Good evening. Sorry I haven't updated for a few days. I have been busy trying to get ready to go camping.
David had PT on Wednesday in the office; and today in the pool. He did very well both days. I keep thinking that he will get rid of the limp, because he is so much more even with his leg lengths. But I guess not. Maybe he will always have that limp, I don't know. His leg is getting stronger, but I know it will never be the same. I just was hoping I was wrong. Oh well. David is such a trooper. He is trying to live life to the fullest. I am proud of him.
Today was a very busy day. After PT David and I had errands to run. We had to get all the food we needed for camping for a week. I took him with me so he could pick out the food he wants to eat. I wanted to make sure I had the things he wanted. He is losing weight, and I want to make sure he eats!! Then I had to get some inexpensive pans for the trailer. I only have skillets, not saucepans. So I needed to get some saucepans. I found a 7 piece set for less than $20!! I was so happy. It isn't the 'best' set of pans, but it is for the trailer, not everyday use. Then Jeremy and Lucy came over for dinner. So today was a very busy day.
I have a specific prayer request that I am requesting of you. I can't tell you what it is, but God knows what it is. Please pray that it all works out. If it doesn't, it could be very devastating for us. Please, please pray for us. Thank you.
Thank you for checking in on us. Thank you for your love, prayers, and support. Please keep us in your prayers this week as I won't be able to update. Please pray that David and I have a good time. Thank you, again, so very much. Have a good night. God bless you all. We love you.
Kristi and the Koury Klan
Cancer in childhood occurs regularly, randomly, and spares no ethnic group, socioeconomic class, or geographic region.
Thursday, July 23, 2009
Monday, July 20, 2009
Monday, July 20, 2009
Good evening. It was another hot, summer day today. I am ready for fall, my favorite season.
David did ok in PT today. He is such a trooper, he just does whatever he is asked to do. He was a little bit sore today; yesterday in the pool his knee bent too far for his liking. He doesn't remember what happened, but he knows it hurt. So his knee was a little bit tender today. But he did very well. The older (than David) gentleman that is there when David is there just watches David and shakes his head. He can't believe what David does. He says me and Linda torture David! He is just amazed at David. But then, so are we. Overall, he did very well in PT today.
We went in the pool again this evening. It felt so nice and refreshing. And it was actually cold when we got out! Well, the wind was cold on our wet bodies. David wants me and him to go in after lunch tomorrow; we will see
We got David's High School transcript today. We had to get it because we had to pull him out of the school he was in~~~we can no longer afford to send him to a private school. So we have to fax the transcript to his new school. We didn't really know exactly how he was doing~~~they never sent us report cards. Well, we are very proud of him. He started this school just a couple months before he was diagnosed with cancer. He only got 2 C's in the entire 4 semesters he was there. All the rest were A's and B's!! Considering he is a year ahead of his age; he was doing an accelerated curriculum; and he has had 2 years from hell; we are extremely pleased! His GPA for the 2 years is 3.13. I just wanted to brag on him. We are just so proud of him. So he starts his Junior year this Fall.
Thank you for checking in on him. He is getting really excited to go camping. To tell the truth, so am I. I am looking forward to being with him and having some extra bonding time. It will be fun. Have a good night. Sleep tight. Thank you for your prayers, love, and support. Keep the prayers coming, we need them. God bless you all. We love you.
Kristi and the Koury Klan
Osteosarcoma (osteogenic sarcoma) is a highly malignant tumor. It characteristically presents between the ages of 10 and 30 years and has a male predominance. The tumor is usually treated with wide tumor resection and adjunctant chemotherapy. Despite treatment the prognosis is poor and a fatal outcome is the rule.
David did ok in PT today. He is such a trooper, he just does whatever he is asked to do. He was a little bit sore today; yesterday in the pool his knee bent too far for his liking. He doesn't remember what happened, but he knows it hurt. So his knee was a little bit tender today. But he did very well. The older (than David) gentleman that is there when David is there just watches David and shakes his head. He can't believe what David does. He says me and Linda torture David! He is just amazed at David. But then, so are we. Overall, he did very well in PT today.
We went in the pool again this evening. It felt so nice and refreshing. And it was actually cold when we got out! Well, the wind was cold on our wet bodies. David wants me and him to go in after lunch tomorrow; we will see
We got David's High School transcript today. We had to get it because we had to pull him out of the school he was in~~~we can no longer afford to send him to a private school. So we have to fax the transcript to his new school. We didn't really know exactly how he was doing~~~they never sent us report cards. Well, we are very proud of him. He started this school just a couple months before he was diagnosed with cancer. He only got 2 C's in the entire 4 semesters he was there. All the rest were A's and B's!! Considering he is a year ahead of his age; he was doing an accelerated curriculum; and he has had 2 years from hell; we are extremely pleased! His GPA for the 2 years is 3.13. I just wanted to brag on him. We are just so proud of him. So he starts his Junior year this Fall.
