; remember, she doesn't know any of the people. She has talked to them on the phone, and in some ways feels like she knows them, but still. Thank you for all your prayers. Please pray for her safety the whole time she is gone. I am not really worried about her, just the normal 'mom' feelings of her being so far away!! Thank you.
Thank you for checking in on David and the Koury Klan. Please continue to pray for all the members of our Osteo family. Thanks. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Every person has 1000 wishes, a cancer patient only has one: to get better.
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Wednesday, October 27, 2010
Sunday, October 24, 2010
Sunday, October 24, 2010
Good evening.
I hope you all had a great weekend. Our was quite busy!! We all had Friday off; Bryon works 4/10s so Friday was his day off, Jennifer and Rachel had their furlough day, and Emilee didn't come so I was off. So we were busy preparing for Lucy's baby shower. We did some shopping, not much, though. We did early voting (glad that's over, and we did our civic duty), and then we went and got our flu shots. They were free, yay!! Then my girls and I did a little bit more shopping, for baby gifts, while Bryon shampooed the carpet in the living room and the (stay with me here) room that used to be the formal dining room but is now the "therapy" room where the treadmill and total trainer are for David to to his PT. I hope I didn't lose anyone there!! Anyway, Bryon worked really hard getting those rooms shampooed. Then he ran out of shampoo, so he had to run to Walmart to get some more. We were up late making sure everything was done. Oh, Rachel sliced the apples and had them ready for the apple pie I needed to make. She put the slices in the fridge to wait for me to make the pie Saturday morning. Then we went to bed. We got up Saturday morning and I made the soup for the shower and put it in the crock pot. Then I put the apple pie in the oven and Rachel and I ran to Walmart; we forgot to get wrapping paper on Friday. When we got home Bryon was vacuuming the freshly-shampooed carpets. Then I mopped the family room floor, and the kitchen and dining room floors. Then Berlynn went into the living room and decided to throw up on the nice clean carpet!! Rachel cleaned that up. The dog coudn't throw up outside, or on a hard floor, could she?!?! Of course not! That would just be too easy for us. Grrrrr. But we were all ready when the guests started arriving, and we had a good time. Lucy is due 3 months from today!! Then today we went to church and we made tacos for lunch. It was good. And the weather has been beautiful! It has rained ALL weekend. Well, all of today for sure. It has been super windy (go figure) and we have loved the weather this weekend. It is gorgeous. We do have a bit of a flood in the backyard, but that is ok. It is just hard to get the chihuahua's to go outside to go potty. Berlynn, she loves all weather!! So it has been a busy, fun, and wet weekend.
We also got rid of another kitten on Saturday~~~one more to go!! Kitten #16 (total number of kittens we have had to get rid of) is the last one left, and NEEDS to go. Bryon put them on Craig's List, that's how #15 was taken, so hopefully someone will want the last one. He is a sweet kitty, we just can't keep him. Any takers?
Well, that is about all that is happening around here. Thanks for visiting and checking in on David and the Koury Klan. Have a wonderful day tomorrow. Thank you for your continued prayers for us and for Sara. God bless you all. We love you.
Kristi and the Koury Klan
For the patients' parents, a cancer diagnosis can launch a balancing act between the toughness needed to hold together the family and demand the best medical care, and the gentleness needed to stay collected and positive with the child. The ordeal of treatments creates a bond among families who go through the experience.
I hope you all had a great weekend. Our was quite busy!! We all had Friday off; Bryon works 4/10s so Friday was his day off, Jennifer and Rachel had their furlough day, and Emilee didn't come so I was off. So we were busy preparing for Lucy's baby shower. We did some shopping, not much, though. We did early voting (glad that's over, and we did our civic duty), and then we went and got our flu shots. They were free, yay!! Then my girls and I did a little bit more shopping, for baby gifts, while Bryon shampooed the carpet in the living room and the (stay with me here) room that used to be the formal dining room but is now the "therapy" room where the treadmill and total trainer are for David to to his PT. I hope I didn't lose anyone there!! Anyway, Bryon worked really hard getting those rooms shampooed. Then he ran out of shampoo, so he had to run to Walmart to get some more. We were up late making sure everything was done. Oh, Rachel sliced the apples and had them ready for the apple pie I needed to make. She put the slices in the fridge to wait for me to make the pie Saturday morning. Then we went to bed. We got up Saturday morning and I made the soup for the shower and put it in the crock pot. Then I put the apple pie in the oven and Rachel and I ran to Walmart; we forgot to get wrapping paper on Friday. When we got home Bryon was vacuuming the freshly-shampooed carpets. Then I mopped the family room floor, and the kitchen and dining room floors. Then Berlynn went into the living room and decided to throw up on the nice clean carpet!! Rachel cleaned that up. The dog coudn't throw up outside, or on a hard floor, could she?!?! Of course not! That would just be too easy for us. Grrrrr. But we were all ready when the guests started arriving, and we had a good time. Lucy is due 3 months from today!! Then today we went to church and we made tacos for lunch. It was good. And the weather has been beautiful! It has rained ALL weekend. Well, all of today for sure. It has been super windy (go figure) and we have loved the weather this weekend. It is gorgeous. We do have a bit of a flood in the backyard, but that is ok. It is just hard to get the chihuahua's to go outside to go potty. Berlynn, she loves all weather!! So it has been a busy, fun, and wet weekend.
