Sunday, November 15, 2009

Good evening.

Today was an ok day. David is feeling much better. He is hooked on Ginger
Ale! Crazy kid! That is his drink of choice now. That is just fine with
me. It keeps his tummy settled. He has eaten much better today. His tummy
is still sore; inside and outside. I know that will take time to heal.
Back in 2/08 when he had the endoscopy that discovered the ulcer they said
that the trauma to his stomach does take time to heal, especially with an
ulcer!! Poor kid. But it will be fine. He did eat better, and I am happy
with that. The one thing that I am having NO problem getting him to eat is
chip and dip! We have this great dip from a mail order place (called
Singing Pig Food Co.) that David loves. I make it with lowfat sour cream
and mayo. The flavor he likes is Cheddar & Chives. So if he will eat it, I
will gladly make it for him. I only have 2 more pkgs. of that flavor
left........so I hope he doesn't eat it too fast, ha-ha. I bought it quite
some time ago, and put it in the pantry and sorta forgot about it. I am
glad I remembered it so I could make it for him. At least I found
something he will eat! Thank you for your prayers; he is feeling better. I
am continuing to soak my house in Lysol, and I bought David a new
toothbrush! So hopefully I can keep him well.

Please pray for my daughter-in-love, Lucy. She is not feeling well. It
isn't what David had, she is having sinus problems. She seems to have a
lot of sinus issues~~not sure what that is about. Jeremy came over today,
Lucy stayed home. She didn't need to spread her germs or be at risk of
getting David's germs. I sent Jeremy home with a can of Lysol to spray all
over his house!! Thank you for praying for her.

I talked to David's school about the 504 plan. She was very helpful and
sent us some forms to fill out. I wrote her back and told her that David
is having issues with the time constraints. He has always been
homeschooled, but since the cancer diagnosis school is just done on his
own time. As you know, that means that sometimes he finishes school in
late July; but he still finishes. Then I gave her the addresses to David's
websites, and this is what she wrote back to me, "Kristi,

Thanks for sharing his websites with me. I was wondering if you have
thought about sharing them with his teachers, too.

It is an understatement to say that David and your family has been through
a lot over the past couple of years. I'd like to get the 504 plan in
place for him as soon as possible.

Heather" So now I am thinking about giving David's websites to his
teachers so they can put a face to his name, and understand why he needs
the 504. But I thought that was a sweet note from Heather. I am not asking
for 'special treatment' for David; but with all the surgeries, trips to
Oakland Children's Hospital, trips to San Francisco, trips to Renown, PT,
etc. he just needs more time to complete the work. He tries so hard, poor
guy. Thank you for your prayers about that.

David has an oncology appointment tomorrow. We will find out some
information about his blood work, hopefully. We want to see if we can
discontinue the Phosphorous. We will also see if it would be advisable to
travel anywhere for Thanksgiving. We have been potentially advised against
it by the surgeon (it would be too hard on David to sit for a long time
just fresh from surgery), but we will see. Plus, with him being so
recently sick. . . . I just don't know. I know to a healthy child, once
they are over their sickness it is 'back to normal,' but that is just not
so with a child who has/had cancer. Like I have said many times, this is a
new normal that we are going to have to get used to! And some things just
seem to not make sense to us. But that is because we aren't used to this
life!! *sigh* As usual, we will just have to play it by ear!

Thank you for visiting and checking in on David and the Koury Klan. Thank
you for your love, prayers, and support. We really appreciate you. Have a
good night. God bless you. We love you.

Kristi and the Koury Klan

Cancer treatment can cause serious side effects that may last a lifetime.