FALL IS HERE!!
Good evening.
Fall is definitely here!! We even had snow on Thursday. It pretty much snowed all day. It was a warm snow, so it melted as soon as it hit the ground, but it sure was pretty!! It was cold, obviously. We had a fire in the wood burning stove! It will be getting warm this week, up into the 70's, but it was a nice taste of what is to come! And since it as been in the 20's overnite, I am hoping the pollen will be gone! Bryon said most of the rabbit brush is dying or already dead, and I am glad!! My eyes are sooooo itchy!! And I can't sleep because I can't breathe! And David is having a tough time sleeping, too. Please pray that we can be over these stupid allergies soon! Thanks.
David had a doctor appointment on Friday in Pleasanton (instead of San Francisco) with the surgeon. We had to leave at 4am so we could get there in time. We would have rather left the night before, but #1 we really couldn't afford it; and #2 David didn't want to miss Bible study Thursday night. So we left early Friday morning. We took Elena with us and she did fantastic! Poor baby was in the car a total of 9 hours and only fussed for maybe 30 minutes tops, TOTAL! She never had a meltdown, never really cried, just kinda fussed occasionally. We are so proud of her. And she sure was a hit at the doctors office. Anyway, it was a good appointment. Because our insurance has changed and there are so many out-of-pocket expenses now, Dr. O'Donnell said that to save us money he will have David come only once a year. Of course, if David has problems we will see him, but check-ups will be yearly now. So that will save us a bit of money, for sure. As far as David's leg goes, he is having a bit of 'trouble' with it. He still feels the pinching in his knee, and Dr. O said that is probably scar tissue under the kneecap. He said that eventually he will need to have the kneecap scraped, but for now he will kinda have to 'deal with it.' There is nothing the doctor can do now. Also, there is a spot on the scar that looks strange, and Dr. O said it is a stitch that is trying to work it's way out. He said just keep an eye on it, and if it turns red or starts draining fluid then give him a call. Otherwise, just let it be. He said that the area with the spot has had a lot of trauma, with all the lengthenings and all, so that is why it is having more difficulty healing. Overall, it was a good appointment. But David is having some trouble with the back of his knee now. He is back on crutches, again. Please pray that the pain goes away. If it doesn't get better, I will be calling the doctor. It could be the cold, but we don't know. Dr. O said that the cold probably bothers David because he is so thin (yeah, he has lost about 3-4 more pounds, GRRR) and the metal in his leg is closer to the surface. David has no lower quad muscle, so there is only skin between the outside and the metal rod! Please pray that his knee feels better. Thanks. So, we don't have to go back to Dr. O for a year! YAY!
I haven't heard from Connie on when David's scans are. I will be calling her tomorrow. It has been over 4 months now, and he needs the scans done! He also needs an echo; it has been a year since he had one. He has to have one every year, because one of the long-term side effects of chemo is heart issues. Please pray that I can get some answers from Connie. Thanks.
I posted a quote on my facebook that I got from a fellow Osteo mom, and I am going to re-post it here. Here goes:
Osteosarcoma doesn't have lifestyle risk factors, doesn't run in families, you can't cut your risk of getting it by eating vegetables or staying fit, there are no warnings or a certain age that you should start screening for it. There is also no world recognized symbol for awareness, nor new breakthroughs in the labs. The treatment is cut, poison, and burn (surgery, toxic chemo and radiation) and has been the same for over thirty years without ANY advances. Save the ta ta's? Some children never grow old enough to have them!
That is sooooo true. Please continue to get the word out about Childhood Cancer.
Four years ago today I got the phone call that David had a bone tumor. Four years ago yesterday David had his first (of many) MRI. The doctor called me the next morning (four years ago today) to tell me that David had a bone tumor. Four years ago today our world was turned upside down and our lives were FOREVER changed. Three years ago David completed chemo. He is alive today only by the grace of God; we were told he wouldn't live this long. Praise God they were wrong! We cherish every day we have with him, because we never know. Four years. I can't even imagine what my son has been through in the last four years, physically, mentally, and emotionally. He amazes us.
One thing that is concerning to us is that he has been talking a LOT about rotationplasty lately. We know he knows how limited his mobility is with the limb-salvage, and he would have much better mobility with the rotationplasty. He has said that he knows he will do it, he just doesn't know when, yet. Please pray for peace for my precious son as he makes decisions for his quality of life. It is his choice, it is his life. We made the decision for him to do limb-salvage, and we sometimes think it was the wrong decision. All I can say is please pray. Thanks.