We also got rid of another kitten on Saturday~~~one more to go!! Kitten #16 (total number of kittens we have had to get rid of) is the last one left, and NEEDS to go. Bryon put them on Craig's List, that's how #15 was taken, so hopefully someone will want the last one. He is a sweet kitty, we just can't keep him. Any takers?
Well, that is about all that is happening around here. Thanks for visiting and checking in on David and the Koury Klan. Have a wonderful day tomorrow. Thank you for your continued prayers for us and for Sara. God bless you all. We love you.
Kristi and the Koury Klan
For the patients' parents, a cancer diagnosis can launch a balancing act between the toughness needed to hold together the family and demand the best medical care, and the gentleness needed to stay collected and positive with the child. The ordeal of treatments creates a bond among families who go through the experience.
Thursday, October 21, 2010
Thursday, October 21, 2010
Good evening.
Sorry I haven't posted for awhile, it has been rather busy. Bryon was gone from Monday through Wednesday for work. He pretty much went all over the state of Nevada~~~from Carson City to Elko to Las Vegas and back again. All in three days! So I was a single mom for a few days. No biggie, I have been a single mom a LOT in our marriage. He used to travel a lot, now he doesn't so much. Every now and then he has a class he has to go to, or something, but not that often. Anyway, he is home now and things are going as usual.
David went to Bible Study tonight, as usual on Thursday, and loved it, as usual. They tell us that they are having the same battle we deal with every day. They serve dinner to the kids (which is really sweet) but David won't eat!! Last week he did eat an enchilada, but this week he ate NOTHING!! They tell us they beg, plead, 'threaten', bribe, etc, him to eat. . . . . no go! Today he wouldn't eat breakfast; other than a piece of toast! It isn't that he isn't hungry, just nothing sounds good to him; not much tastes good to him anymore. We threaten the Megace, which he absolutely hates, but all the Megace does is make him hungry. He does get hungry, just doesn't want to eat. So the Megace really won't help. He needs new taste buds! That blasted chemo really did a number on him. They warned us that this could happen, I was just hoping that it wouldn't.*sigh* It is a battle that we will keep fighting as long as we have to. Poor kid. Please pray that he is able to eat better. Thanks.
Sara came through her surgery ok, she is home. She is in some pain, and she is nauseous. It is such a balancing act with pain meds and eating and nausea. She also has another 'mass' on her upper thigh, near the sight of her original tumor. She had a biopsy on it, don't know the results of that yet. Please pray for her. We all know this can happen, it just sucks when it does. Pray that she can recover and heal from this latest development, and that she can once again be cancer free! Thank you so much for your prayers.
We will be busy tomorrow. We need to shampoo carpets, mop floors, and do some real good cleaning because on Saturday we are having a baby shower for Lucy at our house! We are so excited. It is getting close. She is due in just over 3 months!! Three months and 2 days from tomorrow. The time has been going so fast. I can't wait to meet that little person growing in her body. We have been waiting so long for this. The shower will be fun, I am sure. It is supposed to be cold, so we are having soups, bread, hot cider, coffee, pumpkin cheesecake, pumpkin squares, apple pie, punch, nice belly-warming 'comfort food.' Can't wait! I know it will be fun.
Tomorrow we are also going to vote, shop, and get flu shots. Oh, and try to get rid of the last two kittens at the pound. Please pray that we are able to get rid of them. We cannot have them here anymore. I want my spare room. The kittens are 3 1/2 months old, and we cannot afford to give them all their shots and whatever. If we can give them to the pound that would take the burden off us. Please pray that the pound will take them!! Thanks.
Well, that is all that is happening around here. Thank you for all your prayers. Thank you for checking in on David and the Koury Klan. Thank you for your support. God bless you all. We love you. {{hugs}}
Kristi and the Koury Klan
“There has been a significant lack of progress during the last two decades in treating osteosarcoma,” said Ian Lewis, Professor of Cancer Studies at St. James University Hospital in Leeds, England
Sorry I haven't posted for awhile, it has been rather busy. Bryon was gone from Monday through Wednesday for work. He pretty much went all over the state of Nevada~~~from Carson City to Elko to Las Vegas and back again. All in three days! So I was a single mom for a few days. No biggie, I have been a single mom a LOT in our marriage. He used to travel a lot, now he doesn't so much. Every now and then he has a class he has to go to, or something, but not that often. Anyway, he is home now and things are going as usual.
David went to Bible Study tonight, as usual on Thursday, and loved it, as usual. They tell us that they are having the same battle we deal with every day. They serve dinner to the kids (which is really sweet) but David won't eat!! Last week he did eat an enchilada, but this week he ate NOTHING!! They tell us they beg, plead, 'threaten', bribe, etc, him to eat. . . . . no go! Today he wouldn't eat breakfast; other than a piece of toast! It isn't that he isn't hungry, just nothing sounds good to him; not much tastes good to him anymore. We threaten the Megace, which he absolutely hates, but all the Megace does is make him hungry. He does get hungry, just doesn't want to eat. So the Megace really won't help. He needs new taste buds! That blasted chemo really did a number on him. They warned us that this could happen, I was just hoping that it wouldn't.*sigh* It is a battle that we will keep fighting as long as we have to. Poor kid. Please pray that he is able to eat better. Thanks.
Sara came through her surgery ok, she is home. She is in some pain, and she is nauseous. It is such a balancing act with pain meds and eating and nausea. She also has another 'mass' on her upper thigh, near the sight of her original tumor. She had a biopsy on it, don't know the results of that yet. Please pray for her. We all know this can happen, it just sucks when it does. Pray that she can recover and heal from this latest development, and that she can once again be cancer free! Thank you so much for your prayers.