Thank you for checking in on him. He is getting really excited to go camping. To tell the truth, so am I. I am looking forward to being with him and having some extra bonding time. It will be fun. Have a good night. Sleep tight. Thank you for your prayers, love, and support. Keep the prayers coming, we need them. God bless you all. We love you.
Kristi and the Koury Klan
Osteosarcoma (osteogenic sarcoma) is a highly malignant tumor. It characteristically presents between the ages of 10 and 30 years and has a male predominance. The tumor is usually treated with wide tumor resection and adjunctant chemotherapy. Despite treatment the prognosis is poor and a fatal outcome is the rule.
Sunday, July 19, 2009
Sunday, July 19, 2009
Good evening. It was another rather hot day today. Yeah~~~95 degrees is rather hot!
David had fun fly fishing today. He didn't catch anything, bummer. It was too windy to fly fish, so they just regular fished. But he said he had a great time!!
I had a 'scare' today. I had to go to Walmart to get some big plastic containers to put the food in for camping. You know, the boxed food, the bread, crackers, the stuff that doesn't go in the cooler. Anyway, my car didn't start. All the lights on my instrument panel flashed, and Bryon wasn't home! Well, it was just the battery. But I am mechanically challenged, and I didn't know it was something that 'simple.' But, whew, it was something that simple. So we went back to Walmart and got a battery and the car works again!!! Yay.
Bryon, Rachel, David and I went in our pool today! The water was very refreshing. It felt so good. I am so thankful for our pool! It was a good day.
Thank you for checking in on David and the Koury Klan. Have a good night. God bless you. We love you.
Kristi and the Koury Klan
The overall incidence rate for childhood cancers has increased significantly by almost 33% during the period 1975 to 2001
David had fun fly fishing today. He didn't catch anything, bummer. It was too windy to fly fish, so they just regular fished. But he said he had a great time!!
I had a 'scare' today. I had to go to Walmart to get some big plastic containers to put the food in for camping. You know, the boxed food, the bread, crackers, the stuff that doesn't go in the cooler. Anyway, my car didn't start. All the lights on my instrument panel flashed, and Bryon wasn't home! Well, it was just the battery. But I am mechanically challenged, and I didn't know it was something that 'simple.' But, whew, it was something that simple. So we went back to Walmart and got a battery and the car works again!!! Yay.
Bryon, Rachel, David and I went in our pool today! The water was very refreshing. It felt so good. I am so thankful for our pool! It was a good day.
Thank you for checking in on David and the Koury Klan. Have a good night. God bless you. We love you.
Kristi and the Koury Klan
The overall incidence rate for childhood cancers has increased significantly by almost 33% during the period 1975 to 2001
Saturday, July 18, 2009
Saturday, July 18, 2009
Good evening. It was a pretty hot day today. Again, I am thankful for our swamp cooler!!
We drove out to Lake Davis~~~Bryon gets cell service out there!! Woo-Hoo!! Thank you for your prayers. So we will be going camping! David is so happy about that. It was so beautiful there today. The smell of the pines was strong, and the weather was perfect. So we are very ready to go camping.
Tonight we went to our church for a function for David. He will be attending a Teen Community Bible Study; and tonight they had a BBQ and a get together for the kids. David had a great time. Bryon and I so enjoyed watching David play just like a normal kid. They had water balloon fights, relay-type races (no running for David), and just some good teen fun. I can't tell you how wonderful it was to watch him with other teenagers having a good time. It was wonderful.
Tomorrow he is going fly fishing with his old Sunday School teacher; the teacher he had when he was 6. He is really looking forward to it. He was supposed to go last year, but chemo got in the way. Thank you, Bob, for taking him. He is very excited.
I am going to close with a quote I read in today's paper. It is from the 'Annie's Mailbox' section of the paper. It is so very true. There have been a number of people who have abandoned us during this time. There are people who expect ME to do all the calling. When I read this today, it just really hit home. I am not the one battling cancer, but I still feel the same as the person who wrote this letter. Thank you for your understanding.