That is about it for now. Thanks for visiting and checking in on David and the Koury Klan. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
In almost all cases, childhood cancers arise from non-inherited mutations (or changes) in the genes of growing cells. As these errors occur randomly and unpredictably, there is currently no effective way to predict or prevent them
Fall is definitely here!! We even had snow on Thursday. It pretty much snowed all day. It was a warm snow, so it melted as soon as it hit the ground, but it sure was pretty!! It was cold, obviously. We had a fire in the wood burning stove! It will be getting warm this week, up into the 70's, but it was a nice taste of what is to come! And since it as been in the 20's overnite, I am hoping the pollen will be gone! Bryon said most of the rabbit brush is dying or already dead, and I am glad!! My eyes are sooooo itchy!! And I can't sleep because I can't breathe! And David is having a tough time sleeping, too. Please pray that we can be over these stupid allergies soon! Thanks.
David had a doctor appointment on Friday in Pleasanton (instead of San Francisco) with the surgeon. We had to leave at 4am so we could get there in time. We would have rather left the night before, but #1 we really couldn't afford it; and #2 David didn't want to miss Bible study Thursday night. So we left early Friday morning. We took Elena with us and she did fantastic! Poor baby was in the car a total of 9 hours and only fussed for maybe 30 minutes tops, TOTAL! She never had a meltdown, never really cried, just kinda fussed occasionally. We are so proud of her. And she sure was a hit at the doctors office. Anyway, it was a good appointment. Because our insurance has changed and there are so many out-of-pocket expenses now, Dr. O'Donnell said that to save us money he will have David come only once a year. Of course, if David has problems we will see him, but check-ups will be yearly now. So that will save us a bit of money, for sure. As far as David's leg goes, he is having a bit of 'trouble' with it. He still feels the pinching in his knee, and Dr. O said that is probably scar tissue under the kneecap. He said that eventually he will need to have the kneecap scraped, but for now he will kinda have to 'deal with it.' There is nothing the doctor can do now. Also, there is a spot on the scar that looks strange, and Dr. O said it is a stitch that is trying to work it's way out. He said just keep an eye on it, and if it turns red or starts draining fluid then give him a call. Otherwise, just let it be. He said that the area with the spot has had a lot of trauma, with all the lengthenings and all, so that is why it is having more difficulty healing. Overall, it was a good appointment. But David is having some trouble with the back of his knee now. He is back on crutches, again. Please pray that the pain goes away. If it doesn't get better, I will be calling the doctor. It could be the cold, but we don't know. Dr. O said that the cold probably bothers David because he is so thin (yeah, he has lost about 3-4 more pounds, GRRR) and the metal in his leg is closer to the surface. David has no lower quad muscle, so there is only skin between the outside and the metal rod! Please pray that his knee feels better. Thanks. So, we don't have to go back to Dr. O for a year! YAY!
I haven't heard from Connie on when David's scans are. I will be calling her tomorrow. It has been over 4 months now, and he needs the scans done! He also needs an echo; it has been a year since he had one. He has to have one every year, because one of the long-term side effects of chemo is heart issues. Please pray that I can get some answers from Connie. Thanks.
I posted a quote on my facebook that I got from a fellow Osteo mom, and I am going to re-post it here. Here goes:
Osteosarcoma doesn't have lifestyle risk factors, doesn't run in families, you can't cut your risk of getting it by eating vegetables or staying fit, there are no warnings or a certain age that you should start screening for it. There is also no world recognized symbol for awareness, nor new breakthroughs in the labs. The treatment is cut, poison, and burn (surgery, toxic chemo and radiation) and has been the same for over thirty years without ANY advances. Save the ta ta's? Some children never grow old enough to have them!
That is sooooo true. Please continue to get the word out about Childhood Cancer.
Four years ago today I got the phone call that David had a bone tumor. Four years ago yesterday David had his first (of many) MRI. The doctor called me the next morning (four years ago today) to tell me that David had a bone tumor. Four years ago today our world was turned upside down and our lives were FOREVER changed. Three years ago David completed chemo. He is alive today only by the grace of God; we were told he wouldn't live this long. Praise God they were wrong! We cherish every day we have with him, because we never know. Four years. I can't even imagine what my son has been through in the last four years, physically, mentally, and emotionally. He amazes us.
One thing that is concerning to us is that he has been talking a LOT about rotationplasty lately. We know he knows how limited his mobility is with the limb-salvage, and he would have much better mobility with the rotationplasty. He has said that he knows he will do it, he just doesn't know when, yet. Please pray for peace for my precious son as he makes decisions for his quality of life. It is his choice, it is his life. We made the decision for him to do limb-salvage, and we sometimes think it was the wrong decision. All I can say is please pray. Thanks.
That is about it for now. Thanks for visiting and checking in on David and the Koury Klan. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
In almost all cases, childhood cancers arise from non-inherited mutations (or changes) in the genes of growing cells. As these errors occur randomly and unpredictably, there is currently no effective way to predict or prevent them
No comments:
Post a Comment