We will be busy tomorrow. We need to shampoo carpets, mop floors, and do some real good cleaning because on Saturday we are having a baby shower for Lucy at our house! We are so excited. It is getting close. She is due in just over 3 months!! Three months and 2 days from tomorrow. The time has been going so fast. I can't wait to meet that little person growing in her body. We have been waiting so long for this. The shower will be fun, I am sure. It is supposed to be cold, so we are having soups, bread, hot cider, coffee, pumpkin cheesecake, pumpkin squares, apple pie, punch, nice belly-warming 'comfort food.' Can't wait! I know it will be fun.
Tomorrow we are also going to vote, shop, and get flu shots. Oh, and try to get rid of the last two kittens at the pound. Please pray that we are able to get rid of them. We cannot have them here anymore. I want my spare room. The kittens are 3 1/2 months old, and we cannot afford to give them all their shots and whatever. If we can give them to the pound that would take the burden off us. Please pray that the pound will take them!! Thanks.
Well, that is all that is happening around here. Thank you for all your prayers. Thank you for checking in on David and the Koury Klan. Thank you for your support. God bless you all. We love you. {{hugs}}
Kristi and the Koury Klan
“There has been a significant lack of progress during the last two decades in treating osteosarcoma,” said Ian Lewis, Professor of Cancer Studies at St. James University Hospital in Leeds, England
Sunday, October 17, 2010
Sunday, October 17, 2010
Good evening.
We are home from camping. Actually, we have been home for quite some time~~~all day in fact. We left early, I will let you in on the weekend. Here goes:
Friday morning Bryon, Emilee, and I went out to the campground to set up the trailer. The campground is only 10 minutes from our house. So we got the trailer set up; there is a bit more to the story, but I won't bore you with those details. Anyway, after getting the trailer set up (David was home doing school) we came home and had lunch. David was supposed to have an Elluminate session with his Driver's Ed class, but the system was down, so it didn't happen. So Bryon went to the store to get the few things we needed; like ice, pickles, etc. while I got my nails done. Then we loaded up the dogs, the ice chest, us, and went out to the campsite. Jennifer and Rachel came after work and we bbq'd burgers. I really thought it would be a perfect time of year to go to Washoe Lake for camping. Well, not so much. As I told my facebook friends, we were miserable!! I just didn't take into consideration that the campground is FULL of rabbit brush!! Granted, most of it was dead, but the pollen is still in the air. I did not sleep much all night, I couldn't breathe! And I am taking sudafed and claritin!! Poor David and Jennifer sneezed all day Saturday, and we were all (with the exception of Rachel) stuffed up! My nose and eyes were itching soooooo badly. My husband even told me I looked awful! He didn't say I looked like I felt awful, but I looked awful. I took Benadryl last night hoping I would sleep, it usually knocks me out! Well, I still didn't sleep much. So we left early this morning and came home. Oh, Jennifer and Rachel left Saturday night because they were teaching Sunday School at church this morning. We are all doing much better now that we are home. We are still suffering somewhat, but we are doing so much better. So today we did a little bit of shopping, and we defrosted the big commercial freezer in the garage. Bryon spent a lot of time cleaning it once it defrosted. He did a great job, it looks brand new inside. We are all pretty tired~~~basically pretty worn out. My house is not put together at all right now, but that is ok. The housework waits for me, it never seems to get done by itself. It will get done, I am just too darn tired to do it right now!
David is feeling ok, just the suffering from the stupid allergies. Oh, it rained quite a bit today, so hopefully the pollen is knocked out of the air. It is supposed to rain quite a bit this week, and it will be getting down below freezing, so the rabbit brush will be dead soon!! YAY!! David's nose is so sore from him blowing it so much, poor kid. But he is feeling good otherwise. He is sad that it is possible that we are done camping for the year. We have some busy weekends coming up, and it will soon be too cold to go. Oh well. We will go next year. He really enjoys going, and I love to watch him enjoy himself. Overall, he is doing good.
Thank you for checking in on David and the Koury Klan. Thank you for your continued prayers and your love. God bless you all. We love you.
Kristi and the Koury Klan
We are home from camping. Actually, we have been home for quite some time~~~all day in fact. We left early, I will let you in on the weekend. Here goes:
Friday morning Bryon, Emilee, and I went out to the campground to set up the trailer. The campground is only 10 minutes from our house. So we got the trailer set up; there is a bit more to the story, but I won't bore you with those details. Anyway, after getting the trailer set up (David was home doing school) we came home and had lunch. David was supposed to have an Elluminate session with his Driver's Ed class, but the system was down, so it didn't happen. So Bryon went to the store to get the few things we needed; like ice, pickles, etc. while I got my nails done. Then we loaded up the dogs, the ice chest, us, and went out to the campsite. Jennifer and Rachel came after work and we bbq'd burgers. I really thought it would be a perfect time of year to go to Washoe Lake for camping. Well, not so much. As I told my facebook friends, we were miserable!! I just didn't take into consideration that the campground is FULL of rabbit brush!! Granted, most of it was dead, but the pollen is still in the air. I did not sleep much all night, I couldn't breathe! And I am taking sudafed and claritin!! Poor David and Jennifer sneezed all day Saturday, and we were all (with the exception of Rachel) stuffed up! My nose and eyes were itching soooooo badly. My husband even told me I looked awful! He didn't say I looked like I felt awful, but I looked awful. I took Benadryl last night hoping I would sleep, it usually knocks me out! Well, I still didn't sleep much. So we left early this morning and came home. Oh, Jennifer and Rachel left Saturday night because they were teaching Sunday School at church this morning. We are all doing much better now that we are home. We are still suffering somewhat, but we are doing so much better. So today we did a little bit of shopping, and we defrosted the big commercial freezer in the garage. Bryon spent a lot of time cleaning it once it defrosted. He did a great job, it looks brand new inside. We are all pretty tired~~~basically pretty worn out. My house is not put together at all right now, but that is ok. The housework waits for me, it never seems to get done by itself. It will get done, I am just too darn tired to do it right now!
