Good evening.
Sorry I haven't updated yet, it has been a bit chaotic.
We came home yesterday, well, last night. We left around 1:00pm. Bryon stayed with David on Monday night, Rachel stayed on Tuesday night, and I stayed on Wednesday night. So after Bryon and Rachel got to the hospital, Bryon and I ran over to the Family House to do the laundry. We have to wash all our sheets and towels, and fold the sheets on the end of the beds and hang up the towels. Then while the laundry was being washed we cleaned the room and the bathroom. Because I knew I was staying with David on Wednesday night, I had already packed my stuff up and put it in the car; with the exception of the toiletries I needed for Wednesday night and Thursday morning, and a change of clothes. Bryon and Rachel had already packed their stuff up, too, so we just had to clean the room. Then we had to go to the kitchen and get all the leftover food that we brought packed up and put back in the cooler. The doctor had come by earlier that day and changed David's dressing and given orders for our release. While Bryon and I were cleaning and packing the pharmacist came by with the prescription for David's meds. He has to take the percoset and mega dose colace. The over-the-counter dose of colace is 80mg. his prescription is for 250mg.!! We all know what those narcotics do to the body!! So, when everything was done it was about 12ish. Then we had to get everything packed up from the hospital and David had to get dressed. They also had to remove his IV. They had removed his nerve block earlier. Once all our ducks were in a row, we left!! Boy, did that feel good!! David is/was still in a bit of pain, but he handled the trip home ok. He is still a bit nauseous, so we are back to fighting him about the eating!! I can't tell you how tired I am of fighting that battle. He is down to 131 pounds. Hopefully he will get back to eating soon. We arrived home a bit after 5pm; just in time for me to make dinner! Actually, after having sandwiches two meals a day for 4 days, Bryon BBQ'd burgers last night! I was craving a burger!! David and I split one, and he only ate 2 bites of his. But it tasted sooooo good! I am not normally a sandwich person, so I was really ready for something else!! But we survived on sandwiches twice a day (usually apples and almonds for breakfast), and we saved a bunch of money!! So, it is great to be home!
David is sleeping downstairs, as it is exhausting for him to go up and down the stairs on crutches. He doesn't mind sleeping downstairs, we have a comfortable reclining couch. Plus, he is still somewhat afraid to bend his knee, and he is afraid the cats will jump all over him at night (the cats sleep in his room) and hurt his leg. So that is why he sleeps downstairs. Of course, we lost our tv, ha-ha. He had Bryon bring his PS3 down here and hook it up to the family room tv. That's ok, we don't watch that much tv anyway.
David is weight bearing as tolerated, and he isn't weight bearing yet. He says when he puts weight on it, it feels like things are 'shifting' inside. He said he thinks that happened before, too. He has had pain on the inside this time, too, not just the incision. So he will gradually be putting weight on it. I can't wait to see him walking 'normal' again. Like I posted the other day, he will never walk normal, but he will walk normal for him. I can't wait to permanently retire the crutches and the wheelchair!! Someday.......
Please continue to pray for his healing. We are so glad that this surgery is over. The doctor told us that he is young and healthy, but that the incision will take a while to heal. That is because they went through scar tissue; LOTS of it; and scar tissue takes longer to heal than fresh skin. He has to keep the incision covered because of that. They said they don't want dirt or germs getting in the incision and causing an infection that would go to the implant because there is no muscle between the skin and the implant. You can feel the implant when you touch David's leg; it is kinda creepy! Anyway, please pray for healing and for pain relief. Thanks.
Thank you for checking in. Please continue to pray for Sara's family as it is sinking in more and more that she is no longer here on earth, she is dancing and running with the angels. She is free from pain and from a disabled body (and Osteosarcoma), but that doesn't make it easier on her family. Please continue to pray for Rachel, who fights every single day to live! Thank you. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Three out of every five children diagnosed with cancer suffer from long-term or late onset side effects.