"Dear Annie: I have been battling cancer for several months. The support of friends and family is a key element in keeping morale up, but I feel more alone than ever. I hardly hear from my friends. When I pick up the phone to say hello, they say they haven’t called because they don’t want to disturb me. Or they say they are keeping track of me through “Mary,” but Mary isn’t calling here, either. The burden of keeping in touch falls on me.
It is hard to call people when you are at your lowest. You have no news to share other than your illness. I beg your readers to please phone their friends and family members who are suffering. Just knowing you care enough to make them part of your life is worth a million pills. When people find out you are ill, so many ask, “What can I do?” THIS is what they can do. — Ill and Lonely Dear Lonely: We hope anyone who has an ailing relative or friend will pick up the phone after reading this column and call to say hello, and continue to keep in touch. Many don’t understand how much it means. "
Thank you for visiting. Thank you for your love, prayers, and support. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
You never know how strong you are until being strong is the only choice you have.
We drove out to Lake Davis~~~Bryon gets cell service out there!! Woo-Hoo!! Thank you for your prayers. So we will be going camping! David is so happy about that. It was so beautiful there today. The smell of the pines was strong, and the weather was perfect. So we are very ready to go camping.
Tonight we went to our church for a function for David. He will be attending a Teen Community Bible Study; and tonight they had a BBQ and a get together for the kids. David had a great time. Bryon and I so enjoyed watching David play just like a normal kid. They had water balloon fights, relay-type races (no running for David), and just some good teen fun. I can't tell you how wonderful it was to watch him with other teenagers having a good time. It was wonderful.
Tomorrow he is going fly fishing with his old Sunday School teacher; the teacher he had when he was 6. He is really looking forward to it. He was supposed to go last year, but chemo got in the way. Thank you, Bob, for taking him. He is very excited.
I am going to close with a quote I read in today's paper. It is from the 'Annie's Mailbox' section of the paper. It is so very true. There have been a number of people who have abandoned us during this time. There are people who expect ME to do all the calling. When I read this today, it just really hit home. I am not the one battling cancer, but I still feel the same as the person who wrote this letter. Thank you for your understanding.
"Dear Annie: I have been battling cancer for several months. The support of friends and family is a key element in keeping morale up, but I feel more alone than ever. I hardly hear from my friends. When I pick up the phone to say hello, they say they haven’t called because they don’t want to disturb me. Or they say they are keeping track of me through “Mary,” but Mary isn’t calling here, either. The burden of keeping in touch falls on me.
It is hard to call people when you are at your lowest. You have no news to share other than your illness. I beg your readers to please phone their friends and family members who are suffering. Just knowing you care enough to make them part of your life is worth a million pills. When people find out you are ill, so many ask, “What can I do?” THIS is what they can do. — Ill and Lonely Dear Lonely: We hope anyone who has an ailing relative or friend will pick up the phone after reading this column and call to say hello, and continue to keep in touch. Many don’t understand how much it means. "
Thank you for visiting. Thank you for your love, prayers, and support. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
You never know how strong you are until being strong is the only choice you have.
Friday, July 17, 2009
Friday, July 17, 2009
Good evening. Summertime is here!! It was a pretty warm day today. I am so thankful for our swamp cooler.
David did ok at best in PT today. He was very tired, and his upper thigh was sore. I am not sure if it was sore because of the lengthening, or the workout he did in the pool yesterday. Pool therapy is so different from the regular stuff he does in the office. With the water resistance, I think it caused him to be sore. So he had a bit of a difficult time today. They had the cooler on, so he didn't get too hot; which was good. But, the trooper that he is, he still did all of his workouts. I am so proud of him.
Tomorrow we are taking a drive out to the place we go camping. We need to see if Bryon can get cell service with his work cell phone. We want to go camping next weekend, and Bryon will be on call next weekend, so he has to have cell service. Please pray that he is able to get cell service. We really want to go camping. That would be the week that David and I stay for the week; just us and the dogs!! Thank you for your prayers.
Thank you for checking in on David and the Koury Klan. Thank you for your love, prayers, and support. God bless you all. We love you.
Kristi and the Koury Klan
Cancer is like a road trip. You begin your journey knowing the destination, but do not know what's in store. Detours, pot holes, exciting adventures around every turn! But you still drive on!
David did ok at best in PT today. He was very tired, and his upper thigh was sore. I am not sure if it was sore because of the lengthening, or the workout he did in the pool yesterday. Pool therapy is so different from the regular stuff he does in the office. With the water resistance, I think it caused him to be sore. So he had a bit of a difficult time today. They had the cooler on, so he didn't get too hot; which was good. But, the trooper that he is, he still did all of his workouts. I am so proud of him.
