Monday, April 20, 2009

Good evening. It was another beautiful day today. It was sunny, patchy, fluffy clouds, and warm. Beautiful!

David had his oncology appointment today in Reno. It went very well. He has lost a little weight, but that is ok. Connie is very pleased with how he looks. She ordered 12 more weeks of PT. We can only order so much at a time; stupid insurance rules. So we will have at least 12 more weeks. We know it will be more, but that is where we are now. We won't be seeing Connie again for awhile, she is having her knee replaced. She said if she complains, people are to tell her 3 words~~~David and Teagan!! She said if those two kids can do it, so can she. They are her inspiration. She admits she is a complainer; she is funny. We like her so much. Anyway, she said we don't need to worry about David's lab results. We were concerned because his platelets and white blood count were low. She said it is ok. We still don't have the results of David's B12, she couldn't get into Children's Hospital computer. She said she will find out tomorrow and let us know. Otherwise, she said he is doing great. He will have another echo in the Fall. We are planning his next scans for first of July; to coincide with staple removal after David's lengthening surgery on June 22. It was a good appointment overall. Things are moving along with David getting back to a 'normal' life. We know it is a new 'normal,' and one we didn't choose, but we are taking it one day at a time, and living each day to the fullest. We are just so thankful that David is still alive. Oh, I just remembered that Connie said she will have kinda the same surgery David had (the knee anyway), but she said she decided to keep her bowels the way they are. No intussusception for her. She cracks us up!! We told her she is a party-pooper. Again, we like her alot!!

Then David had PT at 1:00. He got nauseous because it was really hot in there today. We are going to get him a hand-held fan so he won't get hot. I am a little concerned about summer~~~he will get too hot. So hopefully the fan will help. Besides that, he did great in PT. Linda added more weights to the machine when David does the leg press, and he was able to do it!! He tries so hard, and does great; for him. We are so happy to see him walking and trying to be a 'regular' kid. We had bar-b-qued chicken for dinner, and we ate outside on the patio. It was good to see David walking on the curbing around the fake grass in the backyard. He was balancing and walking great. It will be so nice when he is 'even' and doesn't have that limp. But he still did really good walking on the curbing. Bryon and I loved seeing him do normal kid stuff. It is great.

Please continue to pray for Sammie. Times are extremely difficult right now for the family. She needs a lot of prayer and support. Thank you.

Well, that is about it for tonight. Thank you for visiting. Thank you for all your prayers and love; it means more to us than you will ever know. God bless you. We love you.

Kristi and the Koury Klan

September is Childhood Cancer Awareness Month…the general public is not aware of this!The Gold Ribbon is the symbol for Childhood Cancer…the general public is not aware of this either! The fact that September is Childhood Cancer Awareness Month and that the Gold Ribbon symbolizes Childhood Cancer goes largely unrecognized across our country.