Sorry I haven't updated yet, it has been a bit chaotic.
We came home yesterday, well, last night. We left around 1:00pm. Bryon stayed with David on Monday night, Rachel stayed on Tuesday night, and I stayed on Wednesday night. So after Bryon and Rachel got to the hospital, Bryon and I ran over to the Family House to do the laundry. We have to wash all our sheets and towels, and fold the sheets on the end of the beds and hang up the towels. Then while the laundry was being washed we cleaned the room and the bathroom. Because I knew I was staying with David on Wednesday night, I had already packed my stuff up and put it in the car; with the exception of the toiletries I needed for Wednesday night and Thursday morning, and a change of clothes. Bryon and Rachel had already packed their stuff up, too, so we just had to clean the room. Then we had to go to the kitchen and get all the leftover food that we brought packed up and put back in the cooler. The doctor had come by earlier that day and changed David's dressing and given orders for our release. While Bryon and I were cleaning and packing the pharmacist came by with the prescription for David's meds. He has to take the percoset and mega dose colace. The over-the-counter dose of colace is 80mg. his prescription is for 250mg.!! We all know what those narcotics do to the body!! So, when everything was done it was about 12ish. Then we had to get everything packed up from the hospital and David had to get dressed. They also had to remove his IV. They had removed his nerve block earlier. Once all our ducks were in a row, we left!! Boy, did that feel good!! David is/was still in a bit of pain, but he handled the trip home ok. He is still a bit nauseous, so we are back to fighting him about the eating!! I can't tell you how tired I am of fighting that battle. He is down to 131 pounds. Hopefully he will get back to eating soon. We arrived home a bit after 5pm; just in time for me to make dinner! Actually, after having sandwiches two meals a day for 4 days, Bryon BBQ'd burgers last night! I was craving a burger!! David and I split one, and he only ate 2 bites of his. But it tasted sooooo good! I am not normally a sandwich person, so I was really ready for something else!! But we survived on sandwiches twice a day (usually apples and almonds for breakfast), and we saved a bunch of money!! So, it is great to be home!
David is sleeping downstairs, as it is exhausting for him to go up and down the stairs on crutches. He doesn't mind sleeping downstairs, we have a comfortable reclining couch. Plus, he is still somewhat afraid to bend his knee, and he is afraid the cats will jump all over him at night (the cats sleep in his room) and hurt his leg. So that is why he sleeps downstairs. Of course, we lost our tv, ha-ha. He had Bryon bring his PS3 down here and hook it up to the family room tv. That's ok, we don't watch that much tv anyway.
David is weight bearing as tolerated, and he isn't weight bearing yet. He says when he puts weight on it, it feels like things are 'shifting' inside. He said he thinks that happened before, too. He has had pain on the inside this time, too, not just the incision. So he will gradually be putting weight on it. I can't wait to see him walking 'normal' again. Like I posted the other day, he will never walk normal, but he will walk normal for him. I can't wait to permanently retire the crutches and the wheelchair!! Someday.......
Please continue to pray for his healing. We are so glad that this surgery is over. The doctor told us that he is young and healthy, but that the incision will take a while to heal. That is because they went through scar tissue; LOTS of it; and scar tissue takes longer to heal than fresh skin. He has to keep the incision covered because of that. They said they don't want dirt or germs getting in the incision and causing an infection that would go to the implant because there is no muscle between the skin and the implant. You can feel the implant when you touch David's leg; it is kinda creepy! Anyway, please pray for healing and for pain relief. Thanks.
Thank you for checking in. Please continue to pray for Sara's family as it is sinking in more and more that she is no longer here on earth, she is dancing and running with the angels. She is free from pain and from a disabled body (and Osteosarcoma), but that doesn't make it easier on her family. Please continue to pray for Rachel, who fights every single day to live! Thank you. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Three out of every five children diagnosed with cancer suffer from long-term or late onset side effects.
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