Tomorrow we are taking a drive out to the place we go camping. We need to see if Bryon can get cell service with his work cell phone. We want to go camping next weekend, and Bryon will be on call next weekend, so he has to have cell service. Please pray that he is able to get cell service. We really want to go camping. That would be the week that David and I stay for the week; just us and the dogs!! Thank you for your prayers.
Thank you for checking in on David and the Koury Klan. Thank you for your love, prayers, and support. God bless you all. We love you.
Kristi and the Koury Klan
Cancer is like a road trip. You begin your journey knowing the destination, but do not know what's in store. Detours, pot holes, exciting adventures around every turn! But you still drive on!
Wednesday, July 15, 2009
Wednesday, July 15, 2009
Good evening. It is definitely summer here! Not too hot, and LOW humidity, but getting there. I am so glad we have a great swamp cooler that works! And we got the pool all cleaned and working, YAY! The pool was neglected the whole time we were going back and forth to Oakland; so it took some work to get it back in tip-top shape. Bryon worked really hard on it, and now it is ready for us to jump in!! So bring on the heat!
David had a good day today. He only has 2 more days of school!!! Woo-Hoo. Then he will get a little break before he starts his Junior year of High School. I can hardly believe he is getting so old. Well, he did just turn 15 in April, but still. He has PT in the pool tomorrow; he hasn't been there for a few weeks! Please pray that he does well without too much pain. Thanks.
I have set up another page for David. I got the idea from Mattie's and Sammie's sites!! I would like everyone who reads this to sign that site, please. It is to add more awareness, and we need all we can get! July is Sarcoma Awareness Month.
Thank you in advance for signing that page. Thank you for visiting and checking in on David and the Koury Klan. Have a good night. God bless you all. We love you.
http://www.livestrongaction.org/node/51301
Kristi and the Koury Klan
David had a good day today. He only has 2 more days of school!!! Woo-Hoo. Then he will get a little break before he starts his Junior year of High School. I can hardly believe he is getting so old. Well, he did just turn 15 in April, but still. He has PT in the pool tomorrow; he hasn't been there for a few weeks! Please pray that he does well without too much pain. Thanks.
I have set up another page for David. I got the idea from Mattie's and Sammie's sites!! I would like everyone who reads this to sign that site, please. It is to add more awareness, and we need all we can get! July is Sarcoma Awareness Month.
Thank you in advance for signing that page. Thank you for visiting and checking in on David and the Koury Klan. Have a good night. God bless you all. We love you.
http://www.livestrongaction.org/node/51301
Kristi and the Koury Klan
Monday, July 13, 2009
Monday, July 13, 2009
Good evening. Bear with me, this will be a long post. I want to let you know it all.
David's oncology appointment went well. We got the results of David's scans. I am going to quote what the results were. First the chest CT~~~ "There are multiple foci of presumed scarring from prior thoracotomies, but no new lung nodules are identified to suggest recurrent pulmonary metastases." Praise God, CT scan is clear!! Whew! Now the bone scan~~~ "Mild right convex thoracic curvature is again noted. Again noted is some increased activity in the right femur, immediately above the prosthesis, and some additional activity a few centimeters lower, in the region of the prosthesis. There is also mild increase in activity in the lateral soft tissues adjacent to the distal femoral portion of the prosthesis, similar to prior exams. No new lesions are identified. Impression: Stable examination. There is some increased activity near the right femoral prosthesis, unchanged. No sign of metastatic disease." Bone scan is clear!! Whew! We can breathe for another 3 months! But the doctor said they will be keeping an eye on his spine curvature. They told us that the thoracotomies can cause that. So we will just be watching it. But that is so minor compared to cancer! But of course, David had to throw some kind of curve ball!! But we are so relieved with the results. Praise Jesus!! Thank you so very much for your prayers; they work!!
David did well in PT today. Bryon got to go because he didn't work today. Today was his furlough day, unpaid day off! One day a month Bryon has an unpaid day off! Just what we need, financially. Oh well. God is still in control. And David has no new metasteses, so life is good.
Thank you for visiting and checking in on David and the Koury Klan. Please keep the prayers coming! God bless you all. We love you. {{HUGS}}
Kristi and the Koury Klan
We are continuing to see late deaths of children presumed “cured” due to late relapses, toxicity and secondary malignancy.