David is feeling ok, just the suffering from the stupid allergies. Oh, it rained quite a bit today, so hopefully the pollen is knocked out of the air. It is supposed to rain quite a bit this week, and it will be getting down below freezing, so the rabbit brush will be dead soon!! YAY!! David's nose is so sore from him blowing it so much, poor kid. But he is feeling good otherwise. He is sad that it is possible that we are done camping for the year. We have some busy weekends coming up, and it will soon be too cold to go. Oh well. We will go next year. He really enjoys going, and I love to watch him enjoy himself. Overall, he is doing good.
Thank you for checking in on David and the Koury Klan. Thank you for your continued prayers and your love. God bless you all. We love you.
Kristi and the Koury Klan
Friday, October 15, 2010
Ok, I have a quick minute to update before we leave.
I got the reports in the mail today. Didn't have a chance to call Connie, yet, so the timing was perfect. Here are the findings~~~
"Stable-appearing chest CT scan." Yay! And for the bone scan, "Stable examination. Abnormal focal activity in the right 7th posterior rib, consistent with healing fracture (from when they broke his rib for the thoracotomy). Stable findings associated with prosthesis in right distal femur." Another yay! The lab work all looks good, with the exception of his platelets; they are low. Don't really understand why......The 'normal' range for platelets is 150-400 TH/MM3; and David's are 137. Not sure what we do about that.......maybe nothing. *sigh* There is always something!!
Gotta run. Have a good weekend! We will enjoy our camping trip, I am sure. Thanks for the prayers, they work! God bless you all. We love you. {{hugs}}
Kristi and the Koury Klan
I got the reports in the mail today. Didn't have a chance to call Connie, yet, so the timing was perfect. Here are the findings~~~
"Stable-appearing chest CT scan." Yay! And for the bone scan, "Stable examination. Abnormal focal activity in the right 7th posterior rib, consistent with healing fracture (from when they broke his rib for the thoracotomy). Stable findings associated with prosthesis in right distal femur." Another yay! The lab work all looks good, with the exception of his platelets; they are low. Don't really understand why......The 'normal' range for platelets is 150-400 TH/MM3; and David's are 137. Not sure what we do about that.......maybe nothing. *sigh* There is always something!!
Gotta run. Have a good weekend! We will enjoy our camping trip, I am sure. Thanks for the prayers, they work! God bless you all. We love you. {{hugs}}
Kristi and the Koury Klan
Thursday, October 14, 2010
Thursday, October 14, 2010
Good evening.
We are still awaiting news. I will most likely call Connie tomorrow. Please continue to pray that the suspicious spot they saw is just 'shine through' from the ribs. We have a copy of the bone scan and the chest CT, and in the chest CT there is an arrow pointing to something that is in 4 slides. They don't point an arrow at nothing. They point an arrow at something they want to keep an eye on. Please pray. Thank you.
We are still awaiting news. I will most likely call Connie tomorrow. Please continue to pray that the suspicious spot they saw is just 'shine through' from the ribs. We have a copy of the bone scan and the chest CT, and in the chest CT there is an arrow pointing to something that is in 4 slides. They don't point an arrow at nothing. They point an arrow at something they want to keep an eye on. Please pray. Thank you.
And while we are on the subject of prayer, please pray for Sara. She had scans on Monday, also, and they found a new lung met. She is scheduled for surgery for another thoracotomy on Tuesday. They are going in through her old scar. Please pray that they are able to get that met out, and any other mets they might find. Please pray that the met(s) are all DEAD!! Also, please pray that they can figure out what the next course of treatment is for Sara. I know that when we talked to Connie, she told us that if the mets in David's lungs that they are watching should need to be removed, that is all they will do. No more chemo for David. But I don't know if that is the case with Sara. Thank you for your prayers for her.
I share the same sentiment with a lot of my facebook friends; who also happen to be parents of a child with cancer. People get so offended when we want the GOLD to be as important as the PINK! We focus soooooo much on ONE cancer. There are tons (unfortunately) of other cancers out there. My passion is Childhood Cancer for a couple reasons. One, is of course because my son has Childhood Cancer. Another reason is it is frustrating that children get so little funding! The vast majority of women (and men) diagnosed with breast cancer are successfully treated. Sadly, some lose their battle to this disease. I don't know how to say this so as not to offend, so I apologize in advance if I do. We need to keep in mind just how tragic it is when a child dies. It is sad when an adult dies, of course, but when a child dies we lose generations of people. We lose their children, and grandchildren, and great-grandchildren, etc. We don't lose someone who has already had their families, we lose someone who never had a chance to have their families. Please, again, I don't mean to offend. Life is precious, and one isn't any more important than another. It just makes a huge impact on society when generations are lost. That is why it makes me so angry and frustrated that children get so little funding. I am re-posting the pie chart of where the money goes that is raised from the American Cancer Society. Please keep the word and awareness out there!! I thank you, my family thanks you, and all the possible saved generations thank you.
