4 Years Ago
Good evening.
Bryon wrote the following yesterday, but I wasn't on my computer yesterday, so I will post it today. Here goes:
"We were supposed to go camping for the weekend, but David’s knee pain was uncontrollable so Kristi stopped by the doctor’s office to try to get him a prescription for pain meds. David’s appt. with the Orthopedic doctor here in Carson was scheduled for the following Monday.
Dr. Gentner (PCP here in Carson City) was extremely upset that the Orthopedist hadn’t seen him yet. He immediately started making several phone calls. He turned to Kristi and told her to get to Children’s Hospital Oakland. We had no idea where this hospital was (besides Oakland of course!). We had no idea what was in store for us. We were just told to get there quickly, there was a doctor waiting for us. We were told to pack clothing for about 4 days, we ended up being there for 2 weeks.
Over the course of the next 12 months David had 6 surgeries, and chemo (5 different drugs) 3 weeks out of 5 for 6 months, and 2 weeks out of 4 for 6 more months. The battle almost ended prematurely in February when David was literally minutes from death suffering from an intussusception.
4 years ago today we had no idea what osteosarcoma really was, besides being bone cancer. We had no idea he was metastatic. We had no idea his doctors and surgeon would tell us that he wouldn’t live long enough to do his make-a-wish cruise in the summer of 2009 (so he chose a shopping spree instead). We had no idea that we would lose family and what we thought were close friends due to the diagnosis. We had no idea that we would make new true friends and old friends from the past would be there for us when we needed it most. We had no idea how extremely awesome and supportive my coworkers are and what a loving family DPS really is. Finally, we had no idea how tough our son really is and what a strong will to live a scrawny little 13 yr old boy has. He is my hero.
4 years ago today our life was changed forever. Through all of the terror, pain, suffering and anxiety, we have truly been blessed!"
Four years ago today we were still dealing with David's pain. It has been a long four years. I thank those of you who have been faithful to us these four years. We aren't done with this cancer journey, never will be.
David is still dealing with pain and is still on crutches. He says the pain is so bad when he tries to stand on his leg that his knee buckles. We don't know what is going on, but Dr. O will be called in the morning. I also haven't heard back from Connie, yet. I will be calling her again tomorrow. Please pray that there is nothing wrong with David's leg. It is very concerning to us! We were just at the doctor (surgeon) on Friday and his leg/knee was fine! We will see what Dr. O says. I just really hate to think about an extra trip to San Francisco! We can't really afford to do that! *sigh*
Wylene, just google rotationplasty. It is an amputation, but with great mobility~~~more than David has now. It is not an attractive amputation, and it is very strange, but it is one David is sure is in his future. If there is a break or something with this new prosthesis, who knows? Maybe the rotationplasty will be sooner than we think! We would just covet your prayers for David at this time. Thank you so much.
Thanks for checking in and up on David and the Koury Klan. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Whether their children are in remission, cured, or still in treatment, parents of kids with cancer never really relax. Your mind tells you if it happened once, it could happen again.
Bryon wrote the following yesterday, but I wasn't on my computer yesterday, so I will post it today. Here goes:
"We were supposed to go camping for the weekend, but David’s knee pain was uncontrollable so Kristi stopped by the doctor’s office to try to get him a prescription for pain meds. David’s appt. with the Orthopedic doctor here in Carson was scheduled for the following Monday.
Dr. Gentner (PCP here in Carson City) was extremely upset that the Orthopedist hadn’t seen him yet. He immediately started making several phone calls. He turned to Kristi and told her to get to Children’s Hospital Oakland. We had no idea where this hospital was (besides Oakland of course!). We had no idea what was in store for us. We were just told to get there quickly, there was a doctor waiting for us. We were told to pack clothing for about 4 days, we ended up being there for 2 weeks.
Over the course of the next 12 months David had 6 surgeries, and chemo (5 different drugs) 3 weeks out of 5 for 6 months, and 2 weeks out of 4 for 6 more months. The battle almost ended prematurely in February when David was literally minutes from death suffering from an intussusception.
4 years ago today we had no idea what osteosarcoma really was, besides being bone cancer. We had no idea he was metastatic. We had no idea his doctors and surgeon would tell us that he wouldn’t live long enough to do his make-a-wish cruise in the summer of 2009 (so he chose a shopping spree instead). We had no idea that we would lose family and what we thought were close friends due to the diagnosis. We had no idea that we would make new true friends and old friends from the past would be there for us when we needed it most. We had no idea how extremely awesome and supportive my coworkers are and what a loving family DPS really is. Finally, we had no idea how tough our son really is and what a strong will to live a scrawny little 13 yr old boy has. He is my hero.
4 years ago today our life was changed forever. Through all of the terror, pain, suffering and anxiety, we have truly been blessed!"
Four years ago today we were still dealing with David's pain. It has been a long four years. I thank those of you who have been faithful to us these four years. We aren't done with this cancer journey, never will be.
David is still dealing with pain and is still on crutches. He says the pain is so bad when he tries to stand on his leg that his knee buckles. We don't know what is going on, but Dr. O will be called in the morning. I also haven't heard back from Connie, yet. I will be calling her again tomorrow. Please pray that there is nothing wrong with David's leg. It is very concerning to us! We were just at the doctor (surgeon) on Friday and his leg/knee was fine! We will see what Dr. O says. I just really hate to think about an extra trip to San Francisco! We can't really afford to do that! *sigh*
Wylene, just google rotationplasty. It is an amputation, but with great mobility~~~more than David has now. It is not an attractive amputation, and it is very strange, but it is one David is sure is in his future. If there is a break or something with this new prosthesis, who knows? Maybe the rotationplasty will be sooner than we think! We would just covet your prayers for David at this time. Thank you so much.
Thanks for checking in and up on David and the Koury Klan. Have a good evening. God bless you all. We love you.
Kristi and the Koury Klan
Whether their children are in remission, cured, or still in treatment, parents of kids with cancer never really relax. Your mind tells you if it happened once, it could happen again.
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