David's oncology appointment went well. We got the results of David's scans. I am going to quote what the results were. First the chest CT~~~ "There are multiple foci of presumed scarring from prior thoracotomies, but no new lung nodules are identified to suggest recurrent pulmonary metastases." Praise God, CT scan is clear!! Whew! Now the bone scan~~~ "Mild right convex thoracic curvature is again noted. Again noted is some increased activity in the right femur, immediately above the prosthesis, and some additional activity a few centimeters lower, in the region of the prosthesis. There is also mild increase in activity in the lateral soft tissues adjacent to the distal femoral portion of the prosthesis, similar to prior exams. No new lesions are identified. Impression: Stable examination. There is some increased activity near the right femoral prosthesis, unchanged. No sign of metastatic disease." Bone scan is clear!! Whew! We can breathe for another 3 months! But the doctor said they will be keeping an eye on his spine curvature. They told us that the thoracotomies can cause that. So we will just be watching it. But that is so minor compared to cancer! But of course, David had to throw some kind of curve ball!! But we are so relieved with the results. Praise Jesus!! Thank you so very much for your prayers; they work!!
David did well in PT today. Bryon got to go because he didn't work today. Today was his furlough day, unpaid day off! One day a month Bryon has an unpaid day off! Just what we need, financially. Oh well. God is still in control. And David has no new metasteses, so life is good.
Thank you for visiting and checking in on David and the Koury Klan. Please keep the prayers coming! God bless you all. We love you. {{HUGS}}
Kristi and the Koury Klan
We are continuing to see late deaths of children presumed “cured” due to late relapses, toxicity and secondary malignancy.
Sunday, July 12, 2009
Sunday, July 12, 2009
Good evening. It was an absolutely gorgeous day today. VERY windy; I bet you are surprised to hear that!
David had a good day. We went to church and had the privilege of listening to our former pastor. He left a long time ago. He was the pastor who dedicated David and baptized my girls. He will always hold a very special place in our hearts. So will his wife. It was a wonderful church service. I miss them already. But we had a good day.
It is with a heavy heart that I inform you that we lost another of our osteo family members. Her name is Angie. She lost her battle with this ugly monster last night. So that is 2 lovely girls in 3 days. Bryon and I have lost count on how many have died this year.......we think it is 20. That is 20 too many! Please pray for her family. Thank you.
Yesterday was Sammie's birthday; she turned 12! She had a great birthday party with her friends. Please continue to pray for her and her family, this will be the last birthday she will celebrate on earth. Thank you for you prayers.
David has his oncology appointment in Reno tomorrow. We hope to get the results of his bone scan and chest CT. Please continue to pray that the scans come back clear. I will post what we find out. Then David has PT tomorrow afternoon. Please pray he does well; afternoons are harder on him. Thank you.
Thank you for visiting and checking up on the Koury Klan. Have a good evening. Sleep good. God bless you all. We love you!
Kristi and the Koury Klan
In the past 20 years only one new cancer drug has been approved for pediatric use.
David had a good day. We went to church and had the privilege of listening to our former pastor. He left a long time ago. He was the pastor who dedicated David and baptized my girls. He will always hold a very special place in our hearts. So will his wife. It was a wonderful church service. I miss them already. But we had a good day.
It is with a heavy heart that I inform you that we lost another of our osteo family members. Her name is Angie. She lost her battle with this ugly monster last night. So that is 2 lovely girls in 3 days. Bryon and I have lost count on how many have died this year.......we think it is 20. That is 20 too many! Please pray for her family. Thank you.
Yesterday was Sammie's birthday; she turned 12! She had a great birthday party with her friends. Please continue to pray for her and her family, this will be the last birthday she will celebrate on earth. Thank you for you prayers.
David has his oncology appointment in Reno tomorrow. We hope to get the results of his bone scan and chest CT. Please continue to pray that the scans come back clear. I will post what we find out. Then David has PT tomorrow afternoon. Please pray he does well; afternoons are harder on him. Thank you.
Thank you for visiting and checking up on the Koury Klan. Have a good evening. Sleep good. God bless you all. We love you!
Kristi and the Koury Klan
In the past 20 years only one new cancer drug has been approved for pediatric use.
Friday, July 10, 2009
Friday, July 10, 2009
Good evening. I hope you are all doing well this evening.
We made it home safely. We tried to sleep in this morning; and we did, a little bit. It was a good drive......but there was a LOT of traffic! It ws unbelievable how much traffic there was. I don't think we have ever seen in that bad. So we are so glad to be home.
Then we got to meet with some friends we haven't seen for several years; WAY too many years!! Pastor Larry and Chris, it was SO great to see you and spend a few hours with you. Pastor Larry, we can't wait to hear you preach on Sunday! We have missed it! Seeing them tonight made me realize how much we have missed them. It was wonderful to see them.