I share the same sentiment with a lot of my facebook friends; who also happen to be parents of a child with cancer. People get so offended when we want the GOLD to be as important as the PINK! We focus soooooo much on ONE cancer. There are tons (unfortunately) of other cancers out there. My passion is Childhood Cancer for a couple reasons. One, is of course because my son has Childhood Cancer. Another reason is it is frustrating that children get so little funding! The vast majority of women (and men) diagnosed with breast cancer are successfully treated. Sadly, some lose their battle to this disease. I don't know how to say this so as not to offend, so I apologize in advance if I do. We need to keep in mind just how tragic it is when a child dies. It is sad when an adult dies, of course, but when a child dies we lose generations of people. We lose their children, and grandchildren, and great-grandchildren, etc. We don't lose someone who has already had their families, we lose someone who never had a chance to have their families. Please, again, I don't mean to offend. Life is precious, and one isn't any more important than another. It just makes a huge impact on society when generations are lost. That is why it makes me so angry and frustrated that children get so little funding. I am re-posting the pie chart of where the money goes that is raised from the American Cancer Society. Please keep the word and awareness out there!! I thank you, my family thanks you, and all the possible saved generations thank you.
We are going camping tomorrow. We will come home on Sunday. It might be our last camping trip for the year, we will see. We are pretty excited to go! We will leave after David gets off school. He has an Elluminate class at 1, so we will be going after that.
It is late, and I am tired. Thank you for visiting and checking in on David and the Koury Klan. If I find out the results of David's scans before we leave, I will post and let you know. Thanks for praying for us, and for Sara and her family. Thank you for being there for us. Thank you for your love, prayers, support, and for the deposits in David's account. God bless you all. We love you.
Kristi and the Koury Klan
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The National Cancer Institute’s (NCI) federal budget was $4.6 billion. Of that, breast cancer received 12%, prostate cancer received 7%, and all 12 major groups of pediatric cancers combined received less than 3%.
Monday, October 11, 2010
Monday, October 11, 2010
Good evening.
It has been a long weekend. I was unable to update because the hotel we stayed in had no free internet. I suppose I could have updated via my iPhone......but I am not that good at it that way.
Anyway, the scans are over, yay. We don't have any official results yet, Connie said maybe as early as tomorrow. They did have to do some extra bone scans of David's right side, something was showing between a couple of ribs. Please pray it is nothing. It could be an active lung met, and it could just be 'shine through' from the end of the front of his ribs (to the back). The preliminary report on the CT scan is that everything is stable; so that is very good news! We are hanging on to the suspicious spot being just shine through. He had shine through last scan, but from his collar bone! Any of you who have been with us through this whole journey know that I have called David our 'curve-ball thrower' for the past 3 years~~it appears he continues to be. He can't just do anything the easy way, he has to throw the curve balls that freak us out; and keep us trusting God!!
It was a rough weekend for him. None of us got much sleep. He even slept on the way home today, and he does everything in his power NOT to sleep in the car. He hates to take 'naps' because he says he is missing part of his day. We try to tell him if he sleeps in the car then when he wakes up we will be closer to home. But he is a goofball and won't sleep. So the fact that he slept on the way home says a lot about just how tired he is!! He slept on the way home when he was receiving chemo (when he wasn't vomiting), but that was different. He was so drugged up then that he couldn't stay awake!! And that is also partly why he won't nap now. Anyway, it was a rough weekend, and we are all glad it is over.
David also had to have an echo, so we will find out the results of that, too. He has to have one every year, as heart damage from the chemo can show up years later. I will post when I hear any results.
Connie said he looks good, and she doesn't need to see him for 4 months! His scans are now on the every four month schedule! We have graduated from the every 3 months! They will continue to do lab work when they do scans. Poor kid still has to keep getting poked!! But now it is only 3 times a year instead of 4!! YAY! So that is good news. We are nervous with the every 4 months, but we just have to trust that they know what they are doing.
Sorry we missed you, Autumn. We really wanted to see you before you moved! Have a safe trip, and I know we will keep in touch. You mean a lot to us!
That is all the news for now. Have a good evening, and I will post when I know anything definite. God bless you all. We love you.
Kristi and the Koury Klan
Teenagers and young adults aged 15-22 have the lowest cancer survival rate of any age group.
It has been a long weekend. I was unable to update because the hotel we stayed in had no free internet. I suppose I could have updated via my iPhone......but I am not that good at it that way.
Anyway, the scans are over, yay. We don't have any official results yet, Connie said maybe as early as tomorrow. They did have to do some extra bone scans of David's right side, something was showing between a couple of ribs. Please pray it is nothing. It could be an active lung met, and it could just be 'shine through' from the end of the front of his ribs (to the back). The preliminary report on the CT scan is that everything is stable; so that is very good news! We are hanging on to the suspicious spot being just shine through. He had shine through last scan, but from his collar bone! Any of you who have been with us through this whole journey know that I have called David our 'curve-ball thrower' for the past 3 years~~it appears he continues to be. He can't just do anything the easy way, he has to throw the curve balls that freak us out; and keep us trusting God!!
