Thursday, August 13, 2009

Good evening. It is a beautiful evening here. Very windy!!

David did very good in the pool today. He didn't get nauseous, yay! But, he usually doesn't get nauseous in the pool. But he did real well. Thank you for your prayers.

He is eating a LITTLE bit better. Still not as good as we would like him to eat......but still a wee bit better. Tonight I made a dinner that he loves; Southwestern Spaghetti; so he ate a good portion of it. He didn't want any salad, but that is fine. And he drank his chocolate milk with his dinner, too. I will be making him a milkshake tonight.

We had a good time at our support group meeting last night. It is good to connect with other parents who are in pretty much the same boat as we are. It helps to not feel so alone in this journey. With all the 'friends' (and others) that have abandoned us during this time, we have felt pretty alone. But you know what? I have learned a lot during the hard times. I have learned a lot about the kind of person I want to be. The kind of friend, mother, grandmother, mother-in-law, etc. that I want to be. I also have learned what kind of person I do NOT want to be. We have talked to the friends who are still there, and we have vowed to them that we will be there for them, no matter what. Like I said many, many months ago; you find out who your friends are. And, believe me, we have found out!!! I know I am not perfect, and I have let others down. But I know I will try to never let anyone down again. I know how it feels to never hear from people who say (or said) that they care; no card, note, or phone call. Some of them say they are 'too busy' but they find time for other things. *sigh* I read enough Caring Bridge sites to know I am not alone in my experiences. Others write the same things that I feel and experience. Interesting, isn't it? I know that it just gets too hard for some people to know that this is a battle we will be fighting all of David's life. All I can say is, it must be nice to just pull away and not be there anymore. Sometimes I wish I could have that luxury. Oh well. I guess they have to live with themselves for abandoning us in our greatest time of need. The time we need specific people in our lives they just can't be bothered. I am thankful for the new friends that God has brought into our lives to replace the ones that have left us. And in the end, if Bryon and I and our children are all we have, that will be ok. I am thankful for our online friends~~~yes, that is you who read this! Even though I haven't even met a lot of you, I know that you are there for us. Thank you!!! And I know that you know that I am there for you, too.

Please continue to pray for the specific prayer request that God knows about. Thank you for visiting and checking in on David and the Koury Klan. Have a good night. God bless you. We love you.

Kristi and the Koury Klan

For the first time since its founding, the decrease in funding to the Children’s Oncology Group moves research to a dangerous level where studies and accompanying laboratory research that hold promise will not take place.