David is so glad to have those staples out of his leg. He doesn't have to worry about them catching on anything and getting pulled, or worry about them just getting tugged on. He is happy to have them gone!! So are we, let me tell you. Now he can take a 'regular' shower! He just needs to get all the scabs off the staple holes. And the skin is so dry! So I am putting lotion on it to soften it up. It is much better to have the skin more pliable. So we will do what we can to help that scar.
Thank you for visiting and checking on the Koury Klan. Thank you for your love, prayers, and support. We appreciate it! God bless you all. We love you. {{HUGS}}
Kristi and the Koury Klan
Hope is ours for the taking every single minute. It's the assurance that things will make sense when there's no sense to make of things.
~Luci Swindoll
We made it home safely. We tried to sleep in this morning; and we did, a little bit. It was a good drive......but there was a LOT of traffic! It ws unbelievable how much traffic there was. I don't think we have ever seen in that bad. So we are so glad to be home.
Then we got to meet with some friends we haven't seen for several years; WAY too many years!! Pastor Larry and Chris, it was SO great to see you and spend a few hours with you. Pastor Larry, we can't wait to hear you preach on Sunday! We have missed it! Seeing them tonight made me realize how much we have missed them. It was wonderful to see them.
David is so glad to have those staples out of his leg. He doesn't have to worry about them catching on anything and getting pulled, or worry about them just getting tugged on. He is happy to have them gone!! So are we, let me tell you. Now he can take a 'regular' shower! He just needs to get all the scabs off the staple holes. And the skin is so dry! So I am putting lotion on it to soften it up. It is much better to have the skin more pliable. So we will do what we can to help that scar.
Thank you for visiting and checking on the Koury Klan. Thank you for your love, prayers, and support. We appreciate it! God bless you all. We love you. {{HUGS}}
Kristi and the Koury Klan
Hope is ours for the taking every single minute. It's the assurance that things will make sense when there's no sense to make of things.
~Luci Swindoll
Thursday, July 9, 2009
Thursday, July 9, 2009
Good evening.
Today has been a very busy day. We left the house at 4am this morning so we could be at Oakland Children's Hospital in time. Of course we got there early, YAY! They were able to get us in early; Christine gave David the injection for the bone scan at 8:15 (it was scheduled for 9). Then she talked the CT people to giving David his chest CT early (it was supposed to be at 11). He had the chest CT around 9-ish. Then we went and had breakfast. Then we went up to the 5th floor to see a couple of people. We saw Autumn, YAY! We saw Dr. Hoppe, YAY!! We saw Diane and Kim, also. It was great to see them. Then David had his bone scan at 10:30 (it was scheduled for 12pm). So it was wonderful to be done early.
Then we scooted over to San Francisco for David's post-op and staple removal. We got there early, which was good, because we needed to get his leg x-rayed before his appointment. His appointment was for 2pm; and we were in the room waiting for Dr. O at 1:45! That is highly unusual for Dr. O! We were out of there before 2:30. If you have been reading this journal from the beginning, you will know that we usually wait anywhere from 2-4 hours for Dr. O. So we were very happy to be done early. We are all SOOOO very tired. We went back to the hotel and pretty much crashed. I will be in bed soon, too. Oh, the staple removal went well; just a couple of 'stuck' staples. Thank you for the prayers.
Remember I asked you to pray for Amamda and her family? Well, Amanda died last night (Wednesday). Please continue to pray for her family. Thank you.
Thank you for your prayers, love, and support. Thank you for visiting and checking in on the Koury Klan. God bless you all. We love you.
Kristi and the Koury Klan
Today has been a very busy day. We left the house at 4am this morning so we could be at Oakland Children's Hospital in time. Of course we got there early, YAY! They were able to get us in early; Christine gave David the injection for the bone scan at 8:15 (it was scheduled for 9). Then she talked the CT people to giving David his chest CT early (it was supposed to be at 11). He had the chest CT around 9-ish. Then we went and had breakfast. Then we went up to the 5th floor to see a couple of people. We saw Autumn, YAY! We saw Dr. Hoppe, YAY!! We saw Diane and Kim, also. It was great to see them. Then David had his bone scan at 10:30 (it was scheduled for 12pm). So it was wonderful to be done early.
Then we scooted over to San Francisco for David's post-op and staple removal. We got there early, which was good, because we needed to get his leg x-rayed before his appointment. His appointment was for 2pm; and we were in the room waiting for Dr. O at 1:45! That is highly unusual for Dr. O! We were out of there before 2:30. If you have been reading this journal from the beginning, you will know that we usually wait anywhere from 2-4 hours for Dr. O. So we were very happy to be done early. We are all SOOOO very tired. We went back to the hotel and pretty much crashed. I will be in bed soon, too. Oh, the staple removal went well; just a couple of 'stuck' staples. Thank you for the prayers.