It was a rough weekend for him. None of us got much sleep. He even slept on the way home today, and he does everything in his power NOT to sleep in the car. He hates to take 'naps' because he says he is missing part of his day. We try to tell him if he sleeps in the car then when he wakes up we will be closer to home. But he is a goofball and won't sleep. So the fact that he slept on the way home says a lot about just how tired he is!! He slept on the way home when he was receiving chemo (when he wasn't vomiting), but that was different. He was so drugged up then that he couldn't stay awake!! And that is also partly why he won't nap now. Anyway, it was a rough weekend, and we are all glad it is over.
David also had to have an echo, so we will find out the results of that, too. He has to have one every year, as heart damage from the chemo can show up years later. I will post when I hear any results.
Connie said he looks good, and she doesn't need to see him for 4 months! His scans are now on the every four month schedule! We have graduated from the every 3 months! They will continue to do lab work when they do scans. Poor kid still has to keep getting poked!! But now it is only 3 times a year instead of 4!! YAY! So that is good news. We are nervous with the every 4 months, but we just have to trust that they know what they are doing.
Sorry we missed you, Autumn. We really wanted to see you before you moved! Have a safe trip, and I know we will keep in touch. You mean a lot to us!
That is all the news for now. Have a good evening, and I will post when I know anything definite. God bless you all. We love you.
Kristi and the Koury Klan
Teenagers and young adults aged 15-22 have the lowest cancer survival rate of any age group.
Friday, October 8, 2010
Friday, October 8, 2010
Three years ago.....
Three years ago today we took David for his 1st MRI. Three years ago. Hindsight is 20/20, and we should have figured out something was up. All the techs were chatty and friendly when we were there.....at first. They couldn't get David to calm down and lay still, so they told us they might have to sedate him. But they said first they will let one of us go back with him and stay with him to try to calm him down. I jumped up and went to him. He was in a lot of pain, and scared, so that is why he couldn't lay still. Plus, he was a little freaked out by the noise of the MRI machine. The only time he had ever been in this kind of situation (sort of) was when he was 17 months old and broke his arm. He had never had any other tests like this done, and he was scared. Anyway, the techs were still friendly and talking and trying to get David to relax. They were joking with David and trying to lighten the situation. They were told that the urgent care doctor suspected a sprain, so I assume that is what they were looking for. Well, almost at the end of the MRI they got quiet. Then when they were done they just kept asking us lots of questions; when did the pain start, when did the swelling start, when did we take him to urgent care, when did we take him to our primary care physician, what have we done to 'treat' the knee, how have we tried to manage the pain, etc. We were there for a few hours! We didn't understand what was going on; then. Now we do! They panicked when they saw the tumor in his knee, but we didn't know that at the time. We found out the next morning, when our primary care physician called and told me to take David NOW for an x-ray, because he has a bone tumor. So, three years ago tomorrow our lives were changed FOREVER!! Even though David wasn't 'officially' diagnosed until 10/18/07; we were told about the bone tumor on 10/9/07. I don't know if I will post tomorrow, so I decided to tell you today where we were three years ago. This has been a very long three years, let me tell you. I have to admit I had never heard of Osteosarcoma before David was diagnosed with it! We also found out on 10/18/07 that he was metastatic~~~it had spread to his lungs. That was the day of the biopsy on his knee, and the surgeon told us that it was not our fault, we didn't wait 'too long' to bring him in; this cancer was just very aggressive in David. It is an aggressive cancer, but it reacts different in each child. Which is partly why it is still a mostly unknown cancer. There is no rhyme or reason to how it responds and/or reacts. And that is why we are so scared most of the time. We all put up a great front to people; but if they could see our hearts and our fear, they would be surprised! Yes, we know that our precious children are in God's hands; but we also know from experience that it doesn't mean they will live! We have watched way too many of our precious Osteo family warriors die of this dreaded and horrible monster!! We also know from personal experience that it also doesn't mean that our children won't suffer! Because let me tell you, David has suffered! A LOT!! So, that is where we were three years ago today. Two years ago today David was in the hospital with his last chemo! One year ago this month we found out he has new spots in his lungs!
.......................Bone Scan............................................................. CT Scan
Three years ago today we took David for his 1st MRI. Three years ago. Hindsight is 20/20, and we should have figured out something was up. All the techs were chatty and friendly when we were there.....at first. They couldn't get David to calm down and lay still, so they told us they might have to sedate him. But they said first they will let one of us go back with him and stay with him to try to calm him down. I jumped up and went to him. He was in a lot of pain, and scared, so that is why he couldn't lay still. Plus, he was a little freaked out by the noise of the MRI machine. The only time he had ever been in this kind of situation (sort of) was when he was 17 months old and broke his arm. He had never had any other tests like this done, and he was scared. Anyway, the techs were still friendly and talking and trying to get David to relax. They were joking with David and trying to lighten the situation. They were told that the urgent care doctor suspected a sprain, so I assume that is what they were looking for. Well, almost at the end of the MRI they got quiet. Then when they were done they just kept asking us lots of questions; when did the pain start, when did the swelling start, when did we take him to urgent care, when did we take him to our primary care physician, what have we done to 'treat' the knee, how have we tried to manage the pain, etc. We were there for a few hours! We didn't understand what was going on; then. Now we do! They panicked when they saw the tumor in his knee, but we didn't know that at the time. We found out the next morning, when our primary care physician called and told me to take David NOW for an x-ray, because he has a bone tumor. So, three years ago tomorrow our lives were changed FOREVER!! Even though David wasn't 'officially' diagnosed until 10/18/07; we were told about the bone tumor on 10/9/07. I don't know if I will post tomorrow, so I decided to tell you today where we were three years ago. This has been a very long three years, let me tell you. I have to admit I had never heard of Osteosarcoma before David was diagnosed with it! We also found out on 10/18/07 that he was metastatic~~~it had spread to his lungs. That was the day of the biopsy on his knee, and the surgeon told us that it was not our fault, we didn't wait 'too long' to bring him in; this cancer was just very aggressive in David. It is an aggressive cancer, but it reacts different in each child. Which is partly why it is still a mostly unknown cancer. There is no rhyme or reason to how it responds and/or reacts. And that is why we are so scared most of the time. We all put up a great front to people; but if they could see our hearts and our fear, they would be surprised! Yes, we know that our precious children are in God's hands; but we also know from experience that it doesn't mean they will live! We have watched way too many of our precious Osteo family warriors die of this dreaded and horrible monster!! We also know from personal experience that it also doesn't mean that our children won't suffer! Because let me tell you, David has suffered! A LOT!! So, that is where we were three years ago today. Two years ago today David was in the hospital with his last chemo! One year ago this month we found out he has new spots in his lungs!
