Friday, June 5, 2009

Good evening. It is cold and windy and gorgeous here. We actually have a fire in the fireplace (wood-burning stove) as I write this. It has been raining, and we love the rain.

We got a call from UCSF today about David's upcoming surgery. We will have a pre-op phone call on June 18th. David's surgery will be June 22nd at 7:30am. We check in at 6:30am. That is why we have to go the day before. They have him set to spend the night in the hospital~~but we will see about that. We don't want to have to spend the night in the hospital, but last time we had a hard time managing his pain, so I was wishing he were in the hospital with the IV pain meds that work better than the oral ones. So we will see how it goes this time. We will play it by ear and see how he does. Please pray for him as he prepares for yet another surgery. I am so tired of my baby being put through all this. Then to know that he has to have the entire implant replaced in the next year or so just sucks!! How much is one child supposed to have to go through?!?! So that is the info as I know it about his next surgery.

He is doing ok. Earlier this week he had a pretty bad day. His stomach hurt him very badly for several hours. It was very frustrating. I really hate those days. It is so difficult for us to see him in pain like that. He couldn't walk or even stand for very long. So he just laid around until he felt better. He is feeling better now, so that is good.

I didn't post for a few days because we were very busy. I cannot say what we were doing, because I will be criticized for it. People who don't have a child with cancer do NOT understand decisions we make, so they feel the need to criticize me for them. So I choose to not post them here. Rest assured, we enjoyed some 'family time' together. We have had a year from hell and we are still trying to recover from it. Just being together is very important to us, so we spent some time together. I just chose not to post during that time. We don't have to do anything special, just be together. So we did. Thank you for your concern, things are ok.

Also, David had found a lump on his skull that we were watching. We know osteo spreads to lungs (been there) and other bones, so we didn't know what it was. We decided to not say anything, but just watch it. Well, it went away, praise God!! It is hard for us to accept that our lives have forever been changed. We can't just feel a lump and not panic!! We try not to, but it is really hard. So we have been dealing with things I just don't post. Sorry to worry you all. We are ok. We still need lots of prayers, mainly for financial issues. I know the economy is bad so lots of people are struggling; but we have the economy and a child with a life-threatening illness to contend with. We really appreciate the prayers. Thank you.

Thank you for visiting and for posting in the guestbook. Thank you for your love and prayers. Have a good night. God bless you all. We love you.

Kristi and the Koury Klan

Several childhood cancers continue to have a very poor prognosis, including: brain stem tumors, metastatic sarcomas (that is what David has), relapsed acute lymphoblastic leukemia, and relapsed non-Hodgkin's lymphoma.