Remember I asked you to pray for Amamda and her family? Well, Amanda died last night (Wednesday). Please continue to pray for her family. Thank you.
Thank you for your prayers, love, and support. Thank you for visiting and checking in on the Koury Klan. God bless you all. We love you.
Kristi and the Koury Klan
Monday, July 6, 2009
Monday, July 6, 2009
Good evening. It is an absolutely gorgeous day here today. The high was only 81 degrees. And windy; surprise, surprise, huh? I thoroughly enjoyed the day.
David did very will in PT today. He did get hot and tired, but that is because he works so hard. He was even complimented on his bravery. A gentlemen who is there working after a knee replacement couldn't believe David was doing PT with his staples in. He said, "You are a bigger man than I am." He couldn't believe all that David has been through so far. He said David is a tough kid. Linda and I said he sure is!! His knee bend is around 117 degrees. Yay! He is doing so well. We just can't wait to get the blasted staples out!!! And the swelling has gone down quite a bit from his knee. The incision looks a little red and irritated, but otherwise it looks good. Thank you for all the prayers for David; they are working! Keep them up!
Sammie's website is www.caringbridge.org/visit/sammiehartsfield. Amanda's is www.carepages.com and you type in amandamitchell11. Please keep these beautiful little girls in your prayers. Thank you so much.
I need to go get David's meds ready for him to take. Thank you for checking in on the Koury Klan. Thank you for your love, prayers, and support. Have a good night. God bless you all. We love you.
Kristi and the Koury Klan
Courage is never to let your actions be influenced by your fears. ~Arthur Koestler
David did very will in PT today. He did get hot and tired, but that is because he works so hard. He was even complimented on his bravery. A gentlemen who is there working after a knee replacement couldn't believe David was doing PT with his staples in. He said, "You are a bigger man than I am." He couldn't believe all that David has been through so far. He said David is a tough kid. Linda and I said he sure is!! His knee bend is around 117 degrees. Yay! He is doing so well. We just can't wait to get the blasted staples out!!! And the swelling has gone down quite a bit from his knee. The incision looks a little red and irritated, but otherwise it looks good. Thank you for all the prayers for David; they are working! Keep them up!
Sammie's website is www.caringbridge.org/visit/sammiehartsfield. Amanda's is www.carepages.com and you type in amandamitchell11. Please keep these beautiful little girls in your prayers. Thank you so much.
I need to go get David's meds ready for him to take. Thank you for checking in on the Koury Klan. Thank you for your love, prayers, and support. Have a good night. God bless you all. We love you.
Kristi and the Koury Klan
Courage is never to let your actions be influenced by your fears. ~Arthur Koestler
Saturday, July 4, 2009
Saturday, July 4, 2009
Happy 4th of July!! I hope you all had a wonderful day today. We spent the day working on the backyard, washing the cars (inside AND outside), and having a good day. Marty, thank you soooo much (again) for the Subway coupons! We used them for dinner tonight. Then, Bryon, Rachel and David went to Sparks to watch the firework show. I went to my friend's house and watched the Carson City show from her house. Usually I just watch it from upstairs in our house, but this year I went to our friend's house. It wasn't a bad show. David had a really good time with his dad. It is a tradition that Bryon takes the kids for some "dad" time. It was a busy, but good day.
Please remember two of our osteo family members in your prayers; Sammie and Amanda. They are both on their journey to meet Jesus. Please pray for their families, too. Thank you.
Thank you for visiting and checking up on the Koury Klan. Have a good night. God bless you. We love you.
Kristi and the Koury Klan
Cancer remains the number one disease killer of children; more than genetic anomalies, cystic fibrosis, and AIDS COMBINED!!
Please remember two of our osteo family members in your prayers; Sammie and Amanda. They are both on their journey to meet Jesus. Please pray for their families, too. Thank you.
Thank you for visiting and checking up on the Koury Klan. Have a good night. God bless you. We love you.
Kristi and the Koury Klan
Cancer remains the number one disease killer of children; more than genetic anomalies, cystic fibrosis, and AIDS COMBINED!!
Friday, July 3, 2009
Friday, July 3, 2009
Good morning. Happy 4th of July! (tomorrow)!! Everyone is still asleep, so I thought I would update.