Now that he has scans on Monday,
.................Bone Scan......................................................... CT Scan
we are just a wee bit nervous! Actually, we are suffering quite a bit from scanxiety! We do not know what is going on in his body/lungs. Please pray that his scans come back stable at the 'worst' and clear at the 'best!' We don't even want to think that something is going on that will be detrimental to his health. Thank you so much for all your prayers. Thank you for being there for us. Thank you for bearing with us these last 3 years.
Please continue to pray for all our Osteo family members. I know you don't know all their names, but God know who they are. Thank you for praying for them, too.
I will post as soon as I find out anything about David's scans. We have to be at Oakland Children's Hospital at 8:30: injection for bone scan at 9, CT scan at 10, oncology appointment at 11, and bone scan at 12. It will be a busy morning. We were unable to get our 'usual' hotel, so we will be staying in Walnut Creek; a bit further from the hospital. We will have to leave earlier than we usually do to get to the hospital, we are further away and we want to beat the traffic! I don't miss that traffic! Please pray for our safety, too. Thank you so much. I will let you know as soon as I can.
Lucy went to the doctor today; baby is doing great! It is growing and healthy. Everything is going as it should! She will be 25 weeks along on Monday. We are all so excited! We can't wait for that baby to join our family! Thank you for your continued prayers for Jeremy and Lucy and their precious bundle of joy!
Thank you for visiting and checking in on David and the Koury Klan. Thank you for listening and for being there. {{hugs}}
Kristi and the Koury Klan
Attempts to detect childhood cancers at an earlier stage, when the disease would react more favorably to treatment, have largely failed. Young patients often have a more advanced stage of cancer when first diagnosed. (Approximately 20% of adults with cancer show evidence the disease has spread, yet almost 80% of children show that the cancer has spread to distant sites at the time of diagnosis).
Please continue to pray for all our Osteo family members. I know you don't know all their names, but God know who they are. Thank you for praying for them, too.
I will post as soon as I find out anything about David's scans. We have to be at Oakland Children's Hospital at 8:30: injection for bone scan at 9, CT scan at 10, oncology appointment at 11, and bone scan at 12. It will be a busy morning. We were unable to get our 'usual' hotel, so we will be staying in Walnut Creek; a bit further from the hospital. We will have to leave earlier than we usually do to get to the hospital, we are further away and we want to beat the traffic! I don't miss that traffic! Please pray for our safety, too. Thank you so much. I will let you know as soon as I can.
Lucy went to the doctor today; baby is doing great! It is growing and healthy. Everything is going as it should! She will be 25 weeks along on Monday. We are all so excited! We can't wait for that baby to join our family! Thank you for your continued prayers for Jeremy and Lucy and their precious bundle of joy!
Thank you for visiting and checking in on David and the Koury Klan. Thank you for listening and for being there. {{hugs}}
Kristi and the Koury Klan
Attempts to detect childhood cancers at an earlier stage, when the disease would react more favorably to treatment, have largely failed. Young patients often have a more advanced stage of cancer when first diagnosed. (Approximately 20% of adults with cancer show evidence the disease has spread, yet almost 80% of children show that the cancer has spread to distant sites at the time of diagnosis).
Monday, October 4, 2010
Monday, October 4, 2010
First off, Happy Birthday Mike and Ashley! Sorry I didn't send a card; I hope you two had a great day!
Today was an absolutely beautiful day! David absolutely loved today. Last night was great, according to him, too. We had lightening, thunder, and rain during the night. Then it pretty much rained all day today. We had lightening, and VERY loud thunder today. And it poured for awhile. And there is snow on the mountains, still! And we had a fire in the woodstove. It was a perfect day! David was so excited to have the day we had today. And, as is fitting for the day, I made Chunky Chicken Potato Soup for dinner!! It was a perfect dinner for a cold, rainy day.
And we got some firewood today! Thank you, Sharon, for buying the wood for us. It was too rainy to stack it, so it is in the garage. Now our garage smells like Christmas!! The cars are all parked outside getting washed, lol. God is washing our cars for us. It is raining right now as I write this. It is supposed to rain and storm tomorrow, too. Our highs are only in the 50's! We are loving it!! We were so ready for Fall, and I think it is finally here! YAY!
We are getting nervous about David's scans coming up in a week. We just pray that there are no more surprises, and that the lung mets are still stable! I do get frustrated when people say how 'good' David looks. He looked good when the cancer was growing in his young body, too! How he looks is just not an indication of what is happening in his lungs. I know people mean well, and I don't hold it against them when they say that, it just frustrates me is all. Please pray that David's scans come back stable. Thank you.
