Three years ago today we took David for his 1st MRI. Three years ago. Hindsight is 20/20, and we should have figured out something was up. All the techs were chatty and friendly when we were there.....at first. They couldn't get David to calm down and lay still, so they told us they might have to sedate him. But they said first they will let one of us go back with him and stay with him to try to calm him down. I jumped up and went to him. He was in a lot of pain, and scared, so that is why he couldn't lay still. Plus, he was a little freaked out by the noise of the MRI machine. The only time he had ever been in this kind of situation (sort of) was when he was 17 months old and broke his arm. He had never had any other tests like this done, and he was scared. Anyway, the techs were still friendly and talking and trying to get David to relax. They were joking with David and trying to lighten the situation. They were told that the urgent care doctor suspected a sprain, so I assume that is what they were looking for. Well, almost at the end of the MRI they got quiet. Then when they were done they just kept asking us lots of questions; when did the pain start, when did the swelling start, when did we take him to urgent care, when did we take him to our primary care physician, what have we done to 'treat' the knee, how have we tried to manage the pain, etc. We were there for a few hours! We didn't understand what was going on; then. Now we do! They panicked when they saw the tumor in his knee, but we didn't know that at the time. We found out the next morning, when our primary care physician called and told me to take David NOW for an x-ray, because he has a bone tumor. So, three years ago tomorrow our lives were changed FOREVER!! Even though David wasn't 'officially' diagnosed until 10/18/07; we were told about the bone tumor on 10/9/07. I don't know if I will post tomorrow, so I decided to tell you today where we were three years ago. This has been a very long three years, let me tell you. I have to admit I had never heard of Osteosarcoma before David was diagnosed with it! We also found out on 10/18/07 that he was metastatic~~~it had spread to his lungs. That was the day of the biopsy on his knee, and the surgeon told us that it was not our fault, we didn't wait 'too long' to bring him in; this cancer was just very aggressive in David. It is an aggressive cancer, but it reacts different in each child. Which is partly why it is still a mostly unknown cancer. There is no rhyme or reason to how it responds and/or reacts. And that is why we are so scared most of the time. We all put up a great front to people; but if they could see our hearts and our fear, they would be surprised! Yes, we know that our precious children are in God's hands; but we also know from experience that it doesn't mean they will live! We have watched way too many of our precious Osteo family warriors die of this dreaded and horrible monster!! We also know from personal experience that it also doesn't mean that our children won't suffer! Because let me tell you, David has suffered! A LOT!! So, that is where we were three years ago today. Two years ago today David was in the hospital with his last chemo! One year ago this month we found out he has new spots in his lungs!
Now that he has scans on Monday,
.................Bone Scan......................................................... CT Scan
we are just a wee bit nervous! Actually, we are suffering quite a bit from scanxiety! We do not know what is going on in his body/lungs. Please pray that his scans come back stable at the 'worst' and clear at the 'best!' We don't even want to think that something is going on that will be detrimental to his health. Thank you so much for all your prayers. Thank you for being there for us. Thank you for bearing with us these last 3 years.
Please continue to pray for all our Osteo family members. I know you don't know all their names, but God know who they are. Thank you for praying for them, too.
I will post as soon as I find out anything about David's scans. We have to be at Oakland Children's Hospital at 8:30: injection for bone scan at 9, CT scan at 10, oncology appointment at 11, and bone scan at 12. It will be a busy morning. We were unable to get our 'usual' hotel, so we will be staying in Walnut Creek; a bit further from the hospital. We will have to leave earlier than we usually do to get to the hospital, we are further away and we want to beat the traffic! I don't miss that traffic! Please pray for our safety, too. Thank you so much. I will let you know as soon as I can.
Lucy went to the doctor today; baby is doing great! It is growing and healthy. Everything is going as it should! She will be 25 weeks along on Monday. We are all so excited! We can't wait for that baby to join our family! Thank you for your continued prayers for Jeremy and Lucy and their precious bundle of joy!
Thank you for visiting and checking in on David and the Koury Klan. Thank you for listening and for being there. {{hugs}}
Kristi and the Koury Klan
Attempts to detect childhood cancers at an earlier stage, when the disease would react more favorably to treatment, have largely failed. Young patients often have a more advanced stage of cancer when first diagnosed. (Approximately 20% of adults with cancer show evidence the disease has spread, yet almost 80% of children show that the cancer has spread to distant sites at the time of diagnosis).
Please continue to pray for all our Osteo family members. I know you don't know all their names, but God know who they are. Thank you for praying for them, too.
I will post as soon as I find out anything about David's scans. We have to be at Oakland Children's Hospital at 8:30: injection for bone scan at 9, CT scan at 10, oncology appointment at 11, and bone scan at 12. It will be a busy morning. We were unable to get our 'usual' hotel, so we will be staying in Walnut Creek; a bit further from the hospital. We will have to leave earlier than we usually do to get to the hospital, we are further away and we want to beat the traffic! I don't miss that traffic! Please pray for our safety, too. Thank you so much. I will let you know as soon as I can.
Lucy went to the doctor today; baby is doing great! It is growing and healthy. Everything is going as it should! She will be 25 weeks along on Monday. We are all so excited! We can't wait for that baby to join our family! Thank you for your continued prayers for Jeremy and Lucy and their precious bundle of joy!
Thank you for visiting and checking in on David and the Koury Klan. Thank you for listening and for being there. {{hugs}}
Kristi and the Koury Klan
Attempts to detect childhood cancers at an earlier stage, when the disease would react more favorably to treatment, have largely failed. Young patients often have a more advanced stage of cancer when first diagnosed. (Approximately 20% of adults with cancer show evidence the disease has spread, yet almost 80% of children show that the cancer has spread to distant sites at the time of diagnosis).
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