The family has the day off today because tomorrow is the 4th. We haven't been sleeping well, so we are all pretty tired. I was awake, so I got up (actually 2 hours ago) and decided to get some things done early. It is quiet in the house right now with everyone else fast asleep (wish I was, too).
David is feeling good. PT on Wednesday went really good. David said he was only going to bring one crutch in because he is walking better; but he forgot it! So now he is walking without any aids whatsoever! All the time! We even walked to our friends' house last night after dinner; and David walked all the way. It is a little less than a mile away. His knee wants to buckle on him, still, but he is good at 'catching' himself when it does that. So he is doing great with his walking. He said it feels weird to be almost even! His right leg has been considerably shorter for over a year, and he said it feels weird (but great) to have them almost the same length. I can't even imagine. He is getting closer to being 'normal.' He played with his friends for several hours last night. Bryon and I went with our friends to Starbucks and had a great time while the boys played video games and chatted. It was good for David. It is hard for him because all the boys his age are out playing basketball, soccer, baseball........things that David cannot do. But he still had fun with his friends last night.
That is about all that is happening at the moment. Thank you for checking in on the Koury Klan. Thank you for your love, prayers, and support; keep it up! Please be praying for us on Thursday, the 9th. Thank you. God bless you all. We love you. {{HUGS}}
Kristi and the Koury Klan
You never know how strong you are until being strong is the only choice you have.
The family has the day off today because tomorrow is the 4th. We haven't been sleeping well, so we are all pretty tired. I was awake, so I got up (actually 2 hours ago) and decided to get some things done early. It is quiet in the house right now with everyone else fast asleep (wish I was, too).
David is feeling good. PT on Wednesday went really good. David said he was only going to bring one crutch in because he is walking better; but he forgot it! So now he is walking without any aids whatsoever! All the time! We even walked to our friends' house last night after dinner; and David walked all the way. It is a little less than a mile away. His knee wants to buckle on him, still, but he is good at 'catching' himself when it does that. So he is doing great with his walking. He said it feels weird to be almost even! His right leg has been considerably shorter for over a year, and he said it feels weird (but great) to have them almost the same length. I can't even imagine. He is getting closer to being 'normal.' He played with his friends for several hours last night. Bryon and I went with our friends to Starbucks and had a great time while the boys played video games and chatted. It was good for David. It is hard for him because all the boys his age are out playing basketball, soccer, baseball........things that David cannot do. But he still had fun with his friends last night.
That is about all that is happening at the moment. Thank you for checking in on the Koury Klan. Thank you for your love, prayers, and support; keep it up! Please be praying for us on Thursday, the 9th. Thank you. God bless you all. We love you. {{HUGS}}
Kristi and the Koury Klan
You never know how strong you are until being strong is the only choice you have.
Wednesday, July 1, 2009
Wednesday, July 1, 2009
Good morning.
I am getting ready to take David to PT; but there has been a little change of plans. I just heard from Children's Hospital that David's scans are not on the 10th of July. They are on the 9th. So that will be a VERY busy day. David will have the injection for the bone scan at 9am, then the chest CT at 10am. Then the bone scan at 12pm. Then we have to scoot over to San Francisco for David's staple removal and post-op appointment at 2pm. It is going to be a busy day, and we are going to have to leave our house at 4am!!! But we will work it out. Children's Hospital had NO openings on Friday (the 10th), so we had to have it the 9th. Oh well. Just thought I would let you all know, so you can start praying!! Scanxiety is kicking in!! Thank you for your prayers.
Gotta run. Have a good day. Please pray for David in PT. Thanks. God bless you and your day. Thanks for checking in. We love you.
Kristi and the Koury Klan
The shin bone is a device for finding furniture in the dark.
I am getting ready to take David to PT; but there has been a little change of plans. I just heard from Children's Hospital that David's scans are not on the 10th of July. They are on the 9th. So that will be a VERY busy day. David will have the injection for the bone scan at 9am, then the chest CT at 10am. Then the bone scan at 12pm. Then we have to scoot over to San Francisco for David's staple removal and post-op appointment at 2pm. It is going to be a busy day, and we are going to have to leave our house at 4am!!! But we will work it out. Children's Hospital had NO openings on Friday (the 10th), so we had to have it the 9th. Oh well. Just thought I would let you all know, so you can start praying!! Scanxiety is kicking in!! Thank you for your prayers.
Gotta run. Have a good day. Please pray for David in PT. Thanks. God bless you and your day. Thanks for checking in. We love you.
Kristi and the Koury Klan
The shin bone is a device for finding furniture in the dark.
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