Thanks for visiting and checking in on David and the Koury Klan. Have a good evening, and thank you for all your prayers. God bless you all. We love you.
Kristi and the Koury Klan
Despite the success of chemotherapy for osteosarcoma, it has one of the lowest survival rates for pediatric cancer.
Today was an absolutely beautiful day! David absolutely loved today. Last night was great, according to him, too. We had lightening, thunder, and rain during the night. Then it pretty much rained all day today. We had lightening, and VERY loud thunder today. And it poured for awhile. And there is snow on the mountains, still! And we had a fire in the woodstove. It was a perfect day! David was so excited to have the day we had today. And, as is fitting for the day, I made Chunky Chicken Potato Soup for dinner!! It was a perfect dinner for a cold, rainy day.
And we got some firewood today! Thank you, Sharon, for buying the wood for us. It was too rainy to stack it, so it is in the garage. Now our garage smells like Christmas!! The cars are all parked outside getting washed, lol. God is washing our cars for us. It is raining right now as I write this. It is supposed to rain and storm tomorrow, too. Our highs are only in the 50's! We are loving it!! We were so ready for Fall, and I think it is finally here! YAY!
We are getting nervous about David's scans coming up in a week. We just pray that there are no more surprises, and that the lung mets are still stable! I do get frustrated when people say how 'good' David looks. He looked good when the cancer was growing in his young body, too! How he looks is just not an indication of what is happening in his lungs. I know people mean well, and I don't hold it against them when they say that, it just frustrates me is all. Please pray that David's scans come back stable. Thank you.
Thanks for visiting and checking in on David and the Koury Klan. Have a good evening, and thank you for all your prayers. God bless you all. We love you.
Kristi and the Koury Klan
Despite the success of chemotherapy for osteosarcoma, it has one of the lowest survival rates for pediatric cancer.
Saturday, October 2, 2010
Saturday, October 2, 2010
Happy October!
Well, September is over, and so is Childhood Cancer Awareness month. Sadly, Childhood Cancer is NOT over~~~far from it! We still need awareness and funding to find a cure. Every month is Childhood Cancer Awareness month to us!!
Things are going ok. David is still not really eating. When I make something he likes, he will eat a lot (relatively speaking) of it. The one thing he really likes is a specific brand of ice cream. The only thing is, the only place we can find this ice cream is at Winco in Reno!! It is Tillamook ice cream. His favorite flavor is Tillamook Mudslide. It seems that every time we go to Reno, we stop at Winco; but there isn't always his favorite flavor. But he does like the Rocky Road, too. He doesn't like ice cream; with the exception of Tillamook brand. It is a really good ice cream~~really creamy. So, today Rachel and I went to Reno and we got him some ice cream. Bryon went golfing with some friends from work, and he invited Pat from church. They had a good time. And Rachel and I had a good time together. So the day was busy, but fun.
The weather is typical Northern Nevada!! We have had record heat this past week~~in the 90's! Then today started out warm, and then this afternoon it started raining! Thunder, lightening, and LOTS of rain! We are really enjoying the very cool weather. There is even snow on the mountains around us! The rain was so wonderful. We are hoping the rain knocked the pollen out of the air! Rain is in the forecast for the rest of the week, off and on, so that is wonderful. Allergies~~~go go away!!
Well, that is about it for the weekend. Thanks for visiting and checking in on David. Have a good rest of your weekend. God bless you all. We love you.
Kristi and the Koury Klan
"We have a multi-billion dollar industry that is killing people, right and left, just for financial gain. Their idea of research is to see whether two doses of this poison is better than three doses of that poison."—Glen Warner, M.D. oncologist
Well, September is over, and so is Childhood Cancer Awareness month. Sadly, Childhood Cancer is NOT over~~~far from it! We still need awareness and funding to find a cure. Every month is Childhood Cancer Awareness month to us!!
Things are going ok. David is still not really eating. When I make something he likes, he will eat a lot (relatively speaking) of it. The one thing he really likes is a specific brand of ice cream. The only thing is, the only place we can find this ice cream is at Winco in Reno!! It is Tillamook ice cream. His favorite flavor is Tillamook Mudslide. It seems that every time we go to Reno, we stop at Winco; but there isn't always his favorite flavor. But he does like the Rocky Road, too. He doesn't like ice cream; with the exception of Tillamook brand. It is a really good ice cream~~really creamy. So, today Rachel and I went to Reno and we got him some ice cream. Bryon went golfing with some friends from work, and he invited Pat from church. They had a good time. And Rachel and I had a good time together. So the day was busy, but fun.
The weather is typical Northern Nevada!! We have had record heat this past week~~in the 90's! Then today started out warm, and then this afternoon it started raining! Thunder, lightening, and LOTS of rain! We are really enjoying the very cool weather. There is even snow on the mountains around us! The rain was so wonderful. We are hoping the rain knocked the pollen out of the air! Rain is in the forecast for the rest of the week, off and on, so that is wonderful. Allergies~~~go go away!!
Well, that is about it for the weekend. Thanks for visiting and checking in on David. Have a good rest of your weekend. God bless you all. We love you.
Kristi and the Koury Klan
"We have a multi-billion dollar industry that is killing people, right and left, just for financial gain. Their idea of research is to see whether two doses of this poison is better than three doses of that poison."—Glen Warner, M.D. oncologist
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