Good evening.
Yesterday was David's oncology appointment. We still didn't have any news about his scans. Connie said that they are understaffed at Children's and David's chest CT scan hadn't been read yet; neither had his bone scan. So she said that she was going to bug Dr. Martin to read the scan STAT! She was having David's previous bone scan sent to Renown so they could compare it with the new one and get it read! So we wait. During the exam Connie was a bit concerned about David's heart rate; it was very fast. She was going to put a pulse-ox on him, but she talked to Dr. Torkildson and he said to not worry about it at this time. David said he was very nervous about the outcome of his scans, and that could account for the rapid heart rate. Otherwise, he is doing ok. Well, ok considering he has lost 7 pounds!! We have got to get this kid eating. He weighs less than 130 pounds now. Please pray that his appetite will pick up and he will eat. Maybe with the holidays he will eat and gain some weight!!
Now, today Connie called and said that the scans were finally read!! WooHoo!! She said the scans are 'absolutely stable'! Yay! That was the best we could ask for. That is what we wanted to hear! Well, it would have been nice to hear NED (No Evidence of Disease), but we really weren't expecting that. At this point we are so happy to hear stable!! Praise Jesus! Whew. We will scan again in 4 months.
Connie said she was VERY frustrated about how this whole situation played out. She knows how scared we were, how frustrated we were, and how anxious we were for results. So, with that being said, she said we will do the chest CT scan at Oakland Children's from now on. We thought going to Renown would be easier; but it just didn't work out that way. We will still have to do the bone scan at Renown, on account of the fact that there is NO Nuclear Medicine Tech at Children's, but we will have to travel to Oakland for the chest CT. That kinda sucks, but we have to do what we have to do. It will be a financial strain, again, but we will do it for our son.
I want to say "Thank you" for all your prayers. I can't tell you how much it means to us to have you all praying for us. David impressed me last night. I was talking to him about how he felt about the appointment, and the waiting, and the rapid heart rate. I asked him if he is/was scared, and he said yes. I told him I am sorry, and he shrugged his shoulders and said, "oh well. Whatever happens, happens." This from my 17-year-old!! It made me proud of his attitude, and broke my heart at the same time. Cancer sucks! It has robbed him of his innocence. Kids his age think they are invincible; he knows he isn't. He can't be a regular kid. And I hate it! But I am so glad for the good news that we have dodged that bullet, again. David said we are getting really good at dodging that bullet, and we plan on continuing to do so!! Thank you so much, again, for all your prayers.
Thank you for checking in on David. Thank you for your prayers, love, and support. Thank you for being there for us. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
The human spirit is stronger than anything that can happen to it. - C